posted
I am wondering what this is called? Is it just European Lyme? Does it have an official name and is there information here specifically relating to it?
Are there any here in the states on this board in which have tested positive? It would seem most of my problems have been centered around skin issues and neuro.
I have made a lot of progress but I am just not there yet. TIA.
Laurie
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Marz
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Member # 3446
posted
European strains are borellia garini and borellia afzelli.
I got sick there and was tested her via Igenex for US strains and tested positive.
My symptoms are mainly neurological and fatigue.
I don't think treatment is any different.
I've tested negative for bart and babs and wonder if European strains just don't show up on tests here.
Posts: 1302 | From USA | Registered: Dec 2002
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posted
I was dx with a European strain and a US strain, my doc said the Euro strain affects the skin.
I posted a topic regarding skin issues I've been having.
I also had heavy nuero symptoms, it seems they are the strongest lingering symptoms still.
My treatment has been the same as my wife and she only has a US strain. The way I understand it is that it just focuses on different body systems, but treatment is the same.
Posts: 80 | From US | Registered: Aug 2011
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karenl
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posted
BleedGreen can you describe your skin issues in a pm in all detail, please.
Posts: 1834 | From US | Registered: Oct 2008
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which is sort of a poor name for it, just like Lyme, I suppose
it means "menigitis"
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 619 | From USA | Registered: Jun 2011
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posted
This was my pm regarding skin problems, most of it is copied and pasted from the "skin issues" thread below.
I began with small red patches of dry skin that were itchy and started getting cysts that won't go away even after lancing and draining them. This particularly was happening on my face.
I also started getting back and chest acne, some on the face. Since I began treatment the dry patches cleared up, but it seems my chest is getting worse.
The cysts haven't gone away, but they are smaller and fill less frequently. About a few months ago during the winter I noticed small randomly shaped white patches on my face above my upper lip below the corners of my nose.
I went to the beach for a day and those white patches that weren't really noticeable are very noticeable now. Not only that, but now I have white patches on each side of my nose starting at the bridge and extending down below my eyes to the center of my nose.
Last summer after being in the sun I have a few small hard brown spots, they don't change and won't go away.
My LLMD said this is my body trying to detox, she said the skin is the first place the dead bacteria and all will try to come out. She said this should clear up when I'm better.
I was tested and have no coinfections, though my doc said I have two strains of Lyme. She said one is a European strain that mostly affects the skin and the other a NA strain that attacks the joints.
Above is just copy/pasted from my post in another thread. I forgot to add that I was constantly itchy all the time all over.
In bed at night I could literally feel bugs crawling on me and biting me, I would get so freaked out that I would throw the covers off and turn on the light to make sure it was just in my head. Scared the hell out of my wife.
I also got a very dry itchy scalp with a ridiculous amount of dandruff. All of these things were not normal for me, I never experienced anything like it and it all began around the same time.
Posts: 80 | From US | Registered: Aug 2011
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Marz
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posted
Guess I took your question the wrong way.
I asked a German au pair here in US what it's called and she said boreliose
I like hinhautenzuendung better than lyme. It goes to show they recognize it's a neurological disease since they recognize it as meningitis.
This article in German addresses the difference between the two, but my German isn't good enough to grasp it.
posted
From what I understand in Europe they treat Lyme by Dr. B's guidelines or something similar, it is the commonly accepted way to treat. At least in one eastern europian country that I'm familiar with, but I think most of Europe.
They also, from what I understand in this same country, prescribe 21 days of doxy as soon as you are bitten by a tick. There is no waiting for labs or anything else, I think they do the labs even if you found the tick to see if they need to go further with the treatment and to check for cos.
They have a much higher rate of actually dealing with Lyme there because they do it right and treat it very aggressively.
The scary thing in Europe is that they have TBEV (tick borne encephalitis virus), which can be fatal fairly quickly from what I've read.
Tick borne illnesses there seem to be exploding and most countries aren't screwing around with it. I read an article that roughly forty six percent of LD patients in norway are hospitalized, too bad the US is too corrupt and greedy to properly treat people.
If we had the money to do it we would go to Europe for treatment, at least if my son had it we would take him there and leave him with his grandparents or cousins to be treated. Luckily he hasn't gotten it.
I am not totally knocking the US health care system, in most cases we are much more effective and I have much more faith in our system. I think most advances are made here and used elsewhere, this is just one place where we've dropped the ball.
Posts: 80 | From US | Registered: Aug 2011
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posted
How do you know if you have a European strain? One of my +ve bands is 30, and I remember reading something about 30 being a common European band. Does that make any sense? I don't recall ever being bitten, but I did work in Romania one summer, and my grandparents all came from Europe.
Bleedgreen, your skin symptoms sound similar to symptoms I had/have, especially freaking out at night because I'm sure a bug is crawling on me. My Ds7 (also +ve) complains about being itchy all over, all the time. I'm just wondering if this is European, although it doesn't sound like it makes any difference for treatment anyway.
Posts: 41 | From Ontario | Registered: Apr 2011
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Do Ve bands correspond to WB bands momcap? What is Ds7
Are these terms used in Canadian tests?
I get the bug crawling feeling in my scalp only, but it went away recently when starting zith again.
Posts: 1302 | From USA | Registered: Dec 2002
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Brussels
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posted
Hirnhaut is only meninges, and Entzundung is infection / inflammation. So, it's meningitis.
The German website above (from Marz) is a very bad website with information against Burrascano and the ILADS. They said that COINFECTIONS are SO RARE that it is statistically almost impossible to get.
that there is only ONE publication about such a case of DOUBLE infection. So I suppose, NO publication about triple infection coming from a tick.
They said there are only about 30 cases of babesiosis documented in Europe!! Even for the positive blood test people, they usually present no symptom! --------
My daughter and I got sick in Europe, and we got Borrelia burgdorferi. Most American patients that go to treat with the Bionic, get treated with the Borrelia burgdorferi nosode. They improve with the homeopathic dilution from a strain found in Germany.
Our treatment was initially abx, then Cowden herbs, Buhner herbs, then dr. K's treatment. Dr. K. gives lectures at least twice a year here in Germany, and his lyme treatment, as far as I know, for both Americans and Europeans is the same. Biopure here sells the exact same products that you find in the USA.
So whatever your concern, I guess there's not much a difference in treatment!
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