posted
Just curious. My husband has developed such a pronounced limp in his left leg and his muscles are all so weak. Just wondered if anyone else has it like this.
Posts: 305 | From United States | Registered: Nov 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I have this pulsating tremor-like feeling in my head and my extremities. It is worse at night.
I also have random twitches and finger tremors.
Head and body tinging as well as brain fog.
I hope they will all subside at some point! I have only been in treatment for 2 months.
Posts: 2386 | From New England | Registered: Aug 2011
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posted
lyme o, Yes, I have had that same thing for years. I'm was better for awhile, but not now.
I had the walker to walk with at 38. They diagnosed MS, but then recanted. My R leg was the weaker. I had some PT, which did help my balance quite a bit. I've been to PT 3 times, the one time was the only thing that really helped me. They did anodine therapy..not sure exactly on the name, having trouble remembering..It's infrared lights hooking up to pads that are placed on the affected area (my feet and lower legs) for pain relief.
I was also diagnosed with peripheral neuropathy and that may be the dx they used for the anodyne therapy. Not sure.
I was fitted for braces for both legs. I was told I'd be in a wheelchair by 3 docs in less than 2 years. Well, after I finally got someone to treat "lyme", I began to improve and no longer needed my braces at all. (after a couple years on abx)..my reflexes in my legs were returning. Right leg did not "kick" when hit with the hammer at all, and when I improved it did.
I did well for 4 years and now I'm in decline again. I'm not exactly sure why, but have been told that I have coinfections left untreated, which my llmd refused to treat due to the bloodtests being negative. However, he admits the blood tests for those are VERY unreliable.. So, what gives?
I am about to try a new antibiotic for Bart to see if it will help my feet and legs at all.
THe drugs I'm on now for the pain in my legs (primarily) are morphine, oxycodone, and neurontin. They still hurt 24 hours a day every day
best of luck to you and hubby! Oh and make sure his B-12 levels are checked..that was big problem for me.
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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posted
Thanks everyone. twicebitten, thats the funny part. He has absolutely no pain and never has. One day he just started limping. And since then, everything else has kicked in. Alot of ALS symptoms, but also Babesia symptoms. Thanks for your input.
Posts: 305 | From United States | Registered: Nov 2011
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
tingling in arms and legs, body zaps, possible nerve dysfunction in throat causing the difficulty breathing
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Brain fog, mood swings, irritability from Lyme being in brain causing inflammation. Personality changes.
Also tingling, feeling like a tiny fish is swimming very fast up my arm.
Orthostatic Hypotension. Cannot endure prolonged standing or sitting upright. Told that is due to nerve damage.
Many of these symptoms improved with Knotweed. And the antibiotics seem to helping also.
Posts: 1358 | From Midwest | Registered: Apr 2009
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