posted
Since the 4th of July I have had numerous small sores on my chest and back. Each sore will take 2-3 weeks to heal and as soon as one is gone more appear.
They start off as a very small raised bump (size of a pinhead). I'll unconsciously scratch one and it begins to bleed. Then it will scab over and once the scab comes off (usually from me scratching or picking it again) it bleeds profusely again...and so on and so on. each time the sore gets a little bigger and then becomes ulcerated like a small version of a cold sore. It bleeds a LOT though...unlike a cold sore. After weeks of this it will finally subside and heal. I've had as many as 15 of these at one time and as few as 2 in the beginning.
I need to go to a dermatologist but just haven't yet. I kept thinking it would go away but as soon as one heals several others pop up. Has anyone else ever had this??? Any ideas what this could be?? Lyme related or something else?
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
| IP: Logged |
posted
Does MRSA and Morgellons cause non healing sores?
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I have had these and found that it was a parasitic infection. Parasites/worms play a MAJOR role in Lyme disease. Using antiparasitic herbs and the salt/c protocol helped to kill the infections.
and also go to lymestrategies where they do salt/c as well as integrative and allopathic protocols. Do a search on here for parasites. You have to be persistent with the herbs because 30 days is not nearly enough. Some people also use antiparasitic pharmaceuticals as well. Most doctors think parasites are a third world order disease.
I went to the head docs at 2 different hospitals here, showed one of them the lesions and he laughed at me and said I needed a psychiatrist. Save yourself the aggravation because they don't have a clue.
BTW, I let the doc who laughed at me have it in front of his 2 residents. He was very embarrased. Total moron duck.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Morgellons can be a co-infection of Lyme. It can take a while to show up.
There are others in Texas with Lyme and Morgellons.
ditto...
i can connect you with some ppl there dealing with this but i will be offline for 4 days
if you want a number pm me and i will send it when i get back fri
my friend there has a good doc to help her with this...but texas is BIGGGGGGG...so dont know how much help it will be...but at least you can talk
she started with morgellons and now has both(i think)
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
TxLymie, I PM'd you a couple messages yesterday and at this point I'm getting concerned.
If you have Morgellon's it is important to have someone to mentor you of what to expect from this dreadful disease. In my experience I didn't know what was going on with my body and almost flipped out. It is very painful and is overwhelming and causes anxiety, frustration, and hysteria, at least I did.
Posts: 245 | From Texas | Registered: Jul 2009
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
TxLymie, There is a diagnosis for patients who repeatedly scratch until they bleed, it's a psychiatric term.
I just read about it in an article in the new September issue of Discover magazine. The article is featured on the cover..."How to Diagnose a Hypochondriac."
Ugh, it's a horrible article, the physician is condescending and dismissive of his patient's many symptoms and her written list of problems.
The article won't be available online for a while, so you would need to buy the magazine to read it. But after reading it, I don't think I would try to get a diagnosis.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
posted
Tx, My sister-in-law had a similar presentation of ulcerations on her back and chest (also in her mouth) and it turned out she had a condition called pemphigus.
posted
Not sure I would jump to the Morgellons conclusion. If you have been on antibiotics for an extended time I would think yeast and or fungus.
-------------------- enjoy the day.
-jmb Posts: 208 | From Maryland | Registered: Dec 2008
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I went thru over 5 years of unknown lesions that seemed to be on the same cycle you wrote about.
I experienced many differences though. My lesions actually would start with a burning sensation under the skin. The lesion would come to the surface as a hard red burning bump.
It would itch like crazy but I kept myself from scatching at them. When this first started they were happening on the tops of my feet.
Several months later they started on both elbows too. Several months later they started forming under one breast. Then it was under both breasts.
I could time this eruptions. I might have 4-5 on an elbow and then the rash would become one. Same with tops of feet and breasts, separate bumps and then a complete rash as much as 3-4 inches would appear.
I spent years fighting these with steroid creams to calm them down. Then I switched to essential oils like tree tea with would calm them down until they went thru their cycle.
Just couldn't figure out who or what was causing them. My PCP stated that there might be a connection to my serious Irritable bowel. Research shows that when there is bad guys invading the bowel, one sx can be skin eruptions.
