posted
Does a negative Bartonella Fish test mean that you don't have Bartonella? Can anyone shed some light on this? Thanks.
Posts: 107 | From New Jersey | Registered: Nov 2009
| IP: Logged |
posted
Yes she does and the original test she took at Stony Brook said she was positive...she has a ton of symptoms. What is the Fish test?
Posts: 107 | From New Jersey | Registered: Nov 2009
| IP: Logged |
posted
Hi tls, saw your post here so reposting my reply:
I have had the FISH test myself and it came back negative, despite me VERY VERY obviously having bartonella. Perhaps if I had gotten it at the beginning of infection it wuold have showed something?
Her bartonella is not gone until the SYMPTOMS are gone. It does not matter if the tests don't find it, especially when the infection goes chronic. They are just there to hopefully confirm that you have it, if you can manage to get a positive, but unfortunately a negative result means nothing.
I tested negative through ALL labs, at least ten times, across a three year time span, but still had it. I finally tested positive with the Bartonella IFA (igm and igg levels) from IGeneX, and I think that was a miracle!
You treat bart at LEAST one year, and if you need longer, wait until two months of no symptoms, or it WILL come back. The coinfections such as babesia and bartonella are very prone to quick relapse if you don't eradicate them.
The FISH test is where they look for the bugs in the blood, instead of antibody levels. Sounds like it would be more reliable than it apparently is!
Again, I recommend Rifampin and Doxycycline together. It's a potent combination that will attack everything she's tested positive for, and even more that she hasn't tested positive for, but may still have (such as Ehrlichiois or Mycoplasma).
This probably goes without saying, but find a good LLMD, one that actually helps!
Good luck!
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic