tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
All of a sudden I have horribble anxiety I cant calm down and I am questioning everything in my life!!
omg what to do!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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lymeboy
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posted
Have you been treating Lyme? Once I treated Lyme, Bart reared its ugly head. Bart causes major anxiety and mood swings. I have flown into some major rages over nothing. If you haven't adressed Bartonella, it could be time.
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tricia386
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posted
I am like getting sad the happy sad then happy. Then almost ocd like thoughts questioning things in my life adn who i am. Then i get songs stuck in my head
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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phyl6648
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Member # 28522
posted
Anxiety has been one of my main symptoms..I also have mild depression when my anxiety is high.
Wish I had an answer but also when I started abx my anxiety went through the roof, still does at times so lowered my abx dose.
I can so relate its horrible.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
Its neurotoxins interfering. Important to have a way of neutralising them. Charcoal on short term and reduced glutathione on longer term. It would be good if you could have seleniumlevels and glutathion levels checked with your doctor. Probably low on glutathione, the master detoxifier and antioxidant. Avoid all radiation, like cell phones and WIFI. Any chemical exposure will worsen.
Prayer can help, when you are out of it. Read some of the Gospel. Luke or Mark. Hold on! Peace be with you
-------------------- "They that are whole have no need for the physician, but they that are sick: I came not to call the righteous but sinners to repentance"(Mark 2.17) Posts: 149 | From Amsterdam | Registered: Jul 2011
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quote:Originally posted by tricia386: I am like getting sad the happy sad then happy. Then almost ocd like thoughts questioning things in my life adn who i am. Then i get songs stuck in my head
That's totally me! I wish I knew which infection is causing it.. or maybe it's a combination.
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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lululymemom
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Member # 26405
posted
I hope you are taking magnesium.. it is known for it's calming effects. Lyme disease robs the body of magnesium. I found this out 10 years into my disease.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I start wondering if I am happy... If i am dying.... what if i dont like men anymore.. what ifi dont like my bf what if i have cancer like CRAZYYY thoughts! that i knwo arent true. Then I cry bc I have them. NEVER had this b4...
im thinking maybe I am toxic overload?
Or candida
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
Oh, kiddo, I know how awful it can be! Before I got my Lyme diagnosis, a psychiatrist labled me as having a "rapid-cycling bipolar disorder." Up, down, up, down, up, down.
And music! Yipes! I had been a classically trained musician, but now I couldn't listen to ANYTHING. The music would go round and round in my head until I thought I'd jump off a cliff just to get it to stop.
Benzodiazepines didn't help--they just drugged me out and made my ataxia worse. But low-dose naltrexone (LDN) did. It didn't make all my anxiety go away, but it really took the edge off.
When neurotoxins are released during Lyme die-off, they cause glial cells (which are central nervous system immune modulating cells) to produce excess glutamates. LDN helps to balance out glutamate production by getting rid of the excess.
LDN also blocks opiate receptors, thereby increasing circulating endorphins (you know, the "runner's high"). This helps reduce both pain and depression.
If you're not familiar with LDN, just google it. There's lots of info on the net.
Good luck, and REACH OUT again if it gets too much for you. We're all here for you.
Posts: 14 | From United States | Registered: Aug 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Its funny you say that. I was on LDN 2mgs. And they upped me ti 4.5 and this is how this all mess started. first i had bad nausea and anxiety thought i was gunna die.
then anxiety and diaherea.
now just anxiety and panic attacks
what can i do to help
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
will it ever go away??
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
So...Tricia...how much magnesium are you taking?
Okay, this is not going to solve everything, but it's a start. Your liver needs magnesium in order to make glutathione, which it uses to detoxify poisons.
The Lyme bacteria leave behind neurotoxins when they die...poisons that affect our nervous system.
You can eat foods high in magnesium, such as almonds, almond butter, and beans...baked beans, bean soup, bean burritoes. I add a can of rinsed kidney beans when I make macaroni salad.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
Oh Tricia...I am sorry!! I have also been dealing w/ mood swings and irritability lately. I actually stopped the LDN because I felt like that ramped things up and made me on edge. I am not sure if it was that or not but I did stop it last week and will talk to the LLNP next week.
