Topic: Wow: IDSA founding member writes new book in support of chronic Lyme!!!
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
metallic wrote: He's been on my LLMD list for a long time. I'm surprised no one knew about this.
Most of us don't know the names and backgrounds of all the LLMD's since full names are not allowed + most of us go to LLMD's in our own State or in a nearby State.
I have no idea how long he's been an LLMD or if he is a member of ILADS or IDSA. I can tell you that the good old boy network is still alive in medicine. Hopefully he still has friends and collegues who will look at his work and think twice about the IDSA rhetoric.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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merrygirl
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posted
I agree that patients should at least try quest. I miraculously tested cdc pos and i think i get a heck of a lot more "respect" i guess since i have it and it was covered. My suggestion is to order the elisa AND westernblot not just elisa with reflex.
I also dont like the term syndrome.. maybe its just me
Posts: 3905 | From USA | Registered: May 2007
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merrygirl
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Member # 12041
posted
i wanted to add that a few llmds told me that the cat scratch panel at quest is reliable. They test for 5 strains of bart i.believe
Posts: 3905 | From USA | Registered: May 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
. . . Some patients we have seen �who hurt all over� may well suffer from Somatization syndrome, which is described as severe generalized pain without known organic cause.
One help in coming to this diagnosis is that these patients pain breaks out of the boundaries so characteristic of fibromyalgia.
We have tried but have not helped patients of this type. . . .
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Big Sigh regarding the CFS / FM page. I wonder if he relies on the typical inferior lyme tests to dx lyme.
And I wonder if other tick-borne and/or other chronic stealth infections such as Cpn, mycoplasmas, HHV-6 are considered - or heavy metals and adrenal dysfunction?
Wonder if he considers the range of porphyria abnormalities that can cause tremendous pain? -
[ 01-10-2012, 05:30 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Wondered if anyone has read this book yet?
Poppy just posted a new thread about it, asking for reader discussion:
Looking for something? We're sorry. The Web address you entered is not a functioning page on our site
Go to Amazon.com's Home Page
?????????????
Posts: 789 | From CT, | Registered: Jun 2006
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
ME too ,Al......
My EBV numbers a year ago were a lot lower than this last October...and I'm sicker with LD and it's buddies......
So will this prove to be another BUDDY?
Can anyone else say they have done his treatment program as listed above????? That he always or almost always treats with same meds.
Cause I don't recall seeing anybody list their treatment exactly that way...
I know I keep wanting a miracle /key cure.......and it doesn't work that way ,but is this different?? Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I just ordered his book yesterday. No problem.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I have the Kindle version that I got from Amazon.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Here's the updated Amazon link that mom2kids posted at another thread.
Everyone: take a look at who writes the first review here, a well known lyme expert.
===========================
Posts: 48021 | From Tree House | Registered: Jul 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I just got this book yesterday and started reading it. It is mainly reports of cases he treated, most of which were successful (that is encouraging).
He treated 51 patients. He lists the dates he treated each patient, how the treatment was altered and how they each progressed. This is very interesting because no one else has ever described this that I know of.
So far, of the 12 cases I have read, he started with IV Rocephin or ceftriaxone. He writes he used flagyl to help the gastrointestinal tract accept the antibiotics and because it was supposed to help with ""other forms" of borellia. I didn't know Flagyl was good for the gastrointestinal tract.
In some patients, he specifically says he used Diflucan for cysts. That is different but I have heard of it before. Everyone got doxycycline but only 200 mg a day.
In the second part of the book he has essays such as the dangers of viral vaccines and his suggestion to add gamma globulin to treatment protocols.
This is a very interesting book - the kind you read cover to cover. Speaking of the cover, it is very offensive as it has a giant lone star tick. I found it so repulsive I immediately covered the picture with masking tape.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Here is a link to the essays he has on his website. You can probably find most of the information contained in his book in the essays here.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Update on if this book is worth the price? 51 case reports would seem pretty valuable. Does anyone know if he addresses co-infections?
Posts: 641 | From Nevada | Registered: May 2009
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Carol in PA
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Member # 5338
posted
Dan, I clicked on "search inside this book" feature at the Amazon link, and looked at the table of contents. I don't see anything about coinfections.
One of the reviewers says that he didn't find anything that was helpful to him personally, as a patient.
You can actually read alot of the book, if you sign into Amazon and if your browser supports the "search" feature for the book.
p.s. I just read about "Patient 2." The poor guy was "positive" that he had Lyme, and begged to be treated for it. Although he had improvements, he still was not well, and the author says, "Did he have Lyme Disease at all, or had he fallen in love with the disease?"
Ugh.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Nonna
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