By June this year, I had been feeling 90% better for 3 months or so. I still felt more tired than most people I know, and I also had a bunch of pain in the muscles around my hips and knees, but that was after putting a bunch of strain on my legs and I had a very tight IT band.
So basically, my doctor and I decided that my energy levels were probably back to normal for me, and the hip and knee pain could be from a muscle imbalance and stress.
I stopped antibiotics and started physio. I did physio twice a week for an hour and a half, and after about a month I developed bursitis in my hip.
I literally stopped doing all physical activity and walked and stood as little as possible. A month later, I had very sore knees, to the point where my physio was worried I had torn my meniscus. We've now decided it is probably bursitis as well.
Along with that, I was having problems with digestion. My naturopathic doctor thought it might be yeast, so a month ago I started up a strict version of the anti-candida diet.
Prior to that, I had been experiencing mild muscle twitches, tingling and muscle pain.
Since then, nothing has improved any. Today I have horrible aching pain in my legs, knees, ankles etc.
Basically, I'm now starting to wonder if it is yeast, a lyme relapse, or if I never got rid of the lyme in the first place? Anyone who has any experience with coming off antibiotics, or anything like this, I`d love to hear your stories.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Sounds like the Lyme wasn't gone since it's progressing .... might be time to hit it again. Are you seeing an LLMD?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
It does sound like some active infection is going on.
Your symptoms sound really either yeast or lyme or both!
Posts: 6200 | From Brussels | Registered: Oct 2007
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My LD symptoms started over 10 years ago with tight, sore hands, arms, legs, and calves.
After being diagnosed about 3 years ago, I got better after 2 years of abxs. 6 months of Tindamax and cipro worked the best for me, and I felt like 100% physically.
I was fine for a year until I got a bad upper respiratory infection this past May. Shortly afterwards, my hands and feet started hurting and feeling tight. I went back on tindamax and cipro. 2 weeks later the pain and stiffness in my hands and feet went away. I plan on staying on abxs for a few more months and then see if I can stop them without symptoms coming back.
Also, when I stopped abxs last year, I did not have any active pain but still had some tight muscles. I think the chronic inflammation due to LD caused scar tissue, adhesions, and trigger points in my muscles. Deep tissue massage helped me tremendously to break these up. I had to try several massage therapists before I found one who really knew what she was doing.
I do have an LLMD, sort of. I had one I saw for the last 2.5 years, but I just moved and found a private clinic in my area with a doctor who treats Lyme (although he just started a year or two ago), so I am now seeing him (cheaper than going out of country)
I check back in with my new doctor in 2 weeks. I talked to my old LLMD about a month ago, and he wanted to wait a month and see what happened, and then maybe put me back on abx. I can't really afford to see 2 LLMDs at once, and my new doctor wanted me to wait and see until the end of September, so right now that is what I am doing.
I was treated for Bart when I started treatment for Lyme.
I also have been following a super-strict anti-candida diet and taking supplements suggested by my naturopath. I know that some of these symptoms could be yeast, but since they have been getting progressively worse even though I'm on this strict diet, I'm no longer sure.
I know we never get rid of Lyme completely, but I think maybe I never even got it completely under control before I stopped antibiotics.
It's too bad there isn't some magic test that could tell me if my symptoms were all caused by Lyme, or yeast, or some of both. I just really don't want to go on antibiotics unless I have to, since it will make any yeast problems I might have worse.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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posted
"I know that some of these symptoms could be yeast, but since they have been getting progressively worse even though I'm on this strict diet, I'm no longer sure."
Exactly.
And you are right about the abx making the yeast worse.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by Nicole_Denise:
I know we never get rid of Lyme completely, but I think maybe I never even got it completely under control before I stopped antibiotics.
But this doesn't mean we don't get rid of all the symptoms.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I agree with Sixgkids. We can get rid of lyme symptoms totally, even though the disease gets dormant and probably waiting to wake up at a weakned point of your life.
Life without symptoms and without treatment is like a normal healthy life again.
Same way that herpes virus gets activated, and you need to treat that, and when it gets dormant, you forget you ever had that. That is how it is.
So if you have symptoms, it means something is active. Candida also comes and goes (it is part of the GI tract) but when it gets imbalance, then you get the 'infectious' symptoms. Otherwise, like not having candida (but we all have, some less, some more).
Posts: 6200 | From Brussels | Registered: Oct 2007
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