posted
Hi all, So every time I eat my stomach usually balloons- like I'm pregnant, but I'lm not. I have done extensive yeast treatment with prescriptions and adhere to a strict diet. My LLMD doesn't think I have a yeast problem as I have no other symptoms.
I do have chronic constipation, and Celiac. I do daily enemas to deal with the constipation, for now. I feel constantly bloated, swollen, like I over ate....but I haven't.
I'm also treating for parasites right now...but this feeling has been going on for several years. I also take thyroid meds and am in optimal ranges. And this happens whenever i eat anything, so its not the foods.
Any ideas! I'm so over this symptom!!!
Posts: 844 | From CA | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A few things come to mind (after parasites).
Yeast can absolutely cause this. Absolutely. But you already suspect that. In addition:
1) LIVER. When the liver is distressed or overwhelmed, the belly can swell lots. Your liver support may need a shift.
You might look up NASH Diet (a diet to help address "fatty liver") but also be sure you get plenty of good fats
2) Adrenal dysfunction. Common with lyme.
Google: CUSHINGS Notice the photos or illustrations of the belly in Cushings.
Now, I'm not suggesting that Cushings is going on, however, your adrenal support may need a new look.
3) Sleep dysfunction can cause weight gain around the belly.
4) I assume you are off all processed foods. If not, know that "natural flavors" are usually not natural at all and can cause inflammation.
5) IMO, daily enemas might not be so helpful for a variety of reasons. Be sure your LLMD is on board with this.
MAGNESIUM, Flax meal, and safe regular exercise - are far better helpers for bowel regularity.
There are some Yoga postures for constipation, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
My chrio was thinking liver flukes, because of how i was describing it- and she muscle tested me for it. But i just finished the Dr K parasite protocol which should address them??
I'll look into more liver and adrenal stuff. I know my adrenals have been high for a few years.
For the enemas-- I do not go to the bathroom ever-- its totally non-responsive, and I've seen EVERYONE. So detox is my #1 so I have to do enemas otherwise I will NEVER go AT ALL, EVER. So yea the LLMD knows about this, there isn't really any other option.
My Diet is pretty consistent with the nash diet.
LYMETOO: I'm eating some now, like squash and some grains-- maybe 1/2 a serving a day.
Thanks for the responses guys!
Posts: 844 | From CA | Registered: Apr 2010
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posted
I am eating fruits. I have gone through tons of different diets to try to weed it out-- and nothings really made any difference. So cutting fruit out hasn't seemed to make a difference.
What were you thinking? I'm game for more experimenting :-)
Posts: 844 | From CA | Registered: Apr 2010
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Check this out Whitney: I'm going to, as I have the stomach thing too. From LYMEMD.BLOGSPOT.COM
HIDA scan and Mycoplasma
Sick for a long time this patient had already been to many doctors. Previous treatments included 9 months of Rocephin. She first saw me two months ago. Prominent symptoms included: cognitive dysfunction,depression, weakness, seizures, "TIA", headaches, tingling, joint pain, palpitations, neuropathic pains and gastrointestinal issues. The depression was profound, associated with suicidal ideation at times.
She had a history of sporadic abnormal liver test with marked abdominal pain. Belly symptoms including bloating, nausea, anorexia and difficulty eating which was chronic.
She had dysautonomia and POTS.
There is much more to the story.Of course.
Lyme has been confirmed by IgeneX and Stony Brook. A recent Western Blot showed IgM bands: 41,18,20,30,31,37,38,58,60, The test showed 5 IgG bands.
Physical examination showed tenderness over the gallbladder.
The abdominal sonogram was negative for gall stones (it always is).
The HIDA scan was entirely normal. Here's the catch. The injection of CCK which makes the gallbladder contract reproduced her severe pain.
A surgeon friend has found this sign may be associated with gallbladder disease even with normal studies.
Her gallbladder was removed.
Then - something remarkable happened: she felt great, even off antibiotics.
