I wanted to add my IGG test result to my original post.
My IGM band 23-25 +, band 31 IND, band 41 IND. my IGG had bands 31 IND, 34 IND, 39 IND, 41 ++, 58+.
I have lots of symptoms that I don't see others have. I have horrible eye/brain symptoms in that my eyes sometimes feel they are filled with spices and very hard to open. After reading for a few minutes, they get so tight and sore. My brain right side feels not balanced with left side, sometimes I cannot think at all as if it's filled with glu. It's been really hard with work.
I now get those frozen type of feeling on my legs/arms and back, they come and go. I feel the tightness with my arm/back when using them. The aches had increased to more places and the joints in my fingers/wrist/knee start to hurt now when I use them.
The oval shaped patch on my right upper chest never goes away and sometimes darkens in color.
Does this still sound like Lyme?
Thank You!
Posts: 8 | From Winnipeg, Canada | Registered: Oct 2011
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I started having sensory problems: sensitivity to light, difficulty reading, eyes not working right, eye muscles ridiculously tight. I also still feel like I cannot think at all, as if my brain's filled with glue.
All of us differ in our symptoms. However, the key is to find a good LLMD. He/she will be able to determine whether or not Lyme and co-infections are at the heart of your problems.
I saw an LLMD as a shot in the dark, after getting no answers from my Drs and specialists. I had watched "Under Our Skin" and saw myself in their stories. Thank goodness I did.
I do not have a CDC or Igenex "positive" Western blot. However, my Igenex labs show definite signs of lyme. Couple that with my symptoms and clinical exam done by a competent LLMD....turns out I have lyme (and a bunch of co-infections that the ID dr's would have never thought to test for).
To be CDC positive, I think the tick that bit you would have to walk to the CDC offices and actually tell them "hey I bit him/her and I have Lyme".
I hope you find an LLMD to help you.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).
39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.
41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.
58: Heat shock protein.
In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93.
[---- from DR C's update from 2005 --- ----The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.----]
----Dr C of MO
+++++++++++
As you can see, you have plenty of Lyme-specific bands. Nothing but Lyme can cause those to show up on the test.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
North Dakota and Minnesota are near you. I suggest you contact lyme support groups in these states (see Support Groups on left side of page) and ask them who the best doctors are for lyme treatment.
There is generally a wait to see a good lyme doctor. But, with this disease, you want the best doctor you can possibly get. This way, if the doc says you have lyme, you will have confidence in his diagnosis, and his treatment will work.
Many doctors treat lyme disease, but only a few know enough to cure a person of this disease. Your job is to find one of those few.
We will help you all we can.
The best document to read is the Burrascano Lyme Treatment Guidelines found here:
Lyme Borreliosis (LB) is diagnosed clinically, as no currently available test, no matter the source or type, is definitive in ruling in or ruling out infection with these pathogens, or whether these infections are responsible for the patient's symptoms. The entire clinical picture must be taken into account, including a search for concurrent conditions and alternate diagnoses, and other reasons for some of the presenting complaints. Often, much of the diagnostic process in late, disseminated Lyme involves ruling out other illnesses and defining the extent of damage that might require separate evaluation and treatment.
Consideration should be given to tick exposure, rashes (even atypical ones), evolution of typical symptoms in a previously asymptomatic individual, and results of tests for tick-borne pathogens. Another very important factor is response to treatment- presence or absence of Jarisch Herxheimer-like reactions, the classic four-week cycle of waxing and waning of symptoms, and improvement with therapy."
Notice that even in 2012 there is no definitive lyme test. The doc will put you on lyme treatment if he suspects lyme and that will tell the tale. See last sentence of the quote.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
it's pretty obvious to me you have lyme based on those results, and i believe any decent llmd would agree! i hope you are able to find one!
Posts: 442 | From usa | Registered: Oct 2010
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