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» LymeNet Flash » Questions and Discussion » Medical Questions » Tested positive for Lyme and RMSF

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Author Topic: Tested positive for Lyme and RMSF
rsekrecre1
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Member # 35147

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I have almost all of Dr. B's symptoms and i also have an enlarged liver now. The Dr's didnt what was going on for a couple months then finally did a ton of blood work and tested positive for lyme a RMSF. The treatment with 100mg of doxy seemed to help initially then really does noting for me after 60+days of taking it. I am always tired and if I do anything to exert myself I am exhausted. I also tested positive for mono so my neck and body is just sore everywhere. What to do now.
Posts: 12 | From Fayetteville NC | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Catgirl
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You need to find an ILADs (International Lyme and Associated Disease Society) specialist. They are trained with the most up-to-date info on lyme (I'm no doc, it's just my opinion, but I think you'll find I'm right). Go to www.lymediseaseassociation.org and they will email you some names.

You can also post a request here under "Seeking" and someone will send you some doc's names, although you will have to check to see if they are ILADS trained.

I can't stress enough how important it is to find one of these docs. Don't waste your time or money with anyone else (the rest of them don't have a clue about lyme).

You should also try to see "Under Our Skin". You can download it on hulu (free).

Also, the book "Cure Unknown" is really good (worth every penny).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).
Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
   

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