tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I just posted about this!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
My story is a lil different. I got lyme disease after the gardasil vaccine, I had a horribble reaction and I am lucky to have survived it or ended up as "good" as I am today.
The vaccine caused all my dormant virus pathogeons to come out.
I am working with a researcher and LLMD. My immune system is shot from the shot. No pun intended!
LDN is my life force to save me. Many girls now have lyme and co's or other infections after the shot.
ANYWAYS,
I spoke to teh researcher Weds night. And he said that about 75/85% of the girls are showing to have this.
I am getting tested at my next llmd appt. He says it takes about a yr to put into remission. But if you knock this down that lyme and co's will not be as hard and ur immune system will no ppl to take care of it.
Also he did say how fats and breads are bad for it. People are using Artesismin.
He said its so common that lots of ppl have it but onces its unleashed its a beast!
Anyways best of luck to all of you!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
That's interesting. My doc has always said he can knock Lyme out in about a year, but it was this one organism that was making things difficult.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Kelmo, I am wondering why Dr. F. recommended plaquenil/biaxin with a low fat diet, when my doc spoke to him, if Ivermectin is the only thing known to kill it? That's odd.
I tried his recommended combo, which did nothing. I am now about to start alinia, which some are reporting severe herxes from. I'm wondering if I should have been put on Ivermectin instead of plaquenil/biaxin combo that was initially recommended by Dr. F.
Posts: 418 | From NJ | Registered: Sep 2007
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kelmo
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Member # 8797
posted
How long were you on Ivermectin? My daughter finds for her it hits hard about four weeks into it.
She took the biaxin/plaquinil combo for a while. It didn't do anything for her.
Ivermectin is doing something. After five months at 1/4 pill every other day, she had a couple of days of feeling almost normal.
I noticed her eyes were clear and bright and there was more energy and fun.
On Thanksgiving, she woke up with swollen lymph glands and nausea. She increased to 1/2 pill, and hit the four week mark. So, she is in a major flare
But, she had two days where I saw her look like she did before she got sick. It was encouraging.
Dr. F said that Ivermectin at theraputic dose of 9mg daily, is the only thing to kill the organism in the lab.
I'm sure you can knock some other tings down with biaxin/plaq.
Posts: 2903 | From AZ | Registered: Feb 2006
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
cologirl, Hi! This new Parasite? Close to Babs. are there other ways to tell if one has it...This is new to me. They have been treating babs about 3 plus weeks and 2 other treatments for basics before that.
I'm a Colorado girl also.. Did you see anybody here? You can PM me. Had you been ill long??
If you PM me ,I can or would e-mail you if that's better for you.
Is this your 1st go around ,or did you have change in symptoms??
Kelmo how do you know what the bio=film is doing??? I'm not being funny,but do you actually have something to look at this??
On mepron,Omniceft, Biaxin Salmento ,Noni, Burbur and about 9 other things.. I try hard but stuff does get missed..
You all sound like miracle eaters. I thought I was doing far with food. But after reading this, I'm sad... This illness has taken so much.
Hope to here from you Cologirl..
Hope my Dr's know something about this...
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
The Fry Lab has tests with pictures. We have had a few taken over the years.
I am not going to promote anything. I left because there was so much heavy promotion for products.
We are experimenting right now with Ivermectin. And, all I can tell you is my observation.
My daughter has had a herx with this drug unlike any other she has taken over the past six years.
Last week, she had two days where she looked like my pre-ill daughter. Her eyes were clear, she had almost no pain, and more energy. She did start to dive at the magic 5pm hour, though.
But, for most of the day, there was something she hasn't had in six years. Almost normal.
On Thanksgiving, however, she woke up sick and with swollen lymph glands and face pain. We talked about this last night and concluded that this drug works in cycles.
For some it's four days. For her, we are seeing a four week major flare. She increased her dosage from 1/4 pill every other day, to 1/2 pill...four weeks ago. This explains the crash.
We hope to see another rebound to bright eyes again.
She needs to work up to three pills a day. But, for now, it's a slooow trek.
Even her occupational therapist says she can see my daughter is full of toxins.
