posted
Interesting, I just was tested, but don't know my results yet. I bet we go to the same doctor. What was the doctors comment on the fact that everyone tests positive? climber
Posts: 108 | From Connecticut | Registered: Jun 2010
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posted
I see Dr M in Ct. He wasn't surprised that I tested positive since I've been on abx for 2 yrs and haven't improved much. In fact, my ALS symptoms are alittle worse in some ways.
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
2young2dieMom...what are your symptoms?
Does anyone know symptoms of the new Fry bug FL1953?
I have seen pain mentioned...which I really don't have most days. I'm thinking of getting this test as I feel stuck and am wondering if it is going to be positive. Seems like everyone is.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
My result was negative.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
I'm not sure what Fry bug symptoms usually are, but I have muscle atrophy, ear ringing, air hunger, voice loss, skin burning, facillations, fevers, chills, flushing. The usual stuff I guess.
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
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posted
Haven't heard any specifics as far as symptoms, as I don't think that has been identified to date.
Here is what I do know:
There is some question in relation to those (many of us) who do not respond well to treatment after having tried various protocols, meds, etc. that this may be behind our treatment failures.
What I recall hearing was that this parasite is sort of a "guardian" so to speak -- is able to hide itself as well as all the other offenders very well via biofilms.
The suspicion, I believe, is that FL1953 has to be eradicated in order to successfully get at and treat the other pathogens.
Otherwise, it's like dealing with the defensive guard -- who basically polices and ensures that all other pathogens are kept safe.
Crazy?
Yes!
But very, very interesting, and honestly the first thing I have heard since I've been sick and dx'ed that actually has me feeling hopeful and eager to hear more.
I see my LLMD next mos and already plan to try and prod him for more info.
If and when I learn more, I will certainly post what I have heard.
Posts: 192 | From New England | Registered: May 2011
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
My son and I were both tested for this. I tested positive and my son tested negative.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
my llmd described fl1953 as a parasite that protected itself with biofilm and other bugs hide with it under the same protective film. Maybe that;s why I've never tested positive for anything except the fry bug?
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
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posted
Think of this disease as the main one. Symptoms are different in everyone, just like any babs, bart, lyme, and this FL1953 can give us all these same symptoms.
And think of this as something between a protozoan like Malaria and a worm like a parasite. (quoting dr.) It hides in biofilm. Fat thins the biofilm. This bugger gives off 'stuff' like gunk in the blood stream. It's being seen in lots of different areas of our bodies in new testing.
I believe this is the first step in figuring out that ALL bugs carry yucky things. And it's up to our DNA to fight it or not. That's why some people can have a bite and not be sick or they get better soon.
Malaria is the number one killer in the world. Why would we think in the USA that we don't have vector borne diseases either?
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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quote:Originally posted by philly78: My son and I were both tested for this. I tested positive and my son tested negative.
- The manager of the Fry lab told me that the older you are, the more likely you will have the protomyxzoa. It's all about exposure.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Last picture my daughter got of her infection, the biofilm communities were breaking up and they were covered in white blood cells.
She is experimenting with Ivermectin, and she has started with all the symptoms that showed up when she first got sick. It's weird. IBS came back, severe depression, extreme fatigue. Pain.
My daughter explains that it feels different from any other herx she has had with a medication.
He says she is one of his sickest patients.
We experimented with Ivermectin a year ago. One pill a day for four days. By the third day, she was in a fetal position on the couch; so much physical and mental pain.
She started it again this past June. Can only still tolerate 1/4 pill. All lymph glands are hard and spewing toxins through her skin.
It's not pretty.
Posts: 2903 | From AZ | Registered: Feb 2006
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Is this a newly discovered co-infection????? Like we didn't need more trouble for the pot//
What symptoms with this , that are so different from the other stuff....
I keep getting pneumonia symptoms and My LLMD asked if I really think I could have that with three abx's in me..??//
Well yes , if it;s not the correct one... So I waited any way and now I'm on week 6 in bed except for 3 dr. visits, 3 blood draws.
So either I'm not taking enough, or didn't understand his instructions, or the infection is attacking other things now. Like heart, lungs, bones ,,, My brain feels swollen....
HELP Omniceft x's2, doxyx's 2or 3, Avelox x's 1.. Valtrex x's 4 ...Artiminison, fluc., cholestrime????x1 A few supplements, mag just got here,,,progesterone when I remember, and a few other PROBIOTICS galore..
I should feel better,not like I can't breath, have a fever and am toxic.....Oh yes ,let's throw in nerve tingles, pain, and brain fog to the hilt.
Just for fun. Posts: 2563 | From Denver,CO | Registered: Aug 2011
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Nonna, you sound like my cousin w/ chlamydia pneumonia in addition to all the rest (she also has borrelia, bartonella, ehrlichia and a few more).
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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