richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I have been taking herbs Cowden herbs for 6 months now and it was a complete waste of money. I have not noticed a change. Biggest waste of money, just like my Rife machines and 3 years wasted seeing a terrible doctor and destroying my body with antibiotics.
I also wasted tons on accupuncture, and other alternatives.
If I knew then what I know now, I would have lived with it and relied oin diet and exercise and not wasted money. Nothing worse than being sick and blowing money as well.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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scorpiogirl
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Member # 31907
posted
Hi,
I'm sorry to hear that, but I understand where you're coming from. I have days where I feel the same. I felt like the last 16 months I have spent so much money on supplements, herbs, antibiotics. Many of which I can't tolerate so I have quite a collection!
Looking back the period of time that got me well for 9 months were acupuncture, exercise and nutrition and not meds/herbs. But that was before I knew I had Lyme. IF my leg didn't go numb I would not have seek such aggressive treatment. But even after 16 months with zero improvement, I'm beginning to second guess my decision.
Currently I stopped all Antibiotics b/c I have reached a point where my body just can't handle anymore more poison. I am not sure what my next step is... but I don't think antibiotics is the answer for me either! So I'm just taking one day at a time.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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posted
Richedie,sorry it has not worked for you,what works for some does not for others. I just have to say herbs saved me. It has been just over a year of treating,I still have lyme symptoms but to a way lesser degree. A bab and a good lifestyle have put the nail in babaesia's coffin. I could not read or concentrate,very paranoid,crazy thoughts and experiences. When I think of where I was at this time last year ,it is truly a miracle! Check some of my posts to get what I have been using and my regiment
Posts: 342 | From northern california | Registered: Dec 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I think everything can be expensive and disappointing. I have been through my share too. My cabinets are stuffed full of just about everything imaginable and I have lost faith in it all, just like you. I can't bring myself to swallow any more capsules or tinctures and I was taking them by the fist full for years.
With the drugs, I just keep plugging away trying the next thing and then the next and the next. The thing I have not let go of is determination. I just keep trying.
I have an appointment with an LLND that I am told uses a lot of supplements. The last LLMD I went to told me not to bother. So I don't know if I am into trying to believe anything like that will work again. I guess I will try to open my mind back up to it.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I have not personally heard of the Cowden protocol being that effective.
I will say that two herbs have helped me tremendously - grapefruit seed extract and artemesia annua. My rife machine has helped a lot too . Much more than 3 years of ABX which started making me have kidney problems.
There have been many others here who have posted that artemesia and GSE were extremely helpful, which is why I tried them. I do not have a LLMD , and I am somewhat doubtful that they cure many people with chronic infections. This site bears witness to the innumerable cases of antibiotic failure and failure even with mepron . I am not dissing drugs, or doctors, just stating the obvious here . Spending a fortune on LLMDs does not garauntee anything but huge amounts of money spent .
Please know I do believe some people do get better via drugs and LLMD care . But I do not know of one personally ...
Also , I do believe coptis and andrographis are worth trying .
There are LOTS of people here who swear by Zhang's herbs and protocol , many of those gave up on drugs and LLMDs and are getting better .
I think the key is to keep trying ...
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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posted
everyones different, sorry nothing has worked for you.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
If none of these things are working for you it's time to change the way you look at this disease.
Parasites Heavy Metals KPU Modulating Immune System Heavy raw food diet Heavy Adrenal support
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
No, I think it is time I get living and just live with my symptoms. I started taking pain medication which helps me tolerate the misery.
I no longer have the outlook that life is this beautiful thing. I now view life as a world of suffering.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Psychokinesiology is for you then!!
Not a joke. When someone does not want to heal, there's nothing on earth that will help. Only PK or some sort of psychological work will help there!
I was someone who was battling for my life and quality of life with my lyme war. Just to discover that the inner part of me didn't want to heal.
According to dr. K., nothing can help you then, if the person doesn't want to get better 'secretly' or not secretly, as it seems your case...
