posted
Cipro was helping, but had to stop it due to tendinitis in both Achilles tendons. Rifampin never really did much but had to stop that too due to skyrocketing liver enzymes! LLMD said that I may be out of options to hit bartonella! Yikes! Any thoughts? Anyone kick bart without either rifampin or a fluoroquinolone?
~tri
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
| IP: Logged |
posted
Do not believe you are ever out of options. Cannot say I kicked bart with another drug, but have been able to get it somewhat under control with herbs and rifing.
May be time to look at some alternative treatments.
Posts: 366 | From Louisville KY. | Registered: Nov 2003
| IP: Logged |
nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
other Lyme/med org mentioned Doxy Or Dr B said zith for children ,so maybe start slow and then do 500mg Posts: 2563 | From Denver,CO | Registered: Aug 2011
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Oregano Oil
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
I was able to kick Bart with Zithromax - 750 mg a day for about 5 months. However, I got reinfected last spring with a new Bart strain and haven't been able to kick it yet. Ask your Dr. About Zithromax though! Worked like a charm my first go round!
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
| IP: Logged |
-------------------- Increasingly ill over past 10 yrs; treating since October '08. Posts: 180 | From Philadelphia, PA | Registered: Oct 2008
| IP: Logged |
jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
My daughter is on zith, mepron and bactrim to hit babs and bart. I'm on a-bart to hit bart. My cat (if you can believe this) is on Zith for bart/myco.
Did you get a positive blood test for bart?
Posts: 1374 | From Crazy Town | Registered: Dec 2007
| IP: Logged |
posted
Hi Tri: I have a feeling I may not be too far away from your predicament. I am on Levaquin and it is the only thing that has worked but I must say that the side effects-- tendon- muscle are pretty brutle and I know I can't stay on it forever. Have you heard of Gentimicin... that is something that is supposed to be very effective against Bart and I may be left to that... I would try Bactrim DS as I have heard many folks beating it with that over time. The Abart doesnt seem to touch mine... nor did rifampin and zith - hit it like levaquin does. It is very tenacious... I have considered rife too... and the info. on Zith is very helpful...
NEVER, never get up... if I have learned one thing from all of this... it is that... It might be time to see a new doc. Blessings to you..
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Rife is an effective Bart killer but you need to rife for it everyday bc it multiplies so fast. It hasn't cured my Bart yet, but I believe it will over time. It has knocked about 90% of my Bart symptoms out. Dbergy over on the rife thread was able to completely cure his wife of it using a combo of cumanda and rife treatment.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
What about Rifabutin? A "newer" Rifampin that is easier on the liver. Try it!!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
My husband is taking ceftin and HH. HH is a Chinese herb that has been proven to kill bartonella. There is also a HH+ if the lower dosage isn't working.
There is only one place to purchace it and that is at www.hepapro.com. This is the most concentrated and pure HH. My husbands doctor has him on one capsule for 4 days. Then one capsule 2x's a day for 4 days. Finally one capsule a 3 times a day. The HH+ will be used if HH isn't strong enough.
You should look into it.
Posts: 26 | From Hershey, pa | Registered: Oct 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Bactrim DS with a macrolide worked for me. I was symptom free for about a year. Then after treating babesia for ten months and suppressing it, the bart began to emerge again. But it goes away completely when I take Bactrim. I just don't know how to keep it away for good!!
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Wink]](wink.gif)
Printer-friendly view of this topic