posted
does anyone know what it means to have had a positive ELISA and then 'p42 AB WB' this was nearly 2 years ago, and it was deemed negative. I still have so many problems and was diagnosed 2 weeks a go with LUPUS. ( I don't have lupus symptoms just positive ana and elevated ds dna)( and a complete negative westen blot for lyme)...I finally saw an LLMD yesterday and he started me on doxy until lab results come back from quest. Do you think this "41" was significant in the past? sorry I'm sure you have all heard this typr of q'a before but I am new ot this and scared. thanks so much.
-------------------- ~Lola Posts: 61 | From New York | Registered: Aug 2011
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posted
thanks He saud i could send it to Igenex if i wanted but quest accepts my insurance and this is only the beginning of the costs. I still have a Rheumy for my "lupus" whatever,,, . and yes it was band 41. thanks again♥
-------------------- ~Lola Posts: 61 | From New York | Registered: Aug 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Just be cautious if your rheumy perscribes steroids for Lupus. Many on here have had positive ANA's. It shows that your immune system is compromised and Lyme could be contributing to that. Unless your LLMD approves do NOT take steroids.
quote:Originally posted by lululymemom: Just be cautious if your rheumy perscribes steroids for Lupus. Many on here have had positive ANA's. It shows that your immune system is compromised and Lyme could be contributing to that. Unless your LLMD approves do NOT take steroids.
- nor any other immune suppressing drugs.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
I have taken 3 doses of 100mg doxy. My head feel like it has the worst brain freeze above my left eye and temple. I am scared. is this a normal side effect. I feel awful today.
-------------------- ~Lola Posts: 61 | From New York | Registered: Aug 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I'm surprised they diagnosed Lupus with no symptoms of Lupus... The bloodwork being positive for Lupus is sometimes falsely positive (meaning that a certain percentage of healthy adults have the same positive bloodwork with no symptoms). Lyme is known to cause false positive ANA and possibly also ds-dna antibodies. I've got a Lupus diagnosis as well, but it is considered to be secondary to Lyme and will likely disappear when the Lyme is gone/under control.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
i was surpised as well. i went to the rhueum bc my fam doc was thinking lyme. even the rheumy thought lyme but on a whim did the ana. he immediately ruled ouy lyme becuse the wb was neg but the tests for upus was positive. symptoms began november 20th 2009. it was a couple of days after a flu shot. originally thought it was guillian barre. i had tingling legs muscle fsiculations a sense of numbness, my left eye is chnagng vision,. everyone ssaid it was my anxiety and called me hypo. so i am finaaly being treated. is it bad that i am hoping for a positve result from my labs??? I just want a definitive answer for me and for EVERYONE else who thinks I am dramatic. you are all awesome. I appreciate all of you.
-------------------- ~Lola Posts: 61 | From New York | Registered: Aug 2011
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posted
Before I knew what was wrong with me..I took the flu shot & got REALLY sick. Also took steroid shots in the spine because of the pain...those steroids went directly to my brain when I got into a aqua-massage machine. After I found the REAL answer then I realized WHY...
Posts: 75 | From Missouri | Registered: Apr 2009
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posted
You said you had a positive ELISA - like Lymetoo said, that means positive. Regular docs don't understand that a negative test doesn't rule out Lyme. Yes, the shot could really mess you up.
If you qualify at all as low income, you can do the IGeneX testing at 75% off - www.lymetap.com
I don't think you're being dramatic - you're being real here with your concerns and symptoms. My opinion is that you have Lyme, based on your saying you got a positive ELISA.
You have to be patient with treatment. It's a marathon, not a sprint. I personally don't like to take too much, so as to keep the level of any herxing reduced and more tolerable. So I usually back down in any dosage if it's too much.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
thanks for that info. I don't think we'll qualify and I have a very supportive family if I need extra money for costs, so I'd rather someone else who needed that more than me get it I am going to wait and see what the quest results say and then I'll go from there. tests were on monday so I'm thinking anothe week or so.
-------------------- ~Lola Posts: 61 | From New York | Registered: Aug 2011
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He saud i could send it to Igenex if i wanted but quest accepts my insurance and this is only the beginning of the costs. I still have a Rheumy for my "lupus" whatever,,, . and yes it was band 41. thanks again♥![[group hug]](graemlins/grouphug.gif)
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ughhhh!!! they will try somthing else sat.
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