"Myasthenia Gravis is caused in part by a lack of acetylcholine. Acetylcholine is derived from choline. Choline is derived from B12 and folic acid."
Thought this may help someone.. like Tracy9!!?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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momintexas
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posted
Oh my tutu! My mother was just tested for this exact thing and we are waiting to get results!
Thanks for sharing.
Posts: 1408 | From Tx | Registered: Nov 2009
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karenl
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posted
good - and people with parasites are always B12 deficient, maybe start there
Posts: 1834 | From US | Registered: Oct 2008
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Tracy9
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posted
Thank you, Carol in PA told me recently about B 12 and I now take B 12 and Folic Acid every day. No improvement though, I'm only getting worse and weaker. I see my neuromuscular specialist next week, thankfully. I wish there was something that could be done that didnt' involve chemo, steroids, or open heart surgery. I'm going to ask him about plasmapheresis.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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I have read that MG burns itself out after few years is that true or , if not, why do they pretend it does?... Tracey how long have been diagnosed with MG? Also, what about execise? Lyme treatment recommneds exercise every day why I read somewhere else that MG sufferers should not exhaust their muscles more, so what to do? Thanks for your help.
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
People with lyme are often deficient in the B vitamins, probably because it is being used by the pathogens we are hosting. They are parasites in the broad sense of needing a host to provide them with nutrients that they do not make themselves.
Dr. B's guidelines say supplementing B is required.
I have not been convinced that Tracy's MG was a separate condition from her tickborne diseases. It seemed like it was another case of a condition that imitated another named disease.....like lyme produces symptoms in some that resemble CFS, in others MS, in others ALS, in others Alzheimers, etc, etc. And hopefully, once the underlying tickborne disease is treated successfully, these other things just go away.
See, the problem with treating them as a separate and unrelated condition is that sometimes the meds for those other things are contraindicated in lyme, like steroids for example. But we need research to see if those who need open-ended treatment for tickborne disease would benefit from therapy for the mimic condition too. In other words, a combination might be needed if the tickborne disease could not be eradicated, and continued to produce these symptoms.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
still wondering what about exercising in spite of MZG, does it help or does it only make things worse?
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
oh sprry, thanks for the info, but like i said, i read in several internet articles that exercise was not good for MG sufferers... or maybe not good in the beginning but will benefit from it in the long run? Thanks alot for your help!!
Posts: 723 | From Montreal | Registered: Oct 2010
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karenl
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Mold test necessary!
Posts: 1834 | From US | Registered: Oct 2008
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Razzle
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posted
MG does not burn itself out after a few years...My Dad had MG, and it never "burned out" for him. I don't know if he had Lyme or not (but it is possible...he was not ever tested to my knowledge, and I'm sure he was never tested via IGeneX).
Yes, strenuous exercise is contra-indicated for MG, and also for Lyme. Gentle, limited exercise should be fine for both...my Dad's doctors encouraged him to do what he could as he was able. When he was flaring, he wouldn't be able to get out of bed hardly, but when he wasn't then he could get out and about and run errands and such...and he was fine doing that as long as he didn't spend too long on his feet at a time. I think his stamina would have improved if he had been following the exercise plan his doctors suggested.
Anyway, my Dad said Manganese was one of the most helpful supplements for his MG - when he didn't get enough, his eyelids would be really extra droopy (hallmark symptom of MG).
You're right about MG being a deficiency in acetylcholine - in the case of autoimmune MG, it is the immune system attacking the acetylcholine (or the receptors...don't remember which) that causes the problem. Medication that increases acetylcholine helps, such as Mestinon. I would think also supplementing with B-Complex, B12, and Choline (and Lecithin) would also help.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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GiGi
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