Having all my same symptoms headaches, burning and nausea in stomach and tired and sore. Along with a list of other symptoms.
Posts: 12 | From Fayetteville NC | Registered: Nov 2011
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Actually it looks like you may have problems with both Rocky Mountain Spotted Fever and EBV.
posted
I don't understand how the RMSF is so high, I tested positive in September and was on 100mg of doxy 2x a day.
Posts: 12 | From Fayetteville NC | Registered: Nov 2011
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
It takes about 6 months for IgG antibody titers to decline. What were your titers in September? I don't know enough about RMSF IgM titers to comment....
posted
Sometimes RMSF takes multiple drugs to treat. The most common combo is doxy and rifampin.
If your symptoms have not improved in 4 months then I would be asking the doc about switching to a drug combo. Supposedly RMSF is easily treated, but that is not always the case.
Have you been tested for typhus or ehrlichia or anaplasma? -- would not be at all surprised if some of those did not also test positive. It could be a cross reaction if they test positive as all are related ricketssial diseases.
Are you running fevers or is your WBC low or any other routine bloodwork abnormal? Those could be clues that need more follow-up.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
my ehrlichia chaffeensis test was less than 1:64
WBC was 6.4
my MPV was 7.1 L
and my Lymphocytes were 44.0
everything else was in normal range.
In September my EBV results were as follows
Epstein Barr virus anti-diffuse 1:40H
Epstein Barr virus anti R/D 1:40H
Blood work numbers --------1 Nov--------28 Dec WBC-----5.5 ---------6.4 RBC-----4.97---------5.12 HGB-----15.8---------16.2 HCT-----43.7---------46.3 MCV------88.0--------90.5 MCH------31.9---------31.6 MCHC-----36.2---------34.9 RDW------13.4---------13.2 PLT CNT--213----------255 MPV------6.7 L--------7.1 L NEUT%----30.3 L-------43.0 LYMPH%---56.2 H-------44.0 H MONO%----11.6 H-------12.0 EOS%-----1.0----------0.8 BASO%----0.9----------0.2 NEUT#----1.7----------2.8 LYMPH#---3.1 H--------2.8 MONO#----0.6----------0.8 EOSIN#---0.1----------0.1 BASO#----0.1----------0.0
Here is some comparison blood work.
Posts: 12 | From Fayetteville NC | Registered: Nov 2011
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Looking at your Sept test results: I don't know what EBV "anti-diffuse" is. I'm guessing your EBV "anti R/D" is your early antigen. If that is the case, your new EA is much higher (although it is difficult to compare since you were tested at two different labs). But still, the first test isn't that high and your second test is as high as the lab measures! I'd stick with testing at the second lab for it seems to give you a much better picture of what is going on. It is important to find a lab that works for you and for the testing of that pathogen (my blood goes to 3 different labs for all the pathogens that I'm tested for) then stick with that lab so you can monitor the antibody levels (hopefully they drop with treatment). You did not put any results for RMSF in September.... It also could be that the EBV is a pretty recent primary or reactivated infection which is why the EA has risen so dramatically in the last few months....I would show both test results to your doctor.
I can't comment on your other labs (lymphs, etc) but I'd find a doctor to discuss and possibly treat your RMSF and EBV. I'd also consider getting tested for HHV-6 for if you have that too then that would be important to know.
posted
I am no expert, but I think it is possible that the RMSF has cleared (based on the improvements in your routine bloodwork) and what you are left with is an active viral infection.
Your doc will have to be the one who decides whether to continue treatment for the RMSF or to just try treating the viral issues.
But the other point to consider is that you could also have a borrelia infection that requires ongoing treatment. What you are showing here is not a Western Blot test, but an Elisa I am assuming. For Lyme that test is notoriously unreliable.
I would get a Western Blot test if you have not done that.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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