I don't believe that Ivermectin alone will cure. Because this is a vector disease where the body is infected with a soup of organisms, it is prudent to go through the rounds of antibiotics and antimalarials to kill other things.
From what I have seen, these biofilm communities have all kinds of crap in them. Bacteria, yeast, etc.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Is Ivermectin what Dr. F is now recommending? It wasn't that long ago that be told my Dr. plaquenil/biaxin. She may have to call him again.
The llmd that she just trained with said that many of her patients with FL1953 have seen good results with alinia/homeopathic combo. So, that is what I am trying now.
It's funny, though..a few years ago I really felt that I needed Ivermectin, but, my llmd wouldn't prescribe it. I must've been right!
Posts: 418 | From NJ | Registered: Sep 2007
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
cologirl,
I have a dear friend, sick with lyme for 25+ years, in treatment for 7 yrs., still sick, sick, sick.
From what you've said on this thread, I'm going to talk to her tomorrow about being tested for FL1953.
Is there anyway you could contact me, PM me, with your PA doctor's contact info so I could give it to her?
Please, please! It would be a big help!!
Thank you very much!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
This FL1953 is from mosquitoes mostly? I was at about 75% during Summer.
Some really bad days but I had a few when I got out ..My triplet grand-daughters visited. I wasn't able to do near as much with them as I could last X-mas,but I tried. They stay here for several weeks..
I would not have made it to their country this Summer,but when my brother died ,they came here. A blessing in the middle of it all. This is before my actual diagnoses mid Aug.
For well over 5 year have been sick,escalated after steroids shots . When talking to LLMD he thought I might have been re-infected. Don't really know why.
But I had been told to ground myself earlier from Holistic person,so I would put my feet in grass for a bit once in a while and the only thing I remember is mosquetoe bites.
This is also the only thing I remember about bites before I got so sick. So short of the test, could this be the source. Do you think people have been ill with this all along and fighting with wrong amo??
Is test hard to get.. Just put on Medicare, not do to age. But I had to .. My LLMD just stopped taking it . So I might have to ask Intern..
He is trying to help and borrowed a couple of books from me. But we all know how hard it is to get going on this.
So far is mag OK, is 5ml oil with 5ml mepron OK, enough to make it work. And this new FL1953 is what could be holding many of us back from getting better? Thanks for any help, Kinda feeling like I'm not getting what I need, or doing what I should. And feeling sick 24/7 doesn't help a bit..Love to you all. Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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posted
I'm not sure if they know where you get FL1953. It's just being seen in alot of people with lyme. I wouldn't be surprised if it came from mosquitos. I get so many mosquito bites..they just love me. And bug spray doesn't prevent the bites for me.
This is still a controversial subject, with some doctors not believing that it exists. I sometimes have my doubts, but, that has happened to me with lyme, as well.
The test at Fry labs was the blood smear, and I had to pay out of pocket. You can look it up on their website. I can't remember how much it cost. Good luck.
Posts: 418 | From NJ | Registered: Sep 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
It's thought mosquitoes were the vector in our case.
Posts: 2903 | From AZ | Registered: Feb 2006
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
no wonder that my daughter got better in IVERMECTIN dosages for a month .She is pozitive for FRY bug and not lyme ( even though she treated lyme with bionic and with muscle test she was pozitive and not IGENEX).She also had puffiness.
It time to try ivermectin again .It helped me as well last year .I would try it again and see.
Posts: 1379 | From disable | Registered: Aug 2011
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How long does the doc say patients need to stay on ivermectin once they get to therapeutic dose? And will you continue pulsing or are you supposed to take it daily?
Hubby is starting this med tomorrow. Will take a small dose 2 times daily for 2 days in a row on a weekly basis. He is adding this to his doxy, flagyl, lariam, malarone and artemisinin.
Thanks for any input.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
My daughter just tested positive as well. We need to treat H Pylori again and then we will work on Fry bug. Right now she is currently on Mal/zith and Artemisinin Essentials.
Debg
Posts: 499 | From Malta, NY | Registered: Dec 2008
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