Just my 2 cents....
Posts: 6200 | From Brussels | Registered: Oct 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I have been in bad intestinal pain with a really bad Crohn's flare for several months now. So bad I will be on a short term disability for now.
I have treated for about everything under the sun for over four months, as this is likely a pathogen causing my problems. That really does not narrow it down much, but pathogens cause disease, and that is always my starting point.
Nothing has worked, but now a glimmer of hope. I treated for Mycoplasma Pneumonia yesterday using my Rife device. I proceeded to get a high fever, coughing up extreme amounts of mucous and the like. I did not even know this crap was in my lungs,
The swelling also went down in my intestines, but I still have some pain. The next couple of days should tell me if this was the pathogen I was looking for.
I believe that 95% of the time, there is a solution, but that does not mean it is easy to find it.
I agree that if none of those treatments have worked for Lyme, then it is time to look at different possibilities.
Here is another obscure finding that happened by accident.
When experimenting with a pathogen that causes dental infections, I cured a nagging knee problem. Who would have thought a dental infection would invade one knee?
Since you have the frequency machine, try hit different pathogens, until you get a response. It is a slow way to go, but it will not cost you anything more. It may be something unusual.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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lymeboy
Unregistered
posted
"When someone does not want to heal, there's nothing on earth that will help."
I think this is a very irresponsible thing to say. I don't believe in blaming the victim, just because we have no good answers.
I would like to know what inner part of you didn't want to heal, and how you discovered that this was so. Is this really what the great Dr. K. is saying? Does he not realize that this disease makes you want to die? When your brain is infested with foreign, hostile agents, it is sometimes impossible to think that anything will ever get better. Depression is a SYMPTOM of this disease. So is being suicidal, and a host of other psychiatric disorders. Brussels, I know that you are a very well meaning and helpful individual, but I really have a hard time with your post here. This individual is close to giving up, and I don't think that it is because he just doesn't want to get better. I think just about every person here would give all they own to get the life that they had a few years ago back. What part of them DOESN'T want to get well?
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Of course I want to get better. If have just given up the desire to try.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
rich... when one feels like a victim (and we all definitely could define ourselves in this way, easily, based on what we have to go through) it makes it really hard to find empowerment to keep going.
if you have no desire to try right now, take a break. but if your soul truly wants healing... you will find a way to make it back to trying when you are ready.
i get spiritual counseling from a wonderful woman, sometimes in person, sometimes on the phone as she lives in a different state than i do. when i say spiritual, i don't mean religious. she has a true gift at seeing things we either can't see or don't want to see about ourselves. this woman is the one who sat down with me and within 5 minutes suggested i get checked for Lyme disease. she had no knowledge of my medical history, i literally JUST met her at my first appointment and I had no idea that lyme was the cause of my 8 year string of bad health. i got a western blot following that appt and even received a CDC positive thru IGX.
our perceptions of life and the way things are can severely damage our progress. but how are you supposed to look at things differently when you have gone through this crap with no results?? it's extremely difficult to believe you aren't a victim when you feel like one. i struggle with it still myself.
this is where this woman steps in and helps me change my perspective and find the answers i need to keep moving forward.
I can give you details in a private message (and to anyone else who is interested).
If NOTHING has worked for you, please... if this post of mine touches a part of you in any way, let me know. i'd be glad to share my experience with her and how she may be able to help your life become much much more joyful, even when suffering from illness.
posted
Herbs have not seemed to do a thing for me either, other than empty my wallet. At least pharms are just a $10 copayment for me.
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I do not believe herbs will cure. You need to take the hard core abx. Losing hope and giving up can be a symptom.
Identify your pathogens, get tested to see if that helps, and then go after them with whatever it takes. You can never get adjusted to living in pain because the pain will only get worse and worse. You will suffer in other ways as well, leaving you mentally as well as emotionally and physically disabled.
