posted
We have an appt to see an LLMD after 4 different specialists who basically told us she was depressed! So my question is the first thing that came up funny on lab work was her blood glucose levels and A1C. They thought she was diabetic and sent us to an endocrinologist who ran several other tests and said "no not diabetic". We do still test her at home occasionally as she will run 150-170 sometimes without eating.
She also runs a mild fever about every 4 days or so.
Has anybody else had similar symptoms? She has the other "typical Lyme" symptoms but these seem to be "off".
-------------------- Mom to sick 12 yr old Diagnosed with Bart and Lyme.
Started Zithromax and Bactrim 11/2011 Posts: 16 | From Maryland | Registered: Oct 2011
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posted
I'm BRAND NEW to all this lyme stuff but that is sounding a lot like several of the symptoms I've had. Keep setting off flags on blood work with glucose levels all out of wack and just aboce 100 despite what I do((and I've done them with and without eating just to see if it would make a difference and it did NOT)).
My primary NON LLMD thinks I'm nutts with my fever claims, couldn't even get him to put down Fever of Unknown origin in my chart despite me having rounds after rounds of several days of multiple low level fevers throughout the entire day & night then followed by a week or two off of nothing but regular reads-- then back to the low grade fevers.
I hope/pray you get some answers & If you do you share them as they might just help us both......
Posts: 9 | From Northern CA | Registered: Nov 2011
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Please start tracking her symptoms on a daily chart of some sort. This will be very helpful to the LLMD.
Have they given her any ABX?
Perhaps you can get some probiotics and vitamin D for her if you haven't already. They do have chewable for both of these. Get the highest quality you can find.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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