posted
Not to brag or boast but am very curious about this as recently being diagnosed with lyme b/c nothing else wrong can be found with me (had mri's, cat scans, bloodwork, everything).
In either case I seem to have the more neurological lyme: constant zombie feeling (I call it), not myself, just want to lay down the whole time, flourescent lights really bother me, put me in a car or anything to do with motion and I am completely out of my element.
But as I am trying to start working out again(I was a pre-elite athelete before all of this)I've noticed that I do get in gear to start a workout not only can I go for about an hour or so I feel completely great during it.
All my symptoms are alleviated and I feel back to my old self! I wish I could work out 24/7 but that would be impossible. Then about 15 minutes after working out all symptoms come back and I'm back to square one.
Anyone else experiencing this?? Could I possibly not have Lyme and can it be something else?? My ND says it is odd that I can exercise for that long and feel great, but could be the body temp being raised. But that usually her patients feel extremely tired post working out and major joint pain.
No pain but feelings of greatness for me, until I stop that is. Just trying to figure all this out.
I did recieve my IgeneX results recently and tested + and ind for some bands, but not CDC/IgeneX + according to them. ND still thinks I have lyme and possibly bart.
Would love to hear people's experiences thoughts on this and I am completely perplexed.
Posts: 183 | From ... | Registered: Oct 2011
| IP: Logged |
BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I was in the best physical shape of my life when I was the sickest with Lyme.
I didn't have a diagnosis, so I didn't know there were any contraindications to exercise.
Like you, once I was warmed up, I felt GREAT! And I felt great after exercising. No post-exertional malaise, ever.
Don't laugh, but my exercise was yoga. I did an Ashtanga style, where you jump between poses and never stop moving. Lots of Chatturanga (push-up pose). Lots of challenging inversions. Arm balances. I was super strong and crazy flexible. I could do all the weird poses that you see the yogis do.
I think it was the breathing and sweating that made me feel so good. You have to breathe deeply and rhythmically to get through an Ashtanga practice.
So, don't rule out Lyme because you can still exercise. And don't let anyone tell you to stop, either. If you are well-conditioned, you may be able to continue exercising at that level. But don't do anything that makes you feel worse.
posted
Not laughing at yoga at all! It is a tough one, especially the Ashtanga style! I've started doing my P90X again (yes, you can laugh at that) and the yoga x is full of the ashtanga form...he even adds push-ups in between your planks to downward dogs, etc.
I'm just so confused by everything that is going on and in which direction to go and the fact that once I start exercising everything is alleviated boggles me. I'm lucky I guess that for a moment of time my symptoms are alleviated but put me in a car or in an office with flourescent lights and I'm done.
Even sitting at the computer for a long time symptoms come back hardcore and I have to get up. Just before I started having major heart palpitations and thought I was going to pass out...so got up and moved around...feeling a little better.
How long have you been battling lyme?? And how did you finally get better??
..I apologize for the screen name as I totally made up a random one thinking I wouldn't be coming to this site very often...little did I know...
Posts: 183 | From ... | Registered: Oct 2011
| IP: Logged |
BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I LOVE your screen name. I thought maybe you had a toddler or something.
I was exposed during college, in 1990. Never met my tick, so I didn't know I'd been bitten.
My symptoms didn't begin until I was a few years out of college. I ignored them at first (like we all do), then when it was obvious I wasn't getting better, got on the doctor-go-round.
It took 15 years to get a diagnosis, and, like many, I figured it out myself and went to a specialist to "rule it out."
So, sick since about 1993. Diagnosed in 2008. Treating ever since.
I am not in remission. Although I am a huge fan of natural medicine, I chose the abx route for my Lyme. After my first big herx, I knew this was the way to go for me.
I'm much better, but this year has been tough in areas other than Lyme, and my progress has slowed. But I'm still going.
I think I have the resource and tenacity it takes to reach remission. But there is no time line. It's almost dangerous to put an endpoint on your Lyme treatment, because you just don't know how long it will take. I plan to treat until I am well.
Hurdle number one is diagnosis, and you seem to have jumped that one. Or maybe you are in mid-stride.
Yes, you need to be informed, but go easy. You don't need to know everything to start treatment. Just follow your doc's instructions and write down your symptoms as they change. That will help you and your doc make treatment decisions.
And plan to stick with it for the long haul.
There is no magic bullet. You have to try things to know what will work for you. But you can get there.
I am also all neuro symptoms. No muscle or joint pain. I guess that's why I could exercise!
posted
I exercised throughout my illness, but as I got sicker, I couldn't do the hardcore stuff anymore. I think it's important to seek diagnosis/treatment while you are still feeling well enough to do this level of activity.
I don't think it's possible to get well if you don't move .... but exercise alone won't keep you well in most cases (though I got into remission in the past with exercise alone .... but that was from Lyme I contracted back in the 70's that was not as wicked as the Lyme today).
BTW, I am in remission for over two years now. I still exercise ... a LOT! My choice is pilates.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
Outside of feeling like I'm a zombie everyday I'm a pretty outgoing random person. My friends and I are a random bunch and say random things...some of them being meep mop or moop pop. More for sound effect and to annoy those around us.
Yes, we're very "mature".
Gaga b/c well...(now don't hate!)...we love lady gaga.
No kids here, just again, a very "mature" 30 year old.
Posts: 183 | From ... | Registered: Oct 2011
| IP: Logged |
James1979
Unregistered
posted
gaga - thanks for the explanation!!
BTW, I'm mature also. That's why sixgoofy mistakenly thought I graduated in 1979... due to my maturity, she thought I was much older than I actually am. It was an understandable mistake.
IP: Logged |
quote:Originally posted by James1979: ...high school gradu... WHAT?!!
Dang, girl. I ain't that old!!
Just trying to get you going. I, on the other hand, WAS in HS in 1979!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Moving around FROM THE COMPUTER could be the main cause. Electrosmog is known to worsen lyme symptoms. It makes me CLEARLY feel cold, it affects my sleep, it makes me feel bad even WITHOUT having lyme.
One hour in the computer is like taking a dose of a bad drug. Dr. K. says the electrosmog is somethigng to be considered, even more than other types of chemical polutions.
google eletromagnetic field / protection / problem or electrosmog, you will find something to read.
If you stand exercises without feeling crap after, why not continuing?
Posts: 6199 | From Brussels | Registered: Oct 2007
| IP: Logged |
posted
For me its kinda the same thing. Even if i feel like i shouldnt workout out i still do and i would say 90% of the time i end up feeling better 1/3 the way through my workout and stay feeling better after. Not sure what's up with that. (i lift weight for my workout)
for the record i didnt graduate in 72', thanks.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
| IP: Logged |
posted
Was unaware of the electrosmug...thanks for the tip. Also extremely sensitive to flourescent lights. Being in stores and doctors offices is the worst with all those types of lighting.
Thanks for the responses on the working out...thought it was just me and maybe that I didn't have Lyme b/c doc said it is very odd that I can exercise compared to her other patients.
Posts: 183 | From ... | Registered: Oct 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[Smile]](smile.gif)
![[lol]](graemlins/lol.gif)
Just trying to get you going. 
Printer-friendly view of this topic