There are no people I know of that have been cured of chronic lyme (long term multiple infections) using only herbs. You should use the herbs in conjunction with the abx and as breathers between abx to stall relapse until you can get back at it. Then finally when you are symptom free, use herbs to maintain your health.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Lymeboy, I always thought I wanted to get well.
Unconsciently, I didn't.
Of course, we ALL want consciently to get well.
That is WHY we visit these forums, and we exchange information and we pay a fortune for our doctors and treatments!
What happens below the conscious mind is another thing.
He could be someone that doesn't apply to what I said. But he could apply!
I was someone who got to heal from inside before my body wanted to accept healing. What happened deep inside me, I was unaware, until I was treated and progress got easier!!
Dr. K's theory says that the mind / feelings are above your eletromagnetic body and your physical body. If the mind / feelings are blocking healing, your eletromagnetic body and your physical body won't heal.
You certainly heard about placebo, right? It has biologically physical effects, which are measurable (even though you are only taking only sugar pills).
Nocebo is the other side of the coin. It has measurable effects to the wrong side.
Posts: 6200 | From Brussels | Registered: Oct 2007
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posted
I don't think the issue is "not wanting to heal", but just not having anything left to fight this DD. If you have tried ABX, herbs, supplements, diet, etc...and it seems nothing is working you might start to think "why bother?", not "I'd rather be sick, because I just love it so much!".
IMO there is a mind/body connection, if you give up trying or are having negative thoughts, your mind can get stuck in a loop of doubting everything. I am a firm believer in the power of thought whether it is positive or negative.
Richedie, maybe you should take a break from meds, supps, herbs and and try doing some things that make you feel good (at least mentally) or make you happy. Get your outlook on life healthy and the rest may follow. That's what I try to do at least, but there are times when you just have to go with the flow of feeling negative, I just don't allow myself to wallow for too long.
Take care and my thoughts are with you.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
I'm sorry, but I have to go on a rant here. I
think that the entire paradigm of "if you are still sick, its because you don't want to get well" is total bull****.
First off, even if it is true its your unconscious mind keeping you sick, THEN THERE IS NOTHING YOU CAN THINK OR DO CONSCIOUSLY TO CHANGE. You would have to work on your unconscious, which might take years with an experineced depth pyschologist or similar.
Barabar Erlinrich had a good book out called "Bright sided...". Part of the book describes the results of studies that looked at how "optimism", or other new agey crap affected people with various illnesses. The upshot is that many of the studies were not reproducible, or showed no effect. But that doesn't stop people from grabbing onto the one study that had 40 people in it from repeating the study results. Even when similar studies could not reproduce the result.
Come on people, we all get upset with the IDSA for basing their results on 4 small and flawed studies, but you will buy into this other stuff which has even less evidence to support it?
The palcebo effect only accounts for about 5% of people feeling better. No one has studied the nocebo effect in any significant way, so its hard to say with any certainty what that is
I hate when I hear doctors or others bring this up, in effect , its blaming the sick person for being sick. Which is great for allevieating the doctors guilt over not being able to help you, or for helping other people fell less uncomfortable about your suffering.
I do think when you get depressed, you tend to give up, or perhaps not see options available to you.
I thnk its a good idea to take a break from it all, and just take pain meds to help alleviate suffering.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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James1979
Unregistered
posted
I tried to hold myself back, but now my curiosity got a hold of me.
posted
damn..... right?
Posts: 169 | From The Poconos | Registered: Jun 2011
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Bartonella causes the hopelessness feeling.
During my Bart flares I'm the most negative person and am convinced I will never get better.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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James1979
Unregistered
posted
quote:Originally posted by Pony: damn..... right?
I can't believe I couldn't figure that out. I think the $# confused me because I thought it stood for "Dash".
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Sorry you are not having luck with herbs or rife. You might consider going to the local vitamin shop in Gateway mall near us....there is a man there with a much stronger rife machine than the one you have, which I recall is the D.T. machine? He lets people use his GB 4000 for free in the store.
