Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lyme Family >>>>>,
Doctor is worried about TxCoord's kidneys,and TxC' cannot walk without anti-inflammatory meds.
We could both benefit from ,safe for kidneys,anti-inflammatory supplements.
So far I have tho't of Turmeric,and Wild Cherry as a help,we found some Turmeric for around $5.00.
They also want TxC' to try magnesium [which I take to a avoid cramping]. More and more we see Lyme and co' symptoms,but VA will not address it.
We are taking a good fish oil blend,and Vit.D3. Any tho'ts on what else we could do to ease Osteo-Arthritis [and most likely Lyme arthritis]...anti-inflammatory benefits?
I use methylcobalamin B-12,am out but when I can get more,I was wondering if that may help TxC' as well?
He loses ability to walk,or really,move without the anti-inflammatory meds.
Thanks for any tho'ts on supplementation.We appreciate it greatly!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hmm, also noting that adding taurine w/ the magnesium may help protect the kidneys for those of us with diabetes...when used in moderation!!!
This is interesting, and again,any input/ideas would be so very greatly appreciated!
Thanks from Silverwolfi and TxCoord
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hmm... anyone... any other tho'ts/ideas ???
I... been...searchin' !!
Jus' Silverwolfi the Storytelling-Sleuth
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I too am trying to get off ibuprofen. Things that have helped me to reduce dosage: tumeric, lots of fresh ginger (in smoothies, tea, cooking), zyflamend. If I am consistent with the green tea I have less pain (I use Tulsi pomegranate and add ginger). Also, arugula (and other greens) seem to give some relief. It is very difficult. I'm not there yet, but have reduced some.
Posts: 69 | From Birmingham, AL 35242 | Registered: Sep 2008
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Hammer >>>>>,
TxC' has been on a prescription [Diclofenac] even low dose the NSAID's are so dangerous for us,especially kidney wise.
We've just started cooking w/ the turmeric... we'll try the ginger too [ yum!!! ].I like green tea and I think we could find some that are not to costly that TxC' will like!
Have to check out the arugula, we've heard that asparagus can be of help too [in moderation ...er IBS considerations here].
Hmm is Pomegranate supposed to be anti-inflammatory as well? I've heard it is good for antioxidant help! I just recently read about Zyflamend too...
Thanks for the ideas and info' ,we appreciate it !!!
Jus' Silverwolfi and TxC' here...
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Curcumin should be OK. I get mine much cheaper at Swanson's Vitamins. (not cheaper than $5.. but the best I've found and it's way cheaper than at the store)
I buy the NOW brand. It's awesome!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hey <<<<< Lymetoo >>>>>,
We have a fantastic compounding pharmacy here, that sell the NOW brand... I'll see if they have it there!!!
If I can find it fairly reasonably priced, that would be great!!! Thanks for the suggestion !!!
Jus' Silverwolfi and TxC' too!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Since I can't take NSAIDS (I'm allergic to every one I've tried, and also allergic to Tylenol), I had to find other ways of coping with pain.
I find Nettle Leaf Powder to be very helpful for my pain. I take 1/2 teaspoon daily, sometimes a little more.
I have no idea if Nettles are ok for those with kidney issues. I do know nettles help to detox uric acid (good for gout).
Another option is homeopathy. It doesn't cost much (under $10 for one tube of 80 pellets).
Before I discovered Nettles, I discovered that homeopathic Causticum helped me enormously with the pain in my hands as well as leg pains. It also helps me with restless legs sensations in any joint.
Another good homeopathic remedy for nerve related pain is Hypericum. Has cured some pain for me (injury related).
And finally, homeopathic Arnica is a general purpose pain remedy...for pain from injury, but it can sometimes help with other causes of pain.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Razzle >>>>>,
Thanks for the suggestions, will do some checking and more research, gout can be a problem for us.
The pharmacy i spoke of is now carrying homeopathic remedies,so we can check prices and such.
TxC's Dr. has been really concerned about the NSAID type meds...but TxC' literally loses mobility abilities w/o something to stop the inflammation .
