Topic: Results in from Advanced Lab - Bb Direct Culture
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I see the word "positive" mentioned twice.
I think this must mean I finally have a diagnosis.
I am shaking and don't know what to think. After all these years and all the tests.
All inconclusive.
I still cannot believe this.
I had called my GP's office on another matter - and was surprised when the nurse told me that I had a test come back positive. Which test I wondered. I had given up on the direct test - assuming negative - since it has been ten weeks since my sample was sent to the lab. I guess my culture grew just days before the cut-off date. I was told to see an ID.
Just received copy of the report. Have checked it ten times to make sure it is my name and there is not a mistake.
The "other matter" was my ER stay last week - I needed to see my GP as follow up. In the ER I received IV Rocephin for acute bronchitis. What a coincidence. At the time I did not think I had LD. It was a miracle drug. I felt like a different person after two infusions. The acute bronchitis seemed to resolve - and everything in my body seemed to have calmed down.
Days later I feel all symptoms again.
I have been sick for 15 years - very sick past five. I am one hour into knowing I have LD.
posted
Positive for what? Is this the new Lyme test?
NO, you still won't believe it!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Tutu - Lyme test. Borrelia B.
All the Igenex Bb antibody, PCR, IFA tests neg.
Epitope tests on bands 30 and 31 negative.
All the co-infection antibody, PCR, FISH tests neg.
The only thing I had to hang my hat on tick-wise was the last Bart test with IGG 40.
I was recently told by doctors that I needed to go to Baylor for testing and diagnosis. I have had the "fear" of having to do that past months. I had decided that if the new AL Bb test was negative then I was going to "cave" and go to Baylor.
Now I have the answer I have sought for so long.
I had convinced myself my reactive bands were cross-reactions.
No - I still don't believe it.
Yes I do - because I am wondering when and where I became infected.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Susan,
I'm glad you were able to do this test. I'm sure you will have mixed emotions for a while about the results but at least now you are certain about at least lyme - and can move ahead with that information. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For those wondering "which test?" - here are some details about this new Borrelia Culture Test:
posted
"Nope" to aperture. I was clinically diagnosed.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Everybody is different. It appears to me that susank needed this test for HER to know for sure.
So, I was celebrating with her.
If a person is not convinced they have lyme, it is difficult to persevere with lyme treatment. That is what I have observed over the years.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Hi susank, Did you treat with antibiotics before the culture test? If so, persistence is once again proven.
I hope you get good treatment and feel better soon.
Posts: 300 | From Northeast | Registered: Dec 2006
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Ugh - the doubt is creeping in again.
Someone please assure me that IVIG could not have effected the culture test. I know there can be Bb antibodies in IVIG - but they would not grow/culture. Bb cannot otherwise be transmitted via IVIG right? IVIG is "washed" of such things, right?
In support - my H-NK cell count: 32. HLA - I am 15-6-51. Chronic Lyme/susceptible.
Tutu - all the bands I reacted to other than the double starred are believed to cross-react.
My specimen waiting until the tenth week to reveal itself could be due to: low load or my "strain" is a slow grower.
A low load and/or slow grower is better than a high load and fast grower, right?
Oh, Allie - yes - had taken Abx on/off past years. Never continuously but six weeks then off. IIRC this done mostly for challenge tests. I did not feel the Abx did anything for me. (I think another reason I doubted Lyme as a Dx).
TF - exactly. Thanks.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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