I have recently been almost incapacitated with a parasitic infection from drinking contaminated water. I have tried numerous medications to no avail. My rife machine (also D. T machine) didn't help either but I knew it was not very powerful compared to the GB 4000, so I visited the shop and rifed for an hour and a half. I had a huge die off the next day (symptoms intensified and I felt like I was dying) but the day after that my symptoms were almost gone. They did come back again so I went back to the store and rifed again. The same thing happened. I have been continuing this process and am MUCH better.
Just a thought for another option when you get up the strength.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
If your lyme is out of control than I would suggest you BIONIC!
Also Artemisia , HH capsules Oregano oil are important for you to try .Otherwise chase parasites and DETOX.
Posts: 1379 | From disable | Registered: Aug 2011
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
quote:Originally posted by lymeboy: [QB] "When someone does not want to heal, there's nothing on earth that will help."
I think this is a very irresponsible thing to say. I don't believe in blaming the victim, just because we have no good answers.
I disagree and it is not blaming the victim.
It would be irresponsible to NOT look at ALL the possible reasons as to why one may not be getting better.
Just because it may be something that is hard to hear is not a reason to not mention it.
This is actually more common than people may think and often times, people are not aware that they are subconsciously blocking their own healing.
Healing from any illness or disease needs to be done at ALL levels...not just the physical. I would suggest people read up on blockages to healing. You may learn a thing or two that can help you in your own journey.
An excellent book to read that touches on the subject is Anatomy of the Spirit. The book changed my life and I highly recommend it.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by manybites: If your lyme is out of control than I would suggest you BIONIC!
I would have to agree. The Bionic was the most powerful treatment I used.
Cowden helped a bit with detox when I first got off meds to try it, but I relapsed after that.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I am not sure I believe this die-off, herx, whatever you call it.....I never experienced it
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I agree it's not a nice thing to hear when someone tells you that 'there's a problem in your mind /spirit'.
I hated to hear that from ducks, who kept sending me to shrinks to solve my chronic lyme disease. They all got fired!
Well, years later into lyme treatment, I got stuck in my healing process. I felt stuck, like my body was not reacting to treatment as well as initially.
It was then that I was treated with Psychokinesiology, developed by dr. K. The transformation was amazingly fast, deep and it did allow my health to improve.
It was like taking a stone out of my way, as though I allowed my body to heal (before I couldn't, I kept the stone right there in the middle way).
Dr. K. developed this model of a person (he in fact based on the Indian yoghi model of 12 thousands of years ago), he calls that the 5 Levels of Healing.
When people get to dr. K., you can be sure they tried quite many treatments before that didn't help patients out. And if he still is able to help many people out of lyme (and autism!), I mean, you can bet he treats SOMETHING else than other doctors!
I find that the big part of this something else is psychokinesiology and mental field therapy.
If you want to be a dr. K's practioner, you got to go through all trainings. The biggest part of the training is in the psychological/ mental field!! Not in learning what microbes do and taking antimicrobials. This is just a tiny part.
According to HIM, not to me, there's ALWAYS a psychological component in ANY chronic disease. If you understand his theoretical model, you will see that what comes from 'inside' decides the outcome of more 'exterior' bodies.
If a symptom or disease has a cause (one of the causes or THE cause) in a deeper level, no matter what chemical, massage, herbal, acupuncture, drug whatever, you do, you will NOT heal. You will get a minor change, but you will not heal.
We are not only physical body. We still have 4 invisible 'bodies' that also get sick and need treatment!
'When I crack unhealthy patterns that occur in a family, you can see many medical conditions solving by themselves, without treatment'.
And contrary to what people believe, there are fast ways to deal with psychological problems. You just have to know someone who knows what to do!!
I am not saying that that is THE reason for Richedie's treatments to be stuck.
I'm just suggesting that this could be one reason, and that I would trust ART for testing and finding out!
