posted
Weakness started in my shoulder 4 years ago and has now spread to both shoulders and hip joints. I've lost large major muscles and it continues to worsen.
I'm treating Protomyxozoa Rheumatica with Ivromectin and doxy but it hasn't stopped it. Maybe I should just throw in the towel and accept that I have ALS, pack it up and die.
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
sweatie this belongs on medical questions.....I hope a moderator see's it to move it..
you're in an area with LLMD's ,right? Do youn have one?///
You're not being treated for co=infections???/
I'm still fighting , not as bad as this.....
But I have been so weak at times and fatigue galore.... along with the rest ...
What does your LLMD say?????
I"LL PRAY FOR YOU>>>>>>> Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Have faith. Do u have appt soon? Maybe you can push it up. Call your doc. Good thoughts.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
I hope you have the very best LLMD available. You can beat this with the right doctor and the right diagnosis and meds.
praying you find an answer soon!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
2young. Don't give up. Keep your protein intake up. Keep treating. You just gave me a big lump in my throat....I feel your desperation. Hang in there. Muscles need a lot of protein in order to survive...
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I second the protein intake. A friend of mine who has aids, eats a LOT of protein when he went into muscle wasting. It stops it and he is in much better shape.
Maybe some heavy duty protein shakes + eating some meat etc could help. Praying for you...Don't give up!!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Don't ever give up. We all know what it feels like to get your hopes up when starting a new protocol. You just never know what will work and what won't.
I'm with manybites about the Babs and Fry bug treatment. For some, the Ivermectin/Doxy isn't enough.
Can you add to your combo? I don't know what goes with Ivermectin, as it's one of the few drugs I have not tried.
If you plateaeu or lose ground, you need to add or switch. Bea is basically saving her husband (with lots of input from him) by slowly adding meds and herbs until he reaches a level at which he feels improvement.
I understand the fear and desperation. But don't ever give up.
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
2y2d,
I had tremendous muscle wasting to the point I couldn't do injections due to lack of muscle mass.
Babesia treatment took care of that. I was very muscular prior to babs. Muscles returned in time.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTIONS
Indian J Med Res 124, August 2006, pp 129-148
- by Anura V. Kurpad
Fifteen pages of text.
Excerpt from abstract on page one:
. . . In general, the amount of extra protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . .
[note: see what author states about lysine supplementation appearing to help immune function.] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thanks to HALEY for bringing this to our attention.
MYELIN SHEATH & MITOCHONDRIA SUPPORT discussed here:
Dr. Wahls discusses how MS, ALS, Huntington, & others chronic diseases can be attributed to a damaged mitochondria repair system...triggered by infection, stress, toxins, poor diets, allergies.
her protocal is basically at least 9 cups of fruits & veggies a day. 3 cups dark greens, 3 cups sulfer vegs, 3 cups colorful fruits. A few supplements too.
no sugar, no dairy, gluten free - all things we do anyways for lyme.
She also does/did electric muscle stimulation to help keep muscle nerves working.
Got my TENS/ems machine from LGMed.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
Praying for you.....never give in.... it can take a while to find the right combination/treatment approach...
Posts: 143 | From Louisville KY | Registered: May 2010
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