posted
Anyone else have MCS? I'm having allergic reations to all antibiotics. Please advise with any experience with same issues??
Posts: 8 | From Panama City, Florida | Registered: Dec 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
I have had MCS before antibiotics.WHen I reduced the bugs and was in my first remision I felt better.
Once I have had a car accident and relapsed fully pretty fast from BABS and bart the MCS came with it.
WHen you are toxic from bugs reproducing or clogged liver ( toxic ) you have MCS.
As per alergy reaction are you talking about itcheness and redness on the skin , crawling sensation and itchenes in hands or legs.....BUGS and toxins trying to get out.
TRY SAUNA and detox.
Posts: 1379 | From disable | Registered: Aug 2011
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posted
Many of us who are allergic to antibiotics are taking herbs instead. I suggest you read Stephen Buhner's book "Healing Lyme." There's a yahoo group, Lyme_Aid_Buhner, also www.buhnerhealinglyme.com. There are many herbal options - this is an accessible protocol.
We can do bloodtesting that shows which detox pathways are working or not working. The results can help a good Lyme doctor know how to treat us. I did the detoxigenomic liver test through Genova Diagnostic lab in NC.
My best news for MCS - I have had severe MCS - couldn't handle chemical smells or touch materials, and am now gradually recovering through doing FIR sauna sessions - that's far infrared heat that causes us to sweat out toxins as well as detox internally through bile flow.
Over this past year, I first used a biomat and now am using a portable FIR tent, like every 5 days - takes me about 1/2 hour to sweat, then another 5-10 minutes in, then shower off the sweated toxins.
I am now able to tolerate being around most chemical smells and am starting to be able to touch more materials. If you can handle the heat of a far infrared sauna, it is possible to recover.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I have had lyme for 8 years at least and was only diagnosed a little over a year ago. Part of what forced this was I began to have symptoms of MCS and environmental allergies to the point where my lungs would burn around ANY chemical cleaner or anything strongly scented. I had never had an allergy in my life, but was now asthmatic. My MCS symptoms began to improve once I started antibiotics, and have continued to improved very slowly over time. However, before I started antibiotics, I began using the infrared sauna and undergoing detoxes through STRICT dieting. I still have some sympoms, but am not done treating. I am wondering if I might have some yeast too?
Posts: 109 | From North East | Registered: Mar 2011
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posted
Mold causes a lot of the MCS. R
Posts: 845 | From Northeast | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Mold, yes. Other things, too. There's a lot to check off on your list as you check one by one but also know that lyme, itself, can cause MCS. ------------------------------------------
First: NATURAL GAS, be sure there are no slow leaks, good daily ventilation.
People with MCS are not advised to be around natural gas or propane gas - even if the equipment is all okay. More about why in the CIIN and MCS links in following posts.
A slow gas leak can go undetected. Even if no gas in your home, flush the air a time or two every day. We all need some fresh air.
If you smell EVEN THE TINIEST bit of natural gas in the air, leave immediately and inform your gas company! If you don�t know that number, dial emergency services, 9-1-1.
Do not use any electrical device, such as light switches, telephones or appliances such as garage door openers. They could spark and ignite the gas.
Do not use an open flame, matches or lighters.
Do not try to locate the source of the gas leak.
Do not try to shut off any gas valves or appliances.
Do not start vehicles.
Do not re-enter the building or return to the area until your gas company says it is safe. . . .
. . . It was a slow leak that had gone undetected for 3 years. . . .
. . . The gas company employee pointed out to me that the vent over my stove was not a vent at all. . . .
. . . The gas that leaked had no outlet, only the occasional opening and closing of an outside door. We had steeped ourselves in toxic natural gas for 3 full years! . . .
. . . Smoke, car fumes, perfume, formaldehyde related products and chemicals set off reactions of nausea, headaches or fatigue in all of the children. . . .
. . . the toxic effect of the gas on his nervous system. . . .
. . . Now, it is our turn to help others to heal.
We hope our story has helped you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
IDENTIFYING ENVIRONMENTAL ILLNESS & MOLD EXPOSURE IN PATIENTS WITH PERSISTENT LYME DISEASE
Lisa L. Nagy, MD Video $15.
(Excellent to get, even if mold is not an issue, this is full of great information.)
She is NOT A LLMD, however, she understands the kind of toxicity issues faced by many with lyme. She did not have lyme but overcame very serious MCS. She spoke at the recent ILADS conference.
It's a great presentation to see. The DVD can be ordered. Great detail about toxicity issues also here:
Her Web Site -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Those with MCS who have more trouble tolerating pharmaceuticals especially require liver support all during treatment. Other methods of both support and targeted treatment might need to be explored. This thread should help:
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures;
Knowing that support supplements are important, but NEVER enough alone. And knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL links, and
BODY WORK links with safety tailored to lyme patients,
RIFE links,
BIONIC 880 links, and
LOW HEAT INFRARED SAUNA detail. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Their Glass model (free of plastic components, too) is the best for anyone with chemical sensitivities. It is recommended by the top doctors for those with MCS (multiple chemical sensitivities).