Weakness,cognitive dysfunction,neuropathic pains were all better. Orthostatic tachycardia had improved significantly.
No longer using a cane, she was playing the piano - first time in over a year.
She sent a piece of gallbladder to Clongen for PCR testing for "everything."
The result was surprising: Mycoplasma species. I have no idea what to make of this unexpected finding.
Mycoplasma is an intracellular bacteria. You can never get rid of it.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I have read a ton about mycoplasma. The thing is-- there isn't really a specific treatment, other than to work on your immune system.
This story is kinda suprising because if she had mycoplasma in her gallbladder it would have been in her whole body. I'm gonna go look at the blog.
But i guess if you knock out your #1 most powerful infection than maybe your body can finally recover enough to hit the other guys.
Posts: 844 | From CA | Registered: Apr 2010
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posted
I've done several months of diflucan every day, with no die off reaction and no change in stomach issues.
i've also tried other anti fungals, both prescription and herbal with the same results. That s why i say I don't think its yeast.
Posts: 844 | From CA | Registered: Apr 2010
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posted
But wouldn't there be some sort of reaction, change or die off?
I guess i didnt think eating fruit automatically meant I had yeast issues. Are most lymies not suppose to eat any fruit at all?
Posts: 844 | From CA | Registered: Apr 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
If you are chronically constipated, I would try some Oxy powder before bed and clean yourself out- you may have a blockage-
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
I've treid oxy powder. It didnt do anything for me. When i say totally unresponsive-- thats what all the Dr's have called it.
Theres no blockage, its been this way for several years and Ive had it checked out with GI dr's who have done ultra sounds, colonoscopy, small bowel follow through and endoscopies.
So we've seen actual pics showing no obstruction.
Ok-- thanks lymetoo. I'll talk my my Dr too and see what he thinks about it.
Posts: 844 | From CA | Registered: Apr 2010
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posted
I haven't been tested for it. But I am trying out Reglan. (I know there are side effects, so i'm on alert-- big time. Its helped a little with the constipation, but it doesn't make me feel like I'm...unconstipated?? And it has not relieved the full feeling.
I'm going to give it some time. I know whatever it is will take a while to resolve.
Is there a test for gastroparesis? Thanks for all your help Lymetoo!
Posts: 844 | From CA | Registered: Apr 2010
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posted
yes, theres a test for gastroparesis. they monitor food and time it in your stomach. if it takes longer than a certain amount of time, they give you the diagnosis, not much they can do. ive lived with this problem and have tried it all as well. only thing i found that beats it is low carb/no carb. nearly impossible on an already limited diet. but it absolutely works.
Posts: 184 | From taking pills | Registered: Oct 2011
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Can you tell i'm desperate-- you probably posted about 30 seconds ago and i'm already on Amazon-- lol..
Thanks In199444
Posts: 844 | From CA | Registered: Apr 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
My daughter had a lot of stomach issues (chronic constipation, yeast, etc.) before we found Lyme, before antibiotics.
We did the Metamatrix stool test- worth every penny. Told us she had staph, parasites, it told us high yeast, but could not identify the strains, so most likely mold.
And, it is unique in that there is a DNA component with the test,
it gives a printout with antibiotics and anti-fungals, prescriptions and naturals, that will be effective and which ones that won't.
Just a thought.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
The GI tract has nerves that make it work, just like the heart and a lot of other things. Lyme affects the nervous system. Google autonomic nervous system and see if anything rings a bell.
So, in addition to the other suggestions that have been made, perhaps consider that lyme is doing this. Unless you had this problem long before you got lyme, and are sure of it. Some of us had odd symptoms which we never associated with lyme at the time.
Posts: 2888 | From USA | Registered: Mar 2004
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Yes, do be careful with Reglan. It began giving me facial tics. I fortunately found out it was the Reglan just in time. Stopped the med and in one week the tics went away. They CAN become permanent.
