posted
Just wondering if there is anyone else who has had this happen to them as well. While I was on the search for my Lyme diagnosis I landed in the hospital for 5 days with seizures last October. By the time I left the hospital having many many seizures during my stay (and after until my seizure meds kicked in) I also completely lost memory. From the spring of 2010 until Nov. of last year is completely gone and it seems like each day someone brings something up that I have also lost.
I have come to realize my memory loss goes back many years. My sons are 8 and 5 and I don't remember a single birthday, first day of school etc.. I know I will never get this back but it is definitely one of the hardest parts of my Lyme battle.
I struggle with my short term memory and finding words etc. too. Is this typically a Babs symptom? Have you found anything to help?
Would love to connect with anyone who may have the long term memory loss too.
Posts: 76 | From IL | Registered: Oct 2010
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
APMOM,
Since no one has replied yet, I thought I would try to get the ball rolling.
Although I can't say I have been through exactly the same thing, I do know that before my diagnosis, I had been sent to a specialist that ran an EEG and I was told I was having "mini seizures". At that time, I sort of blew it off since I honestly didn't think I had seizures of ANY kind at all.
Eventually I was diagnosed with Lyme, Bart, and Babs. I knew that my family would talk about times that I didn't even appear to know who they were, I often didn't know WHERE I was and found that I was having more and more blank spots in my memory as others would talk about things that I SHOULLD remember but didn't. <sigh>
By the time I was put in IV, my Mom had come up to stay with me and try to help out and in that time frame, she said that she saw me lashing around while in bed with something that looked like a seizure to her.
It all started to fit together. I've been in treatment almost five years now and have gone from totally bedridden and unable to walk or talk (they told me they thought it was a stroke) to now being pretty well stablized. I'm still in treatment but have been dropping a medication a month and trying to see where it will bring me.
With that said, I still have pieces of my past that I have no recollection of and sadly will probably never remember them. BUT with the treatment and where I am now, I find that I don't have these blank spots anymore with current life.
I have been in treatment for Lyme, Bart and Babs and I can't say which symptom went with what per se, but it DOES get better, so keep fighting and feel better. It really does improve.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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