posted
I started my treatment with the same abx/dosage as your daughter and did not herx, but slowly got a little better. I plateaued after a few months and then added Doxy and slightly herxed.
Posts: 319 | From Mass | Registered: Feb 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
What is "DD"?
I didn't herx on Biaxin. not everyone does. I just had slow improvement.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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Looks like it's a moot point, biaxin is now unavailable, generic too. Now we have to find a new protocol before we are out in the next 48 hours. SO frustrating.
Posts: 21 | From Cape Cod, Ma | Registered: Aug 2011
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posted
I was just told that Biaxin is available and you have to pay out of pocket or try different pharmacies for generic (Clarythromycin). Hmmm....
Posts: 319 | From Mass | Registered: Feb 2010
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posted
We were able to get extended release for now. She is struggling with more cognitive issues, groping for words, suddenly misspelling words she has never misspelled before, a hesitation reading aloud she never had before, missing syllables when speaking... I think we were prepared for the issues she already had to get worse, we definitely were not prepared for new issues.
Posts: 21 | From Cape Cod, Ma | Registered: Aug 2011
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I took my first dose of only 200 mg and I felt really out of it and exhausted. When i started ramping up to 500 mg I would pass out 2 hours after taking the medicine.
I herxed alot on it
It made a really big improvement in my lyme symptoms. Its a really good combination
As for the new symptoms. thats how herxing tends to be. you will get a worsening of your current symptoms OR a whole new set of symptoms you never had before
HANG IN THERE!
Posts: 995 | From somewhere out there | Registered: Oct 2010
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posted
My daughter had the verbal, cognitive herx/issues that appeared a month into her initial treatment. She also went into a deep non speaking stage that lasted over a month and an half. With treatment these symptoms disappeared. She also could not read all of a sudden, which lasted about 8 months. That too was resolved with treatment.
Many new herx symptoms have surfaced all along the way and in hindsight most have been resolved and/or improved.
Its hard to have new symptoms develop when you are expecting others to go away. I feel your pain and confusion. I have the same every time it happens with my DD.
Stay strong and find inner strength, keep your Dr abreast of all issues and just know that many here have had the same experience and seen improvement.
Sending healing thoughts to your daughter.
Posts: 118 | From Here | Registered: Sep 2008
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