Note, those with MCS can be very sensitive to certain kinds of wood (cedar, pine, etc.). Be sure the wood frame would be from a kind known to be okay for MCS.
Styrofoam is also not recommended due to out-gassing. Glues, plastics, all that has to be considered.
So, I'm not sure these plans for a DIY light sauna would work for someone with MCS, the IDEA should, just needs to be with materials that are safe for MCS. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Have you been assessed for CELIAC, the inability to process gluten (in wheat, rye, spelt, kamut, barley). Many foods contain trace amounts.
Even if not diagnosed with celiac, many LLMDs suggest lyme patients go gluten-free during treatment.
CELIAC -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Methylation...it is all about methylation.
The liver makes glutathione to help detox chemicals of a wide variety. If methylation is impaired, not enough glutathione is made, and the chemicals cause havoc...the end result is environmental illness/MCS.
B-Complex vitamins are the #1 most important vitamins to support methylation. You may need co-enzyme forms of the B vitamins if you have impaired enzyme conversion (e.g., may need the active P5P form instead of regular pyradoxine, methylfolate instead of regular folic acid/folate, etc.).
Molybdenum is the #1 most important mineral to support methylation (molybdenum also supports sulfite & aldehyde detoxing, reduces yeast die-off symptoms, and supports energy metabolism), along with magnesium, zinc, iron.
Safe Home for Health, Happy Families -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I had SEVERE MCS about 3 1/2 years ago (shortly after I got bit--one of several bites). At the time I didn't know I had lyme, or bart, but since I was diagnosed last year, I now know it was the bart and lyme, & possibly one of my many other co infections.
I went to several docs who didn't have a clue about lyme (docs in my state suck--don't believe it exists or is endemic here). Acupuncture, switching to a vegan diet, and following the advice in a book called, Adrenal Fatigue, pulled me out of severe mode. I was much better a year later.
Unfortunately, I got bit again, and I think again. The MCS didn't come back with the last two bites though. The acupuncture and the abx have actually helped my sensitivities (much more tolerant now). But 3 1/2 years ago, I was allergic to everything, including prescriptions the hospital gave me. I couldn't take anything.
I would try the acupuncture, change of diet (at least gluten/sugar free), and definitely read & follow Adrenal Fatigue.
P.S. The beneficial effects of acupuncture are cumulative, so try to stick with it (ha ha). Seriously though, acupuncture rocks.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Milk thistle definitely helps me.
Just a few years ago if I walked by smokers, just the smell of it would give me a sinus infection. Perfumes still bother me but don't give me a headache.
All lotions, soaps, dryer sheets, all fragrance free. Makes all the difference.
Definitely could smell anything anytime. Not so much anymore.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
if you use buhner herbs you can make the tea very weak and slowly ramp up
i had mcs...got some bks and cleaned up my environment and now i can tolerate many chems i couldnt b4
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- lpkayak,
what is "bks" ? What is "b4" ? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I think he meant bucks for $$$ and b4 for "before"
Posts: 40 | From northern nj | Registered: Mar 2011
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Does MCS get better if you are not able to take antibiotics for Lyme and Co's?
Daughter's MCS is worse since treating Babs. She was taking Malarone and started Beyond Balance about 6 weeks after starting the Malarone.
We have currently stopped the Malarone and hopefully will be able to continue Beyond Balance.
Food allergies/ int. are increasing too. Daughter avoided all food on allergy reports for a year and now, still can't eat and have added more to list .
Sorry to complain, just is sooo complicated. Sigh!!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Jane,
It's not complaining. This is very difficult. I hope you can get that Nagy DVD linked above. It is eye opening.
Sometimes, the MCS has to be addressed first. Sometimes, the infection. I hope you have (or can find) a LLMD who is tops in all the areas you need). -
[ 01-21-2012, 02:23 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- gejr1,
Thanks for the decoder suggestions. I'll bet you are right with "bks" for bucks.
The "b4" sneaked by me as it requires the brain sort of switch languages from letter to numerals and that's quite an intricate task sometimes for the brain. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I had chemical sensitivity after levaquin gave me tendonitis. Anything the doctor gave me made me very sick with nausea, dizziness and headaches so bad I was in bed.
I laid off the chemicals using massive amounts of herbs for about 8 months. Then I relapsed pretty bad and as a last resort, I tried one of the drugs the doctor had prescribed after levaquin. I could tolerate it.
I did the drugs for nearly two years with no problems but I suddenly developed an allergy to zithromax. When I take a drug a long time I often become sensitive to it. I can't take ketek, or biaxin any more either. Every now and then I feel I need to rest from the abx. Not doing so often ends with a drug intolerance.
Other chemicals make me sick too, like herbicides. I had a huge set back when I decided killing the weeks was more important than taking care of myself.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Thanks Keebler,
The links somehow disappeared. I will goggle the DVD.
Neff, sorry to read all your troubles too. I hope you find something that improves your health.
This is such a nightmare.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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