posted
Hello Members, I was originally infected with LD in 1992 while working for the Federal Government at a milatary base.
I would test positive for LD again in 1993,1999, 2000 and 2002. I was positive for Babesiosis in 1999, Ehrlichiosis 2002, Bartonella 2008 and then Mycoplasma Fermentan also in 2008. I filed for permenant disability that same year.
Been on the IV Pic line on 4 different occasions and have tried every type of oral antibiotic known to man kind.
I am currently still on orals, 3 weeks on then one week off. I don`t dare get into all the symptoms over the years or I`d be writing all night.
My newest symptom is getting scary and I hope someone else could chime in. For about a year now my hands have began to shake, some days bad and some not so bad.
I`ve noticed after I eat a light breakfast and don`t eat for another 3-4 hours I`ll start to feel light headed, nauseous and my hands will violently start to shake.
After I eat something I will start to feel a little better and my hands won`t shake as much. My question is, has or is anyone going through the same type thing? Is it of tick borne nature or is it because my immune system is shot????
My LLMD is stumped and so am I, if anyone can shed some light on this your help will be greatly appreciated. God Bless all of the Lyme Community. POP
Posts: 57 | From N.C. | Registered: Jun 2003
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I have had this and it comes and goes.
Maybe hypoglycemia. This can be caused by the infections or from yeast. Have you been treated for candida?
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
POP,
Please check into treating for parasites/worms which can be considered a co-infection of Lyme.
Many LLMDs are just not aware of this. Some of the ticks are carrying the Filarial Worm co-infection as well. Some members here are doing the Dr.K. antiparasitic protocols.
I used a lot of antiparasitic herbs and salt/c and everything pictured on www.lymephotos.com came pouring out of me after 6 mos.
Google parasite symptoms and check Humaworm symptom list for more info.
Also do a search on here for parasites. Don't ignore this. Dr. K. treats all of his patients for parasites First and Lyme SECOND.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
P. S.
Parasites can cause you to be hungry because they are stealing your food.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
It sounds like reactive hypoglycemia. I had it for years before it turned into diabetes. Blood sugar issues seem to be common with infection.
Eat small relatively low carb meals throughout the day to try to stabilize your blood sugar.
Google reactive hypoglycemia for more info.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
My son has had the same sx and it was related to blood sugar. It drops if he doesn't eat right. This can also be a pre-cursor to diabetes.
We have a very strong family hx of blood sugar problems.
TerryK is right, it could be hypoglycemia; I would have the md check your blood sugar. The A1C blood test tells the average blood sugar level over the past 3 or 4 months. A 5 hour glucose tolerance test can pinpoint what the problem is. You drink a sugary mixture periodically over 5 hours and they test your blood sugar at intervals to see if you are normal.
Hope you find out what's going on. Good luck.
Warning: some mds don't believe in hypoglycemia. Kind of like lyme.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, you are giving a perfect description of a low blood sugar reaction, called hypoglycemia.
The cure is to eat numerous small meals. Not a bad cure! Food is the cure. However, you must avoid sugar and simple carbohydrates. These will send your sugar level up and then it will drop down very quickly and start your symptoms.
My hubby had to carry food with him at all times to avoid this problem. Carry nuts, peanuts, veggies (raw carrot and celery sticks, small cans of veggies, etc.), cheese, etc.
If you exert yourself a lot, you will need to eat even more frequently.
For breakfast, eat whole grains, meat, eggs, milk, etc. Don't eat a light breakfast, or eat again shortly after a light breakfast. No pancakes and syrup for you.
Hypoglycemia is caused when your body sends out too much insulin in reaction to sugar or carbs. That sends your blood sugar down too low. Irritability is another sign of low blood sugar and so is impatience.
That is because adrenalin kicks in to keep you from going into shock from low blood sugar. Adrenalin is the "fight or flight" hormone, so you could easily start fighting with others when you get the sugar low or just feel irritable.
You can get the old book "Hypoglycemia: The disease your doctor will refuse to treat" at a library and just look at the 2 pages of symptoms. That will tell you if you have it.
If diabetes runs in your family, then follow the diet rules now and you may be able to avoid diabetes down the road.
After 30 year of hypoglycemia, my husband is now pre-diabetic. Not bad.
Please be sure not to eat sugar when you get these attacks as it will just cause another one. Carry good foods with you at all times.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Thanks to all that had answered! Sorry it took a whlie to get back but I was awaiting my blood sugar test results from my LLMD.
In the past I was treated for possible parasites with Alinia, self treated for worms with Humaworm and was treated for possible Candida with 2 rounds of Diflucan and Nystatin.
TerryK, linky123 and TF, you guys were right.I just received my results on Saturday 12/24 and my LLMD stated I do not have diabetes but I am at an increased risk now.
He told me to switch to a low carb diet to get my sugar levels dowm but I have been on a low carb diet for quite some time now.
I had stopped any sugars years ago, my LLMD said to make another appointment to discuss some other options.
My first question, could pre diabetes or diabetes be a result of chronic Lyme and co-infections? This coming February will be 20 years of hell since my initial infection.
It just seems as time goes on my body is slowly breaking down from tick borne diseases, and I am still on treatment. Very frustrating!
Are ther any other options out there besides a low carb diet that someone can recommend? Again, any information will be greatly appreciated, thanking you in advance for all your help. God Bless the Lyme Community. POP
Posts: 57 | From N.C. | Registered: Jun 2003
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< POP >>>>>,
I have Diabetes now, and the LL Specialist an ND that I was privileged to see a few times in '06 felt that it was a direct result of the Lyme and Co-infections.
The Lyme and Co's are taking the food fuels that your body breaks into sugars for fuel throughout your system.So then the body craves more carbs and sugars, and we get overloaded.
Hope that makes sense, and there should be folk along soon that can explain it far better.
I am sorry you are going thru all this mess.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
When my lyme and coinfections were fully activated I was borderline for diabeties. As I treated this conversation and concern from my doctor was never mentioned to me anymore.
Posts: 1379 | From disable | Registered: Aug 2011
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