Posts: 6200 | From Brussels | Registered: Oct 2007
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lymeboy
Unregistered
posted
I think it is a good thing to explore all possibilities, but when your body is still coursing with foreign agents that are literally eating away at you, I have a hard time accepting that it is because, even though I don't know it, I just don't want them to leave. Subconsciously, I am keeping the bugs alive. I think there are plenty of things we can do in terms of holistic healing, including some forms of psychotherapy. But I really think telling someone that they're sick because they don't want to get well, even though they don't know it because it is a buried emotion, is the height of arrogance. How exactly does a practitioner know what is in your subconscious when you do not? This is a dangerous practice in my opinion. I have no faith that this will get people well. Perhaps working with them to change bad mental habits can AID in healing, but telling people that they are to blame, because they have become too accustomed to being sick is absolutely bonkers. Sorry, I am not accepting this. A competent doctor should explore the scientific method before deciding to volley back to the patient.
Richdie, there is plenty of research that supports the existence of die off/herxing. In fact you could cherry pick at least 10 threads started today and find a whole lot on the subject. Just because it has never happened to YOU doesn't mean it doesn't exist.
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posted
I wonder if Dr K would be able to with Lyme and cos eating chewing right through him, making him bed ridden for years, be able to keep up the belief hour after hour that it will be alright. That the body will heal the body will heal I can heal myself I can heal myself I can do it -for year after year every hour. I wonder.
-------------------- jeremy Posts: 71 | From new york city | Registered: Sep 2011
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posted
I guess all we can do is try things and see if they work. I'd like to recommend the Buhner herbs - a lot of people are doing them, for Lyme and co-infections. Buhner's book, "Healing Lyme," has a good description of each herb and what it's for.
I am doing the teasel root tincture - takes away joint swelling almost immediately. It has been strongly recommended by other herbalists as well.
My feeling is, don't give up - keep looking for the next thing to try, because we're looking for the bingo's, the things that work for us. We're all different and respond differently to everything.
Posts: 13171 | From San Francisco | Registered: May 2006
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I know, absolutely know, that you want to get well. No one wants to be sick.
Inflammation in the brain from these diseases can cause you to be so depressed, negative, paranoid, etc., etc. And then when you spend lots of money that you don't have, and see no results you become depressed with the situation.
Richedie, have you tried anything to help the inflammation in your brain? I have gotten help with Japanese Knotweed which I buy from 1st Chinese Herbs. It is one of the herbs from the Buhner protocol.
Also, I think that a healthier diet that is anti-inflammatory, spending time in the sunshine help a lot. Sunshine vitamin D3 helps to strengthen and ballance the immune system and can help with depression.
No, I'm not well, but I have hope now.
Don't give up.
Posts: 1358 | From Midwest | Registered: Apr 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Of course no one wants to be sick. I don't think anyone is trying to say that. I think some here are just trying to say that your mental state affects your physical state. And of course its so easy to get depressed when you are struggling with a chronic illness.
Therefore I think it is important to address the mental side. Lyme affected me so much mentally that I have to take 2 different pysch meds and I am still struggling. I am trying to find the right meds and the right dosages to help me over come the depression and mood swings. It is important that this is covered.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
About 3 weeks ago, I was where you are now. I just thought **** it, I'm done. Maybe aloow yourself to feel that way for a few more days. You have been in hell for a long time, and personally, I think its fine to have these feelings.
But then after a while, try new things again. don't give up. have you done IV yet? With getting my meds through infuserve america, it was almost the same cost as buying all the orals
Consider seeing other MDs for your symptom problems. Not everything is lyme, and fresh eyes might pick up on something. I really like most of the LLMDs I have seen, but they will see everything through tick colored glasses.
As for Dr. K and many other practioners, what bothers me is they don't actually track preogess in patients in any significant way. They tend to remember all the patients that get well, and don't remember the ones that don't improve. Those people stop seeing the practioner, whic further skews the results. Or they don't know how to track patients in a scientific way.
