sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
CVS was unable to fill my RX for Alinia. Said it is on backorder with no date for when it will be available. The pharmacist said that is not a good sign, usually they give a time frame within 1-2wks unless there is some manufacturing problem.
Doctor wanted me to try Alinia to see if it might help with my stubborn babesia symptoms.
Have any of you been able to fill your Alinia RX's at a chain pharmacy? I can't use Walgreen's due to my insurance co. Could use any other pharmacy.
Thanks!
Posts: 5237 | From here | Registered: Nov 2007
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
Looks like it might be awhile before anybody is getting any.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Alinia is a cyst buster right? Lucky you its covered. my insurance doesnt cover it and it cost a fortune.
-------------------- Posts: 215 | From California | Registered: Sep 2011
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I think it's actually being used in some parasite treatment protocols.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Maybe it's available under a different name by another manufacturer?
Nitazoxanide, also known by the brand names Alinia and Annita (and by Daxon, Dexidex, Kidonax, Mitafar, Pacovanton, and Paramix in Mexico, by Nitax, Zox, Nitazox, Niazid and Toza in Bangladesh) is a synthetic nitrothiazolyl-salicylamide derivative and an antiprotozoal agent.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Kramberry, I have no idea if my insurance will cover it. We didn't get that far because CVS couldn't order it for me.
Thanks kidsgotlyme, my doctor is not really into treating parasites. I have been tested before with the standard unreliable cultures and results were negative. My doc will not treat without proof (which is understandable).
So the Alinia trial would be used to treat babesia which is something that I have tested positive for and can't seem to get rid of no matter how hard we try.
I will have to call around tomorrow to see if I can find a local pharmacy that has it in stock. If they can't get it, maybe a canadian pharmacy will have a generic available? That might be a better option if my insurance won't pay.
Posts: 5237 | From here | Registered: Nov 2007
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posted
No one in the US has it right now-- its back ordered. I had to order it from canada and have it shipped.
Its all of the above, cyst buster, parasite and babs treatment
Posts: 844 | From CA | Registered: Apr 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
sparkle, interesting find, thank you for sharing! I did not know the history and potential uses of Alinia. Sounds like we may hear more about this one in the future when more of the clinical studies are complete.
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Yes, it seems like a beneficial drug. It's fairly expensive drug, though. Wonder why there's a shortage.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Dr. K. has been prescribing it for many years. It's long gotten through trials. It was in great demand when HIV/AIDS years ago was a major problem and one had to buy it through a club only and at outlandish prices. Now the cost out of Canada is a fraction of what it used to be. If insurance doesn't pay for it, it's best to get it from Canadian pharmacy. Marks Marine in Vancouver BC. I have ordered it a number of times and had no problem with any of it. Babesia is a protozoa and Alinia works for many of these invaders, the ones we have a name for and the ones we don't have a name for, across the board. Dr. K. always puts it together at the end of some of the other antiparasitics used.
If you have a name for some of the parasites, that much the better. But Alinia works for more than a few. Dr. K. also never attempts to individually determine which parasite. He and I also have a testing tool holding the frequencies of many different parasites and if Alinia matches the frequencies, it is going to be a hit when used and timed and taken long
Parasites can enter any area of the body, including the brain. THERE IS NO LAB TEST TO GIVE PROOF FOR MANY OF THEM --- IF THEY LEAVE YOU EXHAUSTED AND EVENTUALLY HALF DEAD, THAT'S PROOF ENOUGH FOR ME. Parasites rob us of our life force. They live off our life force and the food we eat. Further, besides loss of nutrition and cellular damage, the toxins produced by parasites play havoc with our immune system. An infection can mimic other diseases, such as irritable bowel, chronic fatigue, Crohn's, fibromyalgia, joint pain, depression, etc.
That is one reasons Dr. K. is so adamant about treating these critters. Parasites are highly intelligent in their ability to survive and reproduce. They hide in body tissues and avoid being caught for many years. They are harboring toxic metals and it takes killing of parasites to unload some of the toxic metal burden.
This should have gone under a different thread, but I assume anyone reading about Alinia will want to know as much as possible about the variety of parasites. Whatever one does, it takes longterm attention.
There are many different types of Babesia, and I think we can test for two only!!!
We have just passed Full Moon, and during that time and New Moon parasites detach from the walls of the body's organs to breed and lay eggs.
You may want to invest in "Accidental Cure" by Simon Yu, M.D. -- an awful lot to learn about Lyme or look-alike Lyme. I learned a lot from him when he was speaking last year at a Dr. K. seminar.
Always more discovered and more to learn.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
I had the same problem with availability of Alinia. See if you can take a substitute? My doc switched us to Tindamax as a replacement for Alina.
Posts: 101 | From USA | Registered: Jul 2011
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I have expired A.inia that I would like to try. Does anyone think that would be a problem. The reason I ask is that I learned that expired Doxy can cause kidney damage (a little too late). I wonder how many other expired meds can do that.
Posts: 2232 | From USA | Registered: Aug 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I have expired Alinia that I would like to try. Does anyone think that would be a problem. The reason I ask is that I learned that expired Doxy can cause kidney damage (a little too late). I wonder how many other expired meds can do that.
Posts: 2232 | From USA | Registered: Aug 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
re: He and I also have a testing tool holding the frequencies of many different parasites and if Alinia matches the frequencies, it is going to be a hit when used and timed and taken long
GiGi- can you explain more about this?
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Gigi, if Dr. K does not know what type of parasite the patient has, how does he know how what med to treat them with and how long to treat them for?
Does he treat everyone with the same protocol initially and then continue based on their response? Like no response means no parasites, improvements means continue on the meds? I don't know, this is new to me so that is why I'm asking.
What if the patients traveled before and have probably been exposed to many parasites from all over the world? Would Dr.K use the same standard protocol for this person?
I understand that parasites could be a big problem for many of us. It is difficult convincing a doctor to treat when they don't know what to test for and the tests are notoriously so unreliable.
It puts patient and doctor in a difficult situation. We don't want to take unnecessary meds and doctors don't want to prescribe unless they have enough evidence to support their diagnosis and treatment plan.
So what do we do? Those of us that live far away and can't go see Dr.K for his advise on this.
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