posted
I have not been in treatment at all since august. Gave up on everything when my husband died.
Now I had an llmd appt today and he feels it is babesia and lyme again. He is starting me on coartem 3 days a weeks twice a day and then two weeks off. Adding in ominicef once again in between since it is the only abx I can handle.
Anyone use coartem before and have issues iwth it, before I start and did it help you?
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
I did have a lot of issues with it - brought out all the symptoms and herxing and all but I felt it really did help.
But I did nothing after taking it and within two weeks it was back. So consider another babs med to take after you finish.
Posts: 581 | From CT | Registered: May 2008
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posted
hi- first of all i am so sorry about your husband, it must have been a very difficult time.
i tried coartem last yr-only one round, it did squat and i was actually terrified to take it with the heart-stuff people were posting about. i do agree w/ opus to take another babs med to follow, which i didn't do... good luck i'm sure it will go fine.
Posts: 195 | From - | Registered: Sep 2011
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
i take it, have done about a dozen rounds now. It works great for a week, then symptoms come back again. I take it with larium, which keeps things under control, but it never seems to get rid of it.
but i'm a tough case, I did mepron for two years, and have tried everything else. The larium and coartem so far are best combo
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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posted
My llmd called me tonight and said not to take it that he found out it would be a problem with my beta blocker that I take for my blood pressure?
He changed it to biaxin and said that would handle babs and lyme? I am glad he did further research on my other meds or I may have had a bad problem..
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
annier, I know i am seeing this late, but I'm so glad that you are getting treatment again!!! Finally.
I am so sorry abut your husband; what an unbearable grief, and on top of an already horrible illness.
I hope that things start to improve from here.
Posts: 3771 | From around | Registered: Mar 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I've done three rounds of Coartem and I too feel it definitely has you herxing but does seem to do its job.
Another thing I noticed is that my LLMD would have me do the round of Coartem, take a break, then do the Mepron/Zith combo. Then back to Coartem.
I found that this made the Mepron seem a lot stronger than when I had just taken the Mepron for long months.
Everyone is different, but I would definitely give it a try if your LLMD is recommending it.
I'm sorry for your loss.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Coartem made me feel normal... and then they followed with malerone. Very good stuff. I am guessing I will be going this way soon as they pulled malerone to see where I am and UGH the foot pain is back... It looks like it is BABS not Bart afterall... but I don't feel I know anything anymore with all of this... Posts: 859 | From Southeast | Registered: Mar 2011
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willbeathhis, I am trying to distinguish bart vs babs symptoms. how did you know yours was babs not bart?
Posts: 99 | From NJ | Registered: Mar 2010
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posted
I had increased anxiety, just very overwhelmed while on it, different than my usual anxiety I cant describe it exactly.
Then after I went off I felt the best I had in a while. Im due for another course of it as soon as it comes in. apparently it's on backorder.
-------------------- Psalm 119:50 My comfort in my suffering is this: Your promise preserves my life. Posts: 292 | From Heaven | Registered: Jan 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I am on day 2 of Coartem and feeling nasty.
LLMD switched up my babs protocol. HAd me stop all meds for 3 days. Then 3 days on the Coartem and a 3 day flush before starting meds again.
I am feeling all my old symptoms coming up again. Things that I recall feeling years ago but honestly some of my symptoms that are emerging while on Coartem do not ALL feel like Babs. Kinda feels a bit like Bart but who knows..
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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