I am not saying they are dishonest, it is just human nature, everybody does this. That is why going about tracking patients in a systematic, scientifically valid way is important.
I know several LLMDs that have RANDOMLY tracked patient progress to treatments. If you are asking people to spend thousands of dollars, this is important
But when I hear things like "ALL my patients"...or "if patients don't do X, none will get well", It tells me the responses are not based on facts, just what the llmds feel.
This site is a testament to the fact that there are no "all or nothing"treatments for lyme
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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posted
Theres a really awesome book called Heal Your Body A-Z by Louise Hay.
It gives a symptom you have and the unconscious pattern that created it.
For example: My mid back is alllllways tense and in constant discomfort. So, according to the book, the pattern that created that was lack of self love. Well, at first I thought that is bull!!!! But after digging a little and trying to understand my feelings, I realized wow, I really haven't had any self love at all. Ever since I was little I've always felt inferior. Did it cause me to be sick? who can say? I can't.
So, the "cure", is to replace the old thought pattern with a new thought pattern. I am healthy, I am safe, I love myself and i deserve love from others.
I'm a firm believer in lessons. The fact all of us are sick is, to me, a reason to say HEY! wake up...what am I supposed to be learning from this? Sometimes it's deeper than just killing bugs!
With the help of my "spiritual" friend I mentioned earlier, she made me realize something. I thought, I'm 80% sick! She says no, you're 80% healthy. That is a HUGE 20%!!!
And then, something clicked. And I felt liberated.
We can be so oblivious to what our unconscious is telling us, the good and the bad.
Replacing deeply rooted thought patterns is work, but you CAN manifest a healthy spirit mind and body if you keep working at it. This is where it can help to have someone assist you, especially on days where you feel so defeated by the endless discomfort and pain and fatigue ( or whatever other symptoms you have going on ).
The mind has ENORMOUS creating powers. We have no idea just how much and I don't think any scientist will ever be able to give us any data to understand it while on earth.
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I could try Salt and C again.....but the K protocol is too expensive
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
Hey Richedie, looking at your med history I don't see plain old Amoxicillin in there. I've been on almost everything you have, yet I didn't feel a constant improvement until I tried Amoxicillin, at high doses.(1.5g 3x/day)
I have treated for 1.5 years now and the two biggest things for me have been exercise and Amoxicillin. Good luck to you man, don't give up trying!
Paul
Posts: 43 | From Cleveland, OH | Registered: Apr 2010
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
Excellent article, in my opinion. Heavy metal toxicity, if not addressed, it's difficult to get out of chronic lyme/ disease...
Dr K. suffered from chronic lyme himself, for those who don't know.
He's got heavy metal toxicity problem, allergy problems (recently had done AI), KPU detox problem, and psychological issues to solve himself (he also sees other people to help him out, as he can't self treat for everything, specially dealing with own conflicts).
He's not a perfect man, no one is. But he helped many people out of chronic diseases, including myself and my daughter (through his method, I mean).
Now that we both have no more active lyme (myself, for more than 2 years, her for about 1.5 year) we still go on 'treating', basically toxicity.
What I call toxicity has to do with chemical toxicity, heavy metal toxicity and mental toxicity! So that we don't fall sick again with this horrible disease.
I did Buhner for 2 years, dr. K's herbs, protocols, eletromagnetic treatment for about 3 years and photons for 5 months. I'm done with that all, as the disease went dormant, but I'm still trying to address toxicity and I find dr. K.'s got loads to tell on that!
Posts: 6200 | From Brussels | Registered: Oct 2007
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posted
I heard yesterday from Lady B with regard to Teasel and she said that she believes no one can get well in fear. Well, I believe that with everything in me. In learning about this disease, we are bombarded with tons of information that if we even let some of register... we'd be in fear. So I think it is a truly conscious decision to not be in fear. To know that even though things look bleak at the moment, our bodies have an amazing capacity to heal. I wonder how much this plays in as I KNOW it has with me... Blessings to all...