There's another drug you can get from Canada if Reglan doesn't work out.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
If you have neurolyme reglan is a big no no. The drug from Canada is called domperidone . I immediately thought gastroperisis . I was tube fed for 9 months and couldn't eat bc of it. Feel better.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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I had the memetricss test and it came back normal for all yeast, parasites :-( I've had it done a few times. Its a super cool test, I just wish it was my problem.
I've pretty much decided that my stomach issues are from Lyme, they started about the same time. I just wish there was something to be done before i go into remission...whenever that is.
That sounds awful Gatorade girl! I do have donperidone. I told my Dr I was nervous about taking Reglan (i do not have neuro Lyme). They said either was fine, and that they hadn't had any patients have side effects from the Reglan.... so I'm just monitoring it super close.
Posts: 844 | From CA | Registered: Apr 2010
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posted
Tests for yeast are worse than tests for Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Dysbiosis (bacterial imbalance in the gut) is a common cause of bloating after eating and one of the main symptoms for me. Does not mean you have candida for sure. Abx treatment can make dysbiosis more likely.
I had a test from Diagnos-techs recently and found that I have strep and klebsiella pneumaniae in my gut. Also lots of inflammation and parasites. See a good naturopathic doctor who can run the proper tests and find out what the issues are so they can be treated.
Hope you get answers.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
You don't have neurolyme????
Lyme is a neurological disease.
Posts: 2888 | From USA | Registered: Mar 2004
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I had horrible constipation from Lyme. My colon would not move anything without extreme measures.
Magnesium, lots of water, exercise, reducing constipating foods (cheese, chocolate, white bread/flour, gluten, etc.). And then I started getting somewhere with Lyme treatment and my colon started working again.
It is the Lyme. Lyme paralyzes the abdominal muscles, causing the abdominal distention. Lyme shuts down the nerves that control the muscles in the gastrointestinal tract.
I still have Gastroparesis, still am working on killing the Lyme that I know is causing this motility problem for me. Getting gluten out of my diet did help a little, so did getting rid of the gallbladder.
But those things were only partially responsible for my gut troubles - the Lyme and Bart. are the biggest culprits.
Domperidone is safer for those of us with leaky brains because Reglan gets into the brain and can cause neuro damage/permanent disorders. I can't take reglan for this reason.
But I'm fine with domperidone. I get mine from a pharmacy without the need for a prescription (though my doctor knows of my use of Domperidone and supports my using the medication)...PM me for more info about this.
Also have found homeopathic medicine helpful for my gut problems - Nux V. for nausea, Lycopodium for abdominal distention/indigestion & gas, Aurum Arsenicum helps most with the sluggish bowels...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
Poppy-- some people have neurological symptoms, that is usually what i consider to be nuero Lyme.
I do not have neurological symptoms. I will try tomorrow with domperidone. I got it compounded and it was spend-- but i can prob get it cheaper. Razzel how much does yours cost?
I did nix vomica too-- it made me crazy! and didnt help :-(
I'm sure i have imbalanced gut flora, but what else can you do besides control diet, take probiotics and enzymes, and anti-fungals. GRRRR!!! LOL.
THANKS guys for all your thoughts.
Posts: 844 | From CA | Registered: Apr 2010
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posted
Have you tried "tru fiber" which is made by the company that makes theralac? I switched to it a month ago and things have definitely improved. I used to take 2 capfuls of miralax a day along with benefiber but now I am down to 1 capful (and sometimes I dont need that) along with 2 scoops of "tru fiber".
I am not sure I would agree on the tasteless part but I like the fact that it serves as "food" for theralac.
Posts: 854 | From Somewhere | Registered: Nov 2010
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I have the type of constipation that doesn't do well with fiber. I think my digestion is too weak for it. But I'm willing to try anything-- so I will def take a look at it.
Thanks Terv!
Posts: 844 | From CA | Registered: Apr 2010
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