posted
So after my phone consult today and discussing my symptoms which I felt were pointing towards bart..my LLMD agreed so she has switched my mepron to Bactrim DS
Does this seem good to treat bart and babs at the swame time?
what are your experiences with bactrim and bart treatment?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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Jamers
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posted
That is alot of meds! I would not be able to handle all of those! Anywho...I felt Bactrim was excellent at hitting my Bart. I had to stop it though due to Steven's Johnson's type symptoms. Be sure to know about this side effect so you can stop the med immediately if you have them. Otherwise I think Bactrim is excellent for Bart.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Lymedin2010
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posted
I heard of someone using Bactrim DS to treat Babs. They knew it was Babs since they had a 7 and 14 day symptom cycle. They also pulsed it with Artimisinin, and got rid of it with this combo.
Just curious, I think I have Bart too, and it is hard to tell if Babs is involved. One LLMD says Bart and the other says Babs. Maybe it is both?
What are your Bart symptoms?
Mine are: -Hand and feet tingling and numbness. -Night sweats on my thorso and sometimes head. -circulation issues. -pressures on neck and head, fogginess. -breathlessness or air hunger -chronic fatigue
Posts: 2087 | From NY | Registered: Oct 2011
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Jamers
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posted
Lymedin201-Thought I'd chime in here from my experience. All of your symptoms are my Bart symptoms except for the head pressure and air hunger (those were interchangeable for me)..Meaning I dont know what caused those. Interestingly my sweats were always Bartonella but I had Babesia Duncani and never had night sweats only day sweats.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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-Tinging feet and hands -not often but it happens when I feel the worst
- Very sore feet -Pressure in head and brain fog -frontal headaches and eye pain - ringing in my ears constantly -anxiety!!!! -Ive had shin bone pain off and on!
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Lymedin2010
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posted
After negative on Labcorp, I am finally doing Igenex and will report back. I bet I have both.
I've been deathly sick and continue to have those death like episodes. Feels like their is something blocking O2 to the brain sometimes.
My feet feel sore too, but I describe it more like a light burning. When standing still in one place and not moving, I feel it increase rather quickly. I also have the occasional burst of eye pain and tinnitus. Ringing is more discernable at night. Oh, and temporal headaches and frontal at times.
Do you have any muscle twitching or feeling like something is moving in various parts of your body? I think this is pure Lyme.
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Dekrator48
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posted
Just be careful with Bactrim DS.
I experienced a fever, chills, loss of appetite and severe fatigue 3 weeks after starting it, which was the beginning of my liver and pancreatic enzymes going WAY up and I became jaundiced. It was quite scary and I had to go off all meds for 3 months.
Also watch for symptoms of Stevens Johnson Syndrome with Bactrim DS.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Jackie81--I have just finished up almost the exact same combination, except that I had grapefruit seed extract instead of tinindazole. Honestly, I am not sure what it did in terms of bart.
I felt the best on this combination of any, but by the end, I felt some pain symptoms begin to creep back (rib pain, wrist pain, neck stiffness).
I am switching right after the holidays to a new combo. But I was also mindful, as others have said, about any sulfa reactions at all. Definitely be sure you are having regular labs. I had a tough time with a lower WBC in this set of meds than others.
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lymeboy
Unregistered
posted
I have been taking an aggressive combo for 3 months now, that includes Bactrim Ds, Mepron, Cefdinir and Biaxin. Loads of Herbs as well.
At first, my Bart symptoms seemed to die off pretty quickly. After a month with this combo, my brain fog, depression and disorientation, which has been more crippling than any physical pain of any kind, dried up to the point of my being highly functional at least 4-5 days out of the week. Then I added Lumbrokinase and Nattokinase and my Bart symptoms showed themselves with extreme prejudice. BUT, the anger jolts and depression that I got were nothing compared to what I had been dealing with in the past. And way more short lived. Now, my Bart symptoms have become more physical. Foot pain, shin pain, stiff neck, bumps on my fingers, and what not. But it seems like the Herxes have gotten less intense and shorter lived. I am treating all three, so knowing what is causing what is very tough at times. But for me I think the Bactrim is working. I know of a lot of people that this drug helped.
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One week after taking bactrim ds gave me hives like rashes all over the body with intense muscle pain, terrible headaches and stomach pain so i had to stop it.
Be careful its known to cause steven johnson syndrome.
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