posted
I had not been diagnosed with Lyme when I had both of my young children. I had them both naturally and then breastfed them both until 9 months and 7 months old. It was a few months later that I was diagnosed with chronic Lyme after a Western Blot tipped off my primary care physician. The disease has quickly progressing and I'm undergoing heavy treatment now. I'm wondering if I should have my kids tested? So far nothing appears out of the ordinary but should I be proactive? And what should I do if the tests came back positive? Besides worry incessantly.....
Posts: 6 | From Raleigh, NC | Registered: Feb 2012
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
You're not alone. I've been wondering the same thing with my kids and I look forward to hearing others' responses to your post.
And I don't even know who I'd take them to to treat them if they do have it. It seems like the options for pediatric LLMDs are even more limited. : (
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
I'm glad I had my son tested. He is Igenex positive. He had very frequent illnesses since birth. He also developed sensory issues and autism traits. So, once I made the connection that I had tick borne diseases and Brucella, a lightbulb went off and I took him to see my LLMD.
In my case, it was obvious something was wrong. I just didn't know what.
My teenage daughter is healthy and, for that reason, I feel there is no need to have her tested at this time. (Even though myself, my husband and son are all sick).
You guys are definitely not alone
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I have one child with PANS, Lyme induced, symptoms from birth. 2 other children healthy and completely neurotypical, I will not have them tested.
Our LLMD says if there are no symptoms, they do not treat.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My sickest was obviously in treatment.
We decided to treat out positive oldest son who has mild symptoms. Things we thought were normal weren't. Thought TMJ pain was from braces, thought hip pain was from sports, told swollen glands was the way he was. Since treatment all of that is gone PLUS he says he can focus better and he is less irritable.
Part of our decision was the fact he was like a ticking time bomb and he was going off to college. That might have been the stressor that did him in.
With Lyme testing then we found out his testosterone was low, his cortisol was incredibly low and his vitamin D was depleted. I will always wonder what he would have been like if those things had been treated earlier.
My sister thought her son was symptom free until she really started watching him. He had light sensitivity and his shins hurt when she touched them. More things are slowly showing up at age 5.
I watched my son decline until he hit bottom. Puberty is a hard thing on kids with Lyme.
I would want to know. If an emergency came up, maybe the testing would explain it or be helpful. What if there was an issue and prednisone was needed? I'm a "what iffer?" so I would have to know. Maybe wouldn't treat, but would need to know.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
My eldest son didn't show signs till he was ten years old and got a Hep B vaccination. It was immediately to much for him. My youngest didn't show signs until he was four. We didn't find out what was at the root of this until I was diagnosed in 2008. They are both positive.
I would definitely have them tested and think long and hard about vaccination schedules until you know more.
I am not a Dr. Just a Mom
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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posted
Yes by all means have them tested. Do not wait like so many of us have done only to find out years later that they do have Lyme. Why wait and wonder. Do it now! sick
Posts: 538 | From Iowa | Registered: Apr 2006
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