My LLMD was very conservative in treating my lyme because he thought that I was slowly recovering..
However three weeks ago (along with joint pain, insomnia, night sweats, etc) I started with tremors in my legs and arms..
The tremors are extremely bad in my left arm.
I had an EEG, EMG and NCV and they came back negative.
My neurologist wants me to make an appt for a brain scan and spinal tap.
My lyme doctor is against this and doesnt think it will show anything..
I am not sure if I should follow the recommendation of the neurologist or the lyme specialist?
Any thoughts would be appreciated.
Posts: 24 | From whippany | Registered: Jan 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Night sweats sound like babesia. I assume you were assessed for all tick borne infections 3 years ago but you may have had a new exposure.
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What are the reasons the neurologist gives you for his wanting to do a lumbar puncture (spinal tap)?
If for lyme, forget it. That is a terrible test both in terms of results and in cost, pain, etc. It is NOT good for diagnosing lyme.
Besides, you don't need anymore diagnostics for lyme.
Now, if the neurologist has OTHER things in mind, maybe. But I'd want to know exactly what and if other ways to diagnose can be used.
Lumbar puncture is not to be taken lightly or done just because a doctor wants it. I think there are far too many done and they just can't tell us everything.
If your LLMD is ILADS-educated, keeps up with ILADS research, etc., I would certainly consider his thoughts long before I'd consider those of a neurologist if that neurologist was not ILADS-educated, so to speak. Most are not.
Most neurologists discount lyme and the deep effects it can have. I could never trust any doctor who was not completely educated in lyme and other tick-borne, and other chronic stealth infections.
How could they possibly know how to interpret your symptoms, then?
Sure, not everything is lyme but one must know all about lyme when looking at the full range of possibilities, even if something else comes to light as a major player or the main key at that time.
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What is your current dose of magnesium? What kind? Tremors can be a sign of magnesium deficiency. Very common with lyme, et.al.
What is your liver support? Tremors can also be from too toxic of a load to the nerves.
What are you doing for mitochondrial and myelin sheath support?
No need to answer, just a check list to go over with your LLMD.
Has cranial-sacral therapy helped? If you've not been able to do that, you can find someone through:
UPLEDGER INSTITUTE -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In your headline you list: Brain MRI
But that is not in your text. That would be a good idea but best ordered, done and interpreted by lyme literate professionals.
Most neurologists and radiologists don't know enough about lyme to do a good job with MRIs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Diet.
I assume the first time around with lyme you eliminated all artificial ingredients in your diet.
If not, or if started again, just taking anything and everything that is artificial out of your diet may help.
Aspartame and other artificial sweeteners have been linked to tremors. MSG, too. Even "Natural Flavors" are suspect in my opinion. They are not at all natural and too much like MSG in so many ways.
Are you getting all your nutrients? Enough protein? Good fats? Leafy greens?
Scent and chemical free in your home and car? Mold ?
Work exposures? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by bcerq: My lyme doctor is against this and doesnt think it will show anything..
- Probably true. Maybe you need a more aggressive LLMD. Sounds like you were under treated.
Been treated for possible bart and babs yet?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
I have had many MRI , Scanner done and none showed anything in my case.Spinal tap I would say NO NO.
You have co-infections and all need to be treated not just lyme. I have lyme and all coinfections that NEVER showed up on any MRI or SCANNER the past 5 years since my BELLS Palsy .
Posts: 1379 | From disable | Registered: Aug 2011
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