Posts: 859 | From Southeast | Registered: Mar 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i don't buy this "you're sick because you want to be" crap. and that's what it is. crap...
i tried cowden too. didn't do a thing. tried buhner but could never tolerate taking tons of pills every day.
abx gave me c. diff and some almost killed me. the herx or whatever was horrific and i ended up in the er more times than i can count.
i think there are some things that help naturally. grapefruit seed extract, olive leaf, etc.
it just depends on the person.
yes we are all under stress, yes some of us more than others.
but we do not want to be sick...ever...
you just have to keep trying...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I can't really offer you help with other treatment options, because I've got a ridiculous tolerance to antibiotics (had 1 stomach issue EVER).
BUT- I TOTALLY understand just wanting to give up fighting to get better and live with where you are now.
I think that is a tricky one- in order not to be miserable with being sick, there HAS to be a certain level of acceptance. But if you give up completely, you deny yourself the chance to get better.
I'd recommend reading the book "How to be Sick". It is a book an accepting and dealing with Chronic illness- in the authors case, in illness that she never cured.
I'd also like to say that I recently almost gave up on treatment. I mentioned it to the psychologist I see, and she said that mental health professionals know that there are a TON of really sick people out there who just get tired of fighting with the medical system and tired of having to drive the quest to find a way to get better THEMSELVES (instead of the doc doing it) and so they just give up and sit at home.
If that happens, that is not THEIR fault, or your fault. We all only have so much endurance. However, I am also telling you this because fighting this illness is exhausting.
There is no shame in taking time off and regrouping. But if you quit treatment entirely and find you just get WORSE- please, try to keep fighting.
To roughly quote the book I mentioned, as someone with a chronic illness, you want to try to be equanamous (sp), not apathetic.
What that means is accepting how you are while still looking for a cure. If a treatment works, it works. If it doesn't, you are no worse than you were before, and at least you tried. It isn't giving up or not caring. It is accepting how your body is at THIS moment, but being open to ways to try to help it heal.
Very hard to do, obviously. I suck at it. If a treatment doesn't work I tend towards the wildly hysterical side of things...
No one can tell you what is best for you- it is the WHOLE picture, physical and mental. If treatment is too hard mentally, then that is how it is.
On the note of treatment- for me, personally, while I use herbs to help and support my body and my treatment, the main thing I use is antibiotics. I just feel there is more scientific evidence to back it up. I am not saying herbs/Cowden/Rife etc doesn't work- just that I did not have enough faith in it to risk trying it and have it not work.
Antibiotics AREN'T fast, and it takes a lot of trial and error to see what works. That is why a good LLMD is so important.
But there is still a lot we don't know. Antibiotics DON'T work for everyone. And neither do the other treatments.
The most important thing is that whatever you do, you don't just sink into depression. If you quit treatment and get painkillers to give yourself a break and let your mind recuperate, great! But if you quit and just sink further into depression, things will not get better. Whatever you do, you need to find a way to be Ok with your choice
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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posted
If you feel hopeless, maybe you should take a break.
Maybe after some time, you will want to try something new? It's a personal decision and you are the one that is in control of how you deal with it.
I have been having good luck with abx, supplements, a few herbs and probiotics, along with a gf-sugar free diet.
Everyone is different and if you don't want to try fighting it, who can force you to. Do I think it is a bad decision to stop trying to fight it, yes. I am not you though. To each their own.
The brain is a powerful thing. You can change the wiring in your brain. Attitude really does more than a lot of people think.
-------------------- Treating lyme, bart and babs Posts: 506 | From NE | Registered: Dec 2011
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posted
Yeah, depression is another thing. If you are every feeling so hopeless that you don't want to be here or are thinking suicidal thoughts, then that is a different issue altogether.
-------------------- Treating lyme, bart and babs Posts: 506 | From NE | Registered: Dec 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If there are 100 things you could try out there, and you only tried 99.....