I had my final (so far) master outbreak in the middle of June. These lesions popped up all over my body. In places I'd never had them before. It was pretty scarey time for me.
It stated with a bright red butterfly rash on my face that morning. The rash was on fire. I happened to have appt that day with my PCP and told him look at this NON Lupus rash today.
We both laughed at my Non lupus comment because I've been having this rash off and on for years. ANA is always negative for lupus. (lupus is lyme & co anyway). He asked if I wanted to see a specialist for further testing. Again a big joke between us. Don't even think I'm going to another dum dum specialist.
Later that day the hard bumpy lesions popped up all over my face. Completely around this butterfly rash and all over my legs, arms, and body. These son a guns burn and I'm miserable.
I started rubbing down my whole body with coconut oil and that helped. I did several detox methods inclusing detox baths, detox with Kosher salt rubs. More and more rubs with coconut oil.
It took about 2 weeks for all this lesions to heal. It's not happened since???????????
I do know that I had been doing babesia freqs with the rife machine within a week of this outbreak. I did babesia protocol a couple more times during the lesion outbreak. I have no clue if it eliminated a 5 year issue and symptoms.
Not only have I been lesion free....but my GI problems have been non existant since. So I really can't say why, who or how this all came about.
Oh yeah during this time I had all the bart and babs testing done with Igenex again and nothing negative. I know, there is no doubt that I'm fighting some other bad guys besides lyme.
I'm about to start some major protocols with a naturopathic healer which will include the big parasitic world. We'll see.
Good luck Texaslymie. I hope you figure out the enemy and destroy them soon.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
posted
I am not implying TxLymie has Morgellon's, in fact, her symptoms are different than mine. I agree with Carol in PA as I have been diagnosed as having Delusional Parasotosis several times. The Dermo's I've seen have been quite insulting and condecending implying I was self-inflicting the sores.
My lesions never heal and I do have fibers. I often have 50 lesions in a given area. They itch and bleed intensively.
My PCP has documented the fibers and has seen this disease in his country of Haiti. He is treating my symptoms mainly with creams which do not help, even IV's of Vancomycin twice daily hasn't helped.
I have read what others are saying and feel that your condition could be any of those mentioned so it would be best to have your PCP look at them and treat or refer you to a Dermo.
At least you can learn from this forum which I was not a part of when I came down with Morgellon's. I did have Lyme, though.
Posts: 245 | From Texas | Registered: Jul 2009
| IP: Logged |
posted
I have a friend who had the same issue and many dermos have told him morgellons. I told hime to get a lyme test since he hunts in the same endemic area as I live but he says no, its not from my tick bites.
He allows the docs to treat him totally with steroid injections and creams and still the sores pop up all ove ragain and break and crust over. he is embarrassed to go out and have people see him and I cannot convince him to test since I am afraid the steroids will make it worse.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I wonder if treating the sores with LED light therapy, like the LightWorks, would help.
When I first got a LightWorks unit, I used it on a sore on my earlobe, which I had for six months...it never really healed.
After treating it with the light emitting diodes, it was healed in three days!
posted
Very interesting Carol. I would like to know more about the Lightworks.
I can relate, Annier, to your friend. When I need to go grocery shopping I often talk myself out of going because it's too much trouble to cake a pound of makeup on to cover the sores.
I would be very cautious about steriods. I was on Remicade and Enbrel for years for my RA and it did not improve the Morgellon's. I feel they weakened my immune system so much that it allowed Morgellon's to jump on in to the mix.
The "M" lesions rarely stay the same, they morph in to different stages but they all itch like the devil and have a tiny brown or black spec in the center of each lesion and the skin is very crusty and rough.
I have tried many approaches to treating my lesions and I always fall back on Calimine(sp?) lotion and gels with silver but none of these help with healing, just comfort.
Posts: 245 | From Texas | Registered: Jul 2009
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Here is a page with links to research about LED light therapy. Many of them refer to it as low level laser, just so you know, when you're reading.
You can also buy on eBay and Amazon, many other vendors too. If you buy from the SOTA site, you can google for a discount code to use.
I don't have experience with any of the other LED light therapy products. There are others that are stronger, but are more expensive.
I think that someday this will be in everyone's first aid arsenal, like heating pads are today.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic