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» LymeNet Flash » Questions and Discussion » Medical Questions » muscle cramping / Lyme titre still high 5 yrs. post diagnosis

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Author Topic: muscle cramping / Lyme titre still high 5 yrs. post diagnosis
Dee Dee
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Member # 35108

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I had a lyme titre recently 6 yrs. post initial diagnosis. For the 6 months, I've been experiencing painful muscle cramping mostly in my lower extremities. The spasms/cramping/charlie horses (whatever you want to call them) come on mostly when I'm at rest.

I am beginning to wonder if the cramping is a manifestation of LD.

Has anyone experienced these symptoms?

I see a rheumatologist who wants to put me on Lyrica which I emphatically say NO! I haven't been able to find anyone knowledgeable LD physician in Rhode Island. I'm looking to find a LD physician in Boston. I have been given a diagnosis of Fibromyalgia by the way.

Posts: 3 | From rhode island | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Robin123
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Hi - it would be best if you could repost this with a heading about looking for LLMD in Boston.

Then you can also post in Medical Questions for a medical discussion and folks will respond there.

Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Nancy2
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PM Sent!
Posts: 1487 | From New England | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
LymeGoAway
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Hi Dee Dee,

Sorry to hear that you're going through this.

I had some pretty bad cramping and spasms in my legs before I was treated for Lyme initially. It definitely is a symptom of Lyme.

Until you can get into see an LLMD, you might want to try supplementing with magnesium. That can help a lot with muscle cramps, spasms and charlie horses.

I take the Mag-Tabs recommended by Dr. Burrascano, but others here have had success with other brands--if you search "magnesium" you'll find lots of information on it.

Try to avoid the magnesium oxide that is most commonly found in stores--it is not absorbed by the body very well.

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Ann-OH
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Another help for me is a small glass of tonic water with dinner. It has quinine and I haven't had leg cramps in a very long time since drinking it. Magnesium and potassium are good helps as well. And I take those, but quinine did the trick for me.

Of course, if you are on meds, no gin!

There is a diet version, too.

Ann - OH

--------------------
www.ldbullseye.com

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TF
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Fibromyalgia is generally lyme disease if it is more than a very mild case.
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LaurenMiddleTN
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Hi Dee Dee,
I had spasms too; arms, legs, fingers, feet, and head. Hot showers before bed and a heated matress pad on my bed seemed to help. I was treated with cymbalta for 2 months while we waited on my testing for lyme. Cymbalta had no effect; first 2 series of test neg., requested a Western Blot test I head about from my aunt,,, after 14 months I finally got my Positive Test result. Since my antibiotics have been in my system 5 weeks now, spasms/cramps have subsided by 80%. Hang in there.

--------------------
Bite: 5/08, Bulls-eye rash; test:neg. Doxy Treated.
Relapse 5/09: test: neg. Doxy Treated.
Relapse 6/10: back2bake test-neg: Request Western Blot: POSITIVE Currently - 4th round of treatment.
"Sharing my Experience, Strength and Hope."

Posts: 35 | From Middle TN | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Moving to Medical Questions.

DeeDee.. let us know if you need more names of doctors.

--------------------
--Lymetutu--
Opinions, not medical advice!

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ChuckG
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I had bad calf cramps from around 1950 to around 1985 when I discovered magnesium, 400mg per day minimum, was necessary to stop them.

Quinine was very fast acting compared with oral magnesium.

First ticks in 1988. First symptoms, Chronic Fatigue, on 2/7/1991. Second ticks in 2008.

Now need 600mg per day several days a week with 4 other days.

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Robin123
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Fibromyalgia is usually coming in as Lyme disease. I had that dx also before finding out I had Lyme.

We're all different in how we respond to treatments - for me, taking oral clindamycin 150mg every six hours the first week stopped all fibro pain.

Then I did it 3x/day for a month, until I herxed, then dropped back to 2x/day, which lasted 5 years, and then it didn't work anymore.

Now I'm doing teasel root tincture and curcumin capsules.

We all need to find what's going to work for us.

Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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