I have been so easily emotional. I watched my friends husbands in a triathalon last week and thank God I had sunglasses on because I actually started to cry watching people I didn't know cross the finish line. I mean I can be sentimental but that took me by surprise.
The other day I convinced myself I had ovarian cancer...started completely freaking out but by the next day got a grip. It comes and goes w/ me too and has only really started in the last month or so (when I stopped abx and started chelation).
Last night I was even reading online about psychiatric conditions related to lyme! I can't believe you are going through this too!!
I do wonder if LDN could play a role!
I had already decided this would be the focus of my next LLNP appt. When I am out of my house I am OK but when I am home my brain races. I sometimes wonder if we are on way too many things w/out really knowing what is going to impact different parts of our nervous system.
I stopped a couple of other supplements because I wondered if they were ramping things up for me as well. This is when I wish I had a medical degree!!
If you want to talk let me know! Thinking of you !!
Posts: 376 | From New York | Registered: Jan 2011
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posted
Tricia, I didn't realize you'd already been on LDN. How long have you been on it?
My experience was that for the first two weeks of being on it myself, I had restless sleep and nightmares. But I stuck with it and those side-effects disappeared. It took about a month before I started having benefits, and that was with upping it REALLY slowly (by only half a milligram per week).
Posts: 14 | From United States | Registered: Aug 2011
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Jamers
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Member # 28016
posted
BARTONELLA...that's all there is to it in my opinion.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
I'm getting older, but not old enough for a nursing home.
A couple of months ago, I suddenly became so fearful of being in a nursing home someday when I'm old, that I panicked.
And I felt that way for days. There was a rational part of me that knew my fear was ridiculous, but could not stop.
That wasn't my only negative worry.
Now it all seems funny, but then it was so real!
Now, I'm just obsessive. I've edited this twice already for picky reasons. Still don't like it. Not treating for bart but think I might have it.
Those who KNOW they have bart, does this go in cycles?
Posts: 1297 | From USA | Registered: Dec 2002
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posted
when that happens to me, I noticed that my heart
is racing for no reason.
I check my heart rate and it is 20 beats for 10 seconds! That is 120 beats per minute, at least!
It is the racing heart that gives me the confusing emotional symptoms.
When women have heart attacks, that is how they feel.
I am suppossed to have a cardiologist watching out for my heart. But I don't.
So, all that to say, maybe you are having a heart attack caused from Lyme, Babesia and Bartonella.
I read a article, that someone here found, about a surgeon, or some type of doctor, who worked in a hospital and also ran marathons!
All of a sudden, he wasn't feeling quite right. He checked to see if he was sick, and even he was ignored! Until one day, his heart completely gave out!
He had to have a heart transplant! And they checked his old heart and it was full of Lyme disease (I am not sure if it was full of co-infections as well).
So please, don't beat yourself up. That is a common symptom of mine too!
Get your heart checked, but if we whine too much about our "feelings", then we will be ignored, or sent to the psych ward!
-------------------- I am not a doctor. I have no clue. Posts: 606 | From somewhere out there | Registered: Sep 2009
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glm1111
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Member # 16556
posted
EVERYONE should treat for parasites and do a search on here for parasites/worms. They play a MAJOR role in Lyme disease and are often overlooked.
Dr. K. treats ALL of his patients for parasites FIRST and Lyme and co SECOND. Anxiety is on the symptom list for parasites. Google parasite symptoms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
ugh everything is horribble my mood swings are out of control
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Jamers
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Member # 28016
posted
Marz-Mine does not seem to go in cycles but rather I feel like POO all the time.
Missing-I agree about the heart issues, the funny thing is that mine are back since starting treatment for Bartonella. When I first got sick my symptoms were crazy racing heart (200 BPM!) and I was in and out of the ER monthly. My heart tests were always normal although during my stress test my heart rate was way higher than it should have been for resting. They still said my heart was fine! I've had weird heart issues that also come with anxiety and a hard beating heart.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Tricia386-Mine are the same way...I have rages of anger where I cannot stand anything! I have OCD thoughts and songs playing in my head and that's all I can think about. I cannot handle any stress and get irritated very easily. I don't feel like myself at all, even my personality is different.
