posted
DS, 12, is taking a combination of Rifampin and Minocycline and seeming to improve mentally. Yeah!!! Here's the bad part, he is starting to have bone pain (last experienced this on Bactrim). I backed off on the Minocin last night, but he will take it again later today.
I do believe this is a herx. Advil didn't touch the pain. A hot epsom salt bath helped a little. If this gets worse, what can I do for him? Is this something we are going to have to ride out, slow down, or what. Won't he eventually have to go through this to get it out of his bones?
This disease is so unfair and I hate watching my son suffer. My whole family is tired from dealing with this, but we just gotta press on. Posts: 55 | From Missouri | Registered: Sep 2011
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posted
Just want to say I am so sorry and in the same boat as the mother of a sick child. Hang in there!
I agree that it is a herx and I don't remember which coinfection is attributed to bone pain, but treatment must be getting to it.
Posts: 312 | From Utah | Registered: Nov 2010
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
This kind of pain is what my son used to experience all the time. Maddening, I agree.
We found out it was toxic mold in our home which held his immune system down and made him more sick. Toxic mold can be hidden, have no smell, and be in the air.
When the immune system is suppressed by mold, the Lyme disease and coinfections are allowed to go deeper into the body and reek havoc. It's awful to watch your child suffer with this. I know.
Our LLMD was not aware of the mold/lyme connection and I believe many are missing this important piece of the puzzle.
Adding antibiotics to a mold illness is like adding fuel to a fire. Most antibiotics are made from mold.
OR you can test urine for mycotoxins - mycotoxins are the toxic products of mold, the thing that actually makes people sick - through either of these labs:
Real Time Labs http://www.realtimelab.com or Environmental Diagnostic Group Inc. Dr. William Croft 521 Hilltop Dr. Madison, WI 53711 (608) 274-1618
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Rifampin caused the bone pain for me. I don't think it's actually the bones. I think it's inflammation of the periosteum - the connective tissue that surrounds the bones.
Ice packs and herbal anti-inflammatories helped me, but mostly I just had to ride it out until it resolved.
posted
I got bone pain from Rifampin too, it came after I had a pretty intense Bart herx. I don't know if it was a herx or a side effect.
I kind of think it might have been a side effect because it continued for a week after I went off it. My LLMD thinks it was a side effect too. Who knows?? Posts: 845 | From Northeast | Registered: May 2011
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