LymeNet Flash: PLEASE SIGN TO HAVE IDSA CHANGE GUIDELINES

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»	LymeNet Flash » Questions and Discussion » Medical Questions » PLEASE SIGN TO HAVE IDSA CHANGE GUIDELINES

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Topic: PLEASE SIGN TO HAVE IDSA CHANGE GUIDELINES

jeffinca11
LymeNet Contributor
Member # 25584

posted

http://www.change.org/petitions/revise-idsa-guidelines-for-lyme-disease

Posts: 165 | From lymeland | Registered: Apr 2010 | IP: Logged |

Cracker Jack
LymeNet Contributor
Member # 34734

posted

TTT = to the top!

use a fake name and address..

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

Posts: 247 | From HOME | Registered: Oct 2011 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
I love Change.org and have signed many of their petitions. Then I "Googled" my name one day and there I was, all over the place.

I contacted them and they deleted my name from public view - then told me to UN-CHECK THE BOX for privacy - but then I wonder just who sees my original signature.

"Display my signature publicly" box is checked automatically. -- UN-CHECK to hide name from public view.

I'm glad to see them taking the initiative on this and other matters but, for most of us, going public could have serious consequences at this sad time in the Lyme scene.

We all know that employers, prospective employers, insurance companies, etc. do search people all the time.

Be aware.

I have a name that I use only for such public purposes and a separate email address for that name. It's easy for me to remember but (I think) I could not be traced with it.

But, now I see they need address, city, etc. I don't have a complete alternate persona.

But, that reminds me - tonight on ABC "Pan Am" - my favorite new show.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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