blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Started malarone and zith a few weeks ago. The malarone dose is only 1 pill 2 x day. Low dose.
It was helping the hot flashes and sweats about 50%. Great news! But, it wasn't enough. So, I upped the dose to 2 pills twice a day and wham!! My body temp is almost back to normal...not waking up hot anymore.
Now, I have to figure out how to ask my LLMD for a script at a higher dose. I don't think he'll want to do it but I can't keep taking the higher dose or I'll run out too soon.
Posts: 1104 | From N.California | Registered: Jan 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
For symptom relief and treatment progression, nothing compares to being on the right dose of Babesia meds.
Keep going and figure out how to ask for those meds. You know your body. You deserve to get your health back. Be strong.
posted
if your llmd won't do it you could always add in art to hit the babs harder. Another ideas is to ask for mepron?
Posts: 323 | From Michigan | Registered: Sep 2006
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
already on art and cryptolepsis with malarone and zith
Posts: 1104 | From N.California | Registered: Jan 2008
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
this is all for Babesia??? how hard is it to fight?
. what else helps?
Treatment progression?? Does this mean you go on to other treatment after a while.. Or this usually does it, if long and strong enough?
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
yep. it's a tough bug to beat. I've treated and relapsed several times, like many others here. It is what is keeping me the sickest. Babs treatment usually takes several rounds of rotating babs meds for long periods of time.
That being said, if you can beat it, you will feel a lot better and can treat lyme more effectively. Babesia also suppresses the immune system, much like lyme.
Posts: 1104 | From N.California | Registered: Jan 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
If it makes you feel better, I'm on 6 pills a day of the new generic version. No issues...but I also weigh over 200 lbs.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
bcb-Is it helping you?
Posts: 1104 | From N.California | Registered: Jan 2008
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
bcb1200 for how long your doc wants to keep you in treatment for BABS DUNCANI?
Posts: 1379 | From disable | Registered: Aug 2011
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Manybites...I started Malarone with 3 pills a day in June and upped it to 6 in July. I'm going to be on it at least through December and likely through Feb (6-8 months.)
I'm currently off of it for 2 days as I'm going to be doing a round of Coartem on Friday-Sunday and you have to stop Malarone and Zith 4 days before / after.
Yes, it is helping me. I think it is the Proguanil primarily that works on Duncani. The hot flashes and sweating is all much much better.
I'll be starting Rifabutin next week after restarting malarone.
I love the new generic malarone, BTW.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I'm on the generic as well.
bcb-who is your LLMD?
Posts: 1104 | From N.California | Registered: Jan 2008
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