DS, is taking Mepron and Minocycline for Bart and Babs. DD, is taking Doxycycline only for Bart.
Both have had extensive labs in the last month. Just purchased all our meds yesterday. He takes numerous supplements. She only takes Vit. D and multi vitamin. As I look at all of the bottles, I think is this all really necessary???
We have started different ones at different times based on different peoples recommendations. His LLMD really only recommends the tryptophan and tyrosine. He seems to benefit the most from L-Tryptophan and L-Tyrosine. And of course, probiotics.
We are quickly going broke! I know that others are going through the same thing. How do you pick and choose???? If you were to pair it down to the essentials, what would they be?
Posts: 55 | From Missouri | Registered: Sep 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I think it is wise to take supps that decrease inflammation such as krill oil.
Have you read the ones that Dr B recommends in his paper?....starts on page 27:
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Haley
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Member # 22008
posted
Transfactor Multiimmune (I think that is how it is spelled).
Posts: 2232 | From USA | Registered: Aug 2009
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
I think it entirely depends on which organs are being affected. For me the following are essential, and I agree they are too expensive, and some may not be needed at all by many of you.
For example, Benfotiamine totally keeps my uveitis in remission, but if you don't have uveitis, you don't need it.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
As much as Burrascano says in his protocol (free download, google it, but you want the 16th edition).
I take the vitamins, and most of the minerals/enzymes and of course lots of probiotics (not the brands he has listed). I just started taking most of what he suggests, and I have to say, I feel better (felt better within a couple hours). Might be TMI, but my urine isn't as acidic as it was either.
I guess if I had to choose due to limited funds, definitely a multivitamin, some B-12, C, D and magnesium. I just started taking milk thistle for my liver but you could always drink lemon water for detox.
I personally believe that lyme depletes vitamins and minerals from us, so whatever you can afford is better than nothing at all.
I don't think Burrascano lists zinc, though. I think I was zinc deficient (again, lyme sucks everything out of us). Zinc really helps me feel better, especially this time of year.
P.S. I don't take any fish oil whatsoever and my CRP (c reactive protein) which is an inflammatory marker has gone way down (normal). Think it was the coconut oil (I just cook a meal with it). I also take a tsp of flax oil.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
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posted
Forgot to mention, I eat lots of nuts too (helps with inflammation).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I think it probably depends on the individual - if your CD57 is low, then Transfer Factor Multi Immune, if your vita D is low, then a Vita D, etc.
For me personally, fatigue is my worst symptom and I felt a noticeable improvement when I started CoQ10. But I'm sure it's different for everyone.
I do think that probiotics are a must for anyone on antibiotics.
Posts: 1737 | From Virginia | Registered: Aug 2011
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WPinVA
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posted
PS - Instead of a liver support supplement, my doctor said to eat lots of broccoli, cauliflower, etc. I did and my liver settled down.
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
I was having energy problems and started taking saccharomyces boulardii probiotic, and CoQ10 100mg and noticed improved energy. The low energy was probably because of yeast problems caused by abx.
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