posted
I have been reading about this, and think I might have it. Does anyone know what is the most accurate test to test for it. Also, one treatment for it is steroids, which would not be good if it was caused by Lyme. So what alternative treatments do people use? do they just treat the lyme?
Posts: 723 | From boston,ma | Registered: Jan 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Mestinon is a non-steroidal treatment option for MG. My Dad had MG, that's how I know a little about it. My Dad also said he did better when he took manganese (this is different from magnesium) supplements.
Also, the symptoms of MG can be caused by Lyme/coinfections. If I were you, I'd continue treating the Lyme and discuss options for dealing with the symptoms of MG with your Lyme doc.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
PM Tracy9..she has it and can give you all the info.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Yes, I do worry though that with Tracy or anyone else that too much is pinned on MG, when it is probably the Lyme & co causing it. I'm not saying that it can't be both, but I worry about treatments that may be detrimental, due to pinning it on MG. It's a tricky balance, I'm sure.
I've wondered if I have a touch of it myself, thanks to Lyme & co. But I'm leary of the treatments for it, and if I do have it, it wouldn't be a lot, I don't think (not sure though).
Posts: 3792 | From around | Registered: Mar 2008
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posted
You can ask your doctor to do an antibody test for it. There are several antibodies that can be tested, so you can have your doctor write Myastenia Gravis antibody panel, or something similar, and a regular lab should know what to do.
If your doctor feels you may have it, you'd probably would want to see a neurologist, as he/she would do some muscle/nerve tests to confirm a diagnosis.
Your symptoms could very well be from Lyme/co-infections though. If you have the droopy eye thing with lots of muscle weakness, I would probably recommend ruling out MG, however. There are other options for treating it besides steroids too, as mentioned above (mestinon).
Posts: 584 | From NY | Registered: Feb 2009
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