-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter is one of the control patients going through this treatment.
You can find her story in other threads.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
posted
I just started treatment for this. I also have ALS so I hope this stops the progression. So far, it hasn't.
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
There are several docs doing tx for this besides Dr F. They are using Ivermectin -- a fairly common antiparasitic.
I thought I had read that pyramethamine (sp?) was some sort of landmark discovery from a few years ago from this lab..ie this is what worked?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
So far this is the only thing to kill the FL1953 in the lab.
I can only tell you that my daughter is a toxic dump on Ivermectin. There is so much crud coming out of her it's scary.
Based on blood slides during treatment, the construction of the blob is changing.
I still see value in all the antibiotics, antimalarials and antivirals because we all know this disease is a soup.
Dr. F is definitely not the first to use Ivermectin. From reading other posts on here, I can see that some have a reaction to taking it, others do not.
That seems to be pretty telling. My daughter is spewing green goo out of every pore. This only from 1/4 tablet every other day.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Holy cow, Kelmo! Is she taking anything else with it or just Ivermectin?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
posted
This lab found several unknown microbes in my blood. Not sure if one of them is the one that has now been named. One was hemobartonella, which I presume is something different.
Wondering how it was determined that this is the premier germ. Seems to me that having a soup of germs would make the role of any one of them hard to separate out.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/