LymeNet Flash: Did you get a positive Lyme test or western blot?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Did you get a positive Lyme test or western blot?

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Topic: Did you get a positive Lyme test or western blot?

Matayl4
Junior Member
Member # 33235

posted

I am wondering if anyone has still not gotten either a positive Elisa or western blot but still thinks they have Lyme. I have been tested for each twice, with negative results. I just don't know who to trust because it seems like everyone has their own agenda. If you do believe you still have Lyme, then I would like to hear why.

I don't remember any tick bite or rash, really the only things I have that are Lyme-like are transient symptoms and the fact that they cannot find anything wrong with me. I have no neurological symptoms, and never had a fever or nausea. Just muscle/joint pain, sore throat, fatigue and hot flashes. But these symptoms qualify for like 80 different illnesses as well.

I dont want to offend anyone, because I know this is a sensitive issue, but I don't want to waste my time if Lyme has been ruled out for me.

Posts: 2 | From Atlanta | Registered: Aug 2011 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Have you had a test thru Igenex Lab?

My Western Blot test was not clearly positive. The second test showed more bands than the first one. (following an antibiotic challenge)

If you have Lyme-specific bands, nothing other than Lyme can cause them to show up.

Read this:

Dr C's Western Blot explanation:

http://tinyurl.com/ffn3x

--PS-- the ELISA is known for its false NEGATIVES.

PS PS .. I was successfully treated!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

t9im
Frequent Contributor (1K+ posts)
Member # 25489

posted

Hi Matayl4:

Our daugher has never had a positive test but I remember pulling the tick off of her with a tweezers. Didn't do a good enough job with the tweezers or subsequent medical doctors.

She has had 2 Elisa negatives and 5 negative Western Blots. On the Western Blots she has had positive markers with one specific to lyme and the indeterminates were also lyme specific.

It wasn't till the 2nd Western Blot that we say the band readings and her only positve for Lyme wouldn't even have shown up on a regular WB as they don't test band 34.

We went to 8 MD's (maybe 9) 2 children hosipitals, over 8 months plus MRI's, numerous tests.

Just know Alan Steere and the CDC set the diagnosis standard high as they felt the disease was over diagnosed and over treated.

--------------------
Tim

Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Read this:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/110681

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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