When my dog would bark my heart would start to race and I get startled/scared very easily. All of this is the opposite of my personality and I can only attribute it to Bart.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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quote:Originally posted by Jamers: Tricia386-Mine are the same way...I have rages of anger where I cannot stand anything! I have OCD thoughts and songs playing in my head and that's all I can think about. I cannot handle any stress and get irritated very easily. I don't feel like myself at all, even my personality is different.
When my dog would bark my heart would start to race and I get startled/scared very easily. All of this is the opposite of my personality and I can only attribute it to Bart.
Wow, that's me. It's awful..it makes me really feel like I'm losing it! I've wondered if it's from bartonella... well, good thing we're going to go after that soon. I guess it could be other things too, like babs or parasites, but something tells me it's bart.
Ugh...no matter what it is, I can't wait until it's gone.
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
This OCD Thoughts are crazy
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I think it is the same for me and I think it is Bart and I think it comes in waves, very definitely, every 5 days
with sore, pulsing soles and palms, and severe sweats, chills, and chest pain (heart area), throbbing hot thighs and calves and lower back, and red streaks on my legs and even on my left breast, double vision
anxiety attacks big time!
racing heart and shortness of breath and high blood pressure, EKG is fine
I am only on minocycline now, ramped up to 100mg bid for two weeks now, since I personally don't like to take too many drugs at once
the mino has helped but it is not 100% gone: I can feel the "wave" of sysmtoms come on and it does not get bad, like it used to, Yeah!!!!, so I think the mino is doing something
the only other stuff I take is: mangosteen juice Ultra from Trace Minerals, Vit D drops from Carlsons, Vit C powder from Bluebonnet, Se and Multivitamin from New Chapter (no magnesium sterate)
the mangosteen juice has stopped my severe eye pain, I think
I also eat a few spoons of kefir and probiotics from Renew Life (50 to 80 Billion per pill) religiously 2 hours after each abx dose
I try to work out (to sweat) every other day
the anxiety has gotten better!!!
there is hope
It is soooo scray when it comes on, I know
try Bart treatments, maybe that will help you
hang in there and best of luck to you!!!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 599 | From USA | Registered: Jun 2011
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tricia386
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Member # 29623
posted
)
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
My daughter is experiencing the ocd irrational obsessive thoughts, etc., minus the heart issues.
I'm going to try her on a Bach Flower Remedy called white chestnut. I'll let you know if it works, but perhaps you can buy some too and see if it helps you. Just take 2 to 4 drops under the tongue 3 times per day (make sure to take them a good hour away from all abx, food, drink, mints, chocolates, etc.)
Rescue Remedy should work within 15-20 minutes but will probably stop being effective after a month or so of continuous use.
The white chestnut may take longer to kick in so take for 6 to 8 weeks to really see if there is any improvement.
Rescue Remedy (also by Bach) is very good for acute onset and worked great for dd for the first month or so. It's effectiveness wore off though, so no longer works for her. I think she would need a break from it for a couple of months for it to once again work.
Try Rescue Remedy and/or white chestnut to start--hopefully it will help--
***obviously clear these suggestions with your LLMD first if necessary***
Also try walking to get out the excess energy--helps me at least during the walk.
Sorry you are feeling so badly.
My dd wishes it would stop too, so I know it is very uncomfortable.
Posts: 648 | From northeast | Registered: Feb 2009
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posted
Allergies and adrenals go hand in hand also.
LDN put me on edge and made me feel awful. I tried it for 2 weeks and just did not like the way I felt or slept.
IMO Adrenals are a main source of a majority of the symptoms we feel. The key is finding the catalyst.
Allergies(food, mold, etc) irritate the adrenal glands to produce more cortisol. After a while the adrenal glands go into a panic state always producing cortisol when they shouldn't.
Lyme and Co's can take a toll on adrenals as well, obviously.
If truth were to be know, I would bet after research you would find even CD57 scores are influenced by healthy adrenals. The lower the number the worse shape they are.
Try supporting the adrenals and the anxiety will go away. Their are foods and supplements that will help. I would add some links but not sure if they are against forum rules.
Just Google.. adrenal fatigue, adrenal deficiency.
Fuel
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I take Isocort by Bezwecken (sp?). I purchase it from endfatiguedotcom website.
Yes, I have a lot of enxiety and some depression along with my Lyme. I was recently told I probably have Bartonella and some residual babesia.
Insomnia problems as well.
How is everyone handling bartonella?
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