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Hi Richedie. From your post, it looks like you are saying you've made absolutely no improvement ever (is that the case)? Not even 10% better on meds?
It is odd that you have never herxed. Although, I never herxed on one of my best med combos (doxy/rifampin). I took it and felt better right away. Within two days, I knew I turned the corner on lyme. Yet, I never herxed on it at all. Maybe there's a co infection holding you back (missed)?
Pardon me for suggesting this, as I see you've been on lymenet longer than I have, but have you tried Burrascano's protocol yet? I imagine you have. If you have, did you follow it to a T (key)? Burrascano's protocol is quite strict. The strict diet alone is enough to turn anyone off. But I believe his protocol is working on me.
It is difficult to eat what Dr. B suggests, and comply with ALL of his protocol. His specific type of required exercise is often something lymers overlook (I've experienced this with friends). You know how it is with lyme--You can read it and not get it (at least that's how it is for me).
I know that Dr. B's protocol has helped some people. TF previously posted that she and 5 of her friends all got well doing it. That was enough for me to try. And I do EVERYTHING on that protocol, as she suggested. As strict as it is, I will try whatever it takes to get rid of lyme.
It may be that you've already tried it, or that it didn't work for you. Abx don't always work for some people. But the rest of his protocol makes sense to me. I'm getting better on it.
Don't give up. Push forward until you try something that works for you. Maybe the Salt C will work for you along with everything else on Burrascano's protocol (combination of the two protocols). His strict diet requirements fight inflammation and help keep lyme from getting worse (along with the rest of the stuff on his protocol).
And I think that the weight lifting is key to his protocol. I think it is what's making me get well, although I'm not willing to just do the exercise and slack off on the diet (the risk is not worth it to me). Something is working out of his protocol: diet, exercise, abx, rest and supplements. Perhaps it is the combination of all of them.
Gigi has also spoken volumes on parasites. Maybe that's your issue (holding you back). Maybe not. I think everyone above has advice worth considering.
Maybe you need a new doctor, or new drug combinations. Either way, push forward. Don't give up. Re frame your thinking and tell yourself that you ARE going to get well, come hell or high water, that you WILL do it. Push forward. We are all pulling for you.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Sorry but I am right with richied. As much as I love you all, this thread with the "you want to be sick " crap and heal your mind is nonsense.
For a ot of people on this board, we will never get to 100%. Its simply not going to happen. To keep pushing for the 100% seems irrational to me.
I know someone here who posts about how they are 90% but xyz still is there. Are you freaking kidding me? 90%? take it and run.
Maybe the people who continue to treat and push and pay are the people "who want to be sick" or more likely CANT ACCEPT THAT IT IS WHAT IT IS.
I think about all the abx and crap i have ingested, and continue to ingest the last 5 years. Why? Am i really that much better? Nope.
I can pretty much accept where I am (< 50%)
Does this mean i am not a fighter, heck no, youll never meet a tougher person. Does it mean i gave up? I dont think so.
Do i think that all these potions, machines, and holding vials will cure my lyme---- not one bit.
Lyme no longer rules my life. It does not DEFINE ME. I am not yme. I am merrygirl.......ROAR
Posts: 3905 | From USA | Registered: May 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
yep. Love it Merry, and agree with you. "You want to be sick" is utter, utter, BS. That is something that practitioners tell you when you've spent all your $$.
Posts: 3528 | From US | Registered: Apr 2007
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posted
Richedie, I read your post and had to laugh to myself....I too have vowed to stop purchasing yet another herb or supplement, so I understand where you are coming from.
What caught my eye was your signature line. That's an awful lot of ABX in combination. Whatever happened to slow and steady wins the race?
I only see Flagyl in all your protocols once. You said you spent 3 years with a physician who destroyed you with ABX....have you found a new MD?
I too agree that you want to be sick is BS.
Posts: 478 | From Third Coast | Registered: Feb 2011
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