Topic: Those With Thyroid/autoimmune Issues Please Help
Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
I treated years ago for lyme with IV and oral abx and have gradually been getting better over the years...Recently, I'm concerned I may have something wrong with my thyroid or an autoimmune issue. I just got back some bloodwork and was hoping you could help:
I did not have the Hashi's run but it's been normal in the past TSH: 2.381 (.5-6.0) T3: 2.31 (2.0-4.9 T4: .99 (.75-1.54)
Vitamin D (for which I've been in the sun alot and taken 2,000-4,000 ius daily since December 2010): 35.9 (30-80)
The only thing the doctor was surprised to see was that my Vitamin D is at the lower end of the normal range given how much I'm in the sun without sunscreen and how much I take orally
My recent new symptoms that prompted the bloodwork:
episodic swimming headed (What was I just talking about?) insomnia fatigue episodic achiness adult acne cold hands and cold feet increased anxiety last period was delayed and had horrible cramps (highly unusual)
***Does this ring a bell for anyone? Could I have something wrong with my thyroid even with the normal tests above? Why is the Vitamin D so low??? Any insight is really appreciated...
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Hi Bugg. I would feel terrible with your TSH even though it is in the "normal" range. It is my understanding the high end of the range now is well below 6.
Are these tests the T3 and T4 or the Free T3 and Free T4 ? The Free T3 and Free T4 are the most important tests and many doctors do not run them. Many people, including myself, feel best when the Free T's are in the upper 1/3 of the range.
To get a good look at your thyroid function, I highly recommend getting the Free T3, Free T4, and thyroid antibodies tested.
Some people who have Hashimoto's have normal thyroid results but treatment is warranted because of the antibodies. I went years (and I mean years) with symptoms and kept being told my thyroid results were normal. Finally a doctor ran the antibody tests. On one test the normal range was 0-32 and mine was over 2000! Hypothyroidism can cause many symptoms.
Many Lymies seem to not absorb Vitamin D. Maybe you should try a prescription one to get your level up?
Posts: 4681 | Registered: Oct 2000
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I know so much about Hashimoto's ugh!
This is what I was first Dx'ed with before lyme. Ater treating for about 6 months and not feeling better i knew something else was wrong.
Your tsh is alittle high. USually most people feel good with a TSH around 1.00
Like Sammi said make sure you get anti-bodies. TPO and TGAB tested.
MAke sure you get your free's tested as well.
If you do need to go on a medicine try a natural one first like Armour or Naturthroid.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I agree with the others. I also want to add that gluten may be an issue given the thyroid and monthly cycle cramps. Gluten causes me severe cramps/migraines with my cycle - blood tests show my Progesterone drops significantly when I'm gluten-exposed, hence the cramps/migraines.
Thyroid issues are known to be associated with gluten sensitivity or Celiac. Might want to check out http://www.enterolab.com/ (I have no financial connections with this website/lab/doctor) and also http://www.theglutenfile.com/
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have been researching LDN (low dose naltrexone) and it is very good for correcting autoimmune hyperthyroidism, as well as boosting the immune system to help with lyme. Last year I tested positive for antibodies against my thyroid. I am starting LDN.
I tested in the normal range all of my life but was finally given armour based on my symptoms. What a difference.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
I so appreciate everyone's input..
1) Would those with thyroid issues tell me how I would tell the difference between lyme symptoms and Hashi's symptoms? Does my symptom list above sound like Hashi's?
2) Could Hashi's cause morning stiffness/muscle stiffness? Did thyroid meds help this in anyone?
Thank You!!!
Posts: 1155 | From Southeast | Registered: Oct 2005
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