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» LymeNet Flash » Questions and Discussion » Medical Questions » Emergency - Can anyone help

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Author Topic: Emergency - Can anyone help
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

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I'm looking for a Lyme Hotline or one of yall to talk to.

I'm having a very scary acute infection with Filarial Worms (strongyloids)

Swollen brain, etc

I've been to hospital twice and have a schedule with infectious disease doctor soon.

If you can help PM me please
Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
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I don't know what kind of help I can offer but I have a shoulder and open ears.

Sorry you're going through this.

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.
Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
SoOverIt
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PM sent
Posts: 60 | From usa | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
glm1111
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Just saw this....pm sent

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*
Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
jlp38
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Are you doing ok? Did you get some help? Please let us know when you can.
Posts: 707 | From Colorado | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
BoxerMom
Frequent Contributor (1K+ posts)
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So sorry. I thought you were making good progress. Were you re-exposed? Did you provoke too much die-off?

Please share details as you are able. We are all concerned.

Are you sure an ID doc is the way to go? (I know. It's like "what options do we have?")

Much love,
BoxerMom

--------------------
- Must...find...BRAIN!!!
Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
sparkle7
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message sent
Posts: 7772 | From Northeast, again... | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Haley
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When you are better, can you tell us how you know that it is Filarial worms and how it is manifested in the brain?

I believe I have the same problem and have even had a positive blood test but I am having a tough time convincing my doc.

Please let us know what your treatment plan is or PM me.

I hope you are feeling better!!!!!
Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Cane.. how are you doing?

--------------------
--Lymetutu--
Opinions, not medical advice!
Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
17hens
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Tutu, Cane is here - http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/112549

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10
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Lymetoo
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Thanks.. found him! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!
Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
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Haley,

What bloodtest did you have done that showed filarial worms? What lab and the name of the test and the cost?

Thanks.

Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
   

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