Without the anti-inflammitory meds, he cannot sit up,stand up etc..He becomes bedridden- fully, w/in forty-eight hours w/o medical anti-inflammatory medication help.
But His PC here in town is really freaking about the NSAIDS. Slower kidney function is a concern. His Rheum'y Dr. understands the situation.
Still we are trying to find the best options to be effective, w/o further risk to the Kidneys,for my TxCoord love.
And as most all NSAIDS' ruin my stomach, and cause serious IBS issues for me...less inflammation, less pain, easier ability to move and do the daily things we need to, and want to is a plus!
We'll be researching,checking links and so on. Long day yesterday,so we're resting today, and around home.
Tomorrow,we'll venture out if weather permits! And hopefully we can get some supplements. Finances are tight,but one day at at time, one supplement/and/or homeopathic at a time.
Just Sleuthing Silverwolfi,and TxC'too
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Topic: Looking for long term pain management -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Keebler >>>>>,
Thanks for the link info'!!! I am hoping that we can find a number of easy on the body and kidneys/liver options, reduce inflammation /and reduce pain too!!
That would be fantastic... off to explore more !!! I am going to check on the differences between corydalis and cordyceps as well [are they related?].
We had a fantastic supplement a few years ago, that really helped keep our immune systems from getting too overloaded w/ the cordyceps mushroom in it.
Silverwolfi researching !
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Cordydalis is NOT at all related to Cordyceps.
Corydalis is for pain management and sleep.
Cordyceps is one of the very best kidney "channel" supports. Good for lungs and adrenals, too. I had come back to suggest that, too, as support.
PubMed -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Ah ha,
Cordyceps 'fungi' and ,corydalis tuberose. And it looks as tho' both are helpful,with anti-inflammatory properties!
Cool, we are getting some good options here to try,...will add one or two things very slowly,as finances permit, and see how it goes.
Thanks so much each one <<<<< Lyme Family >>>>>!!!
<<<<< Keebler >>>>>, we were typing/posting at close to the same time!!! Thanks for teh links and info'!!!
The kidney health/and protection is so important, especially now for TxCoord,and I need it as well!
Silverwolfi and TxCoord' researching along!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
astaxanthin, arteries - 8 abstracts -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Keebler >>>>>,
Thanks for the links,they are so helpful!!!
Will continue researching... we do feel better armed to deal w/ some of these issues now!
We've been struggling so...no one wants to be stuck in bed or the chair,if there is a possible safe way out. So many have to go thru this.
I am truly grateful, each time myself or TxCoord can walk, can get up from the bed or chair! I have been really concerned for my TxCoord!
<<<<< LymeNet Family >>>>> Thank you for being here to help!!! BBL
Jus' Searchin' Silverwolfi [and TxCoord too].
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You probably already know that ibuprofen can sometimes damage kidneys (just as acetaminophen can sometimes cause ashtma and can block the liver's detox abilities) . . .
Ibuprofen constricts blood flow. This can pose problems.
National Kidney & Urulogic Diseases Information Clearinghouse (NKUDIC)
Analgesic Nephropathy (Painkillers and the Kidneys)
Excerpts:
. . . Analgesic use has been associated with two different forms of kidney damage: acute renal failure and a type of chronic kidney disease called analgesic nephropathy. . . .
. . . Some patient case reports have attributed incidents of sudden-onset acute kidney failure to the use of over-the-counter painkillers, including aspirin, ibuprofen, and naproxen sodium. . . .
. . . A second form of kidney damage, called analgesic nephropathy, can result from taking painkillers every day for several years. . . . .
. . . Ibuprofen may also increase the risk of chronic kidney damage, . . .
The popular pain reliever ibuprofen can cause kidney failure in people with mild kidney disease, according to a new study.
A three-year study on the drug was reported today in the journal Annals of Internal Medicine. . . .
. . . gave participants above-normal doses of 800 milligrams of ibuprofen three times a day - the equivalent of 12 ibuprofen tablets - for up to 11 days.
After eight days, three women developed kidney failure, which reversed when ibuprofen was discontinued. The remaining nine women, who received ibuprofen for 11 days, showed changes in kidney function but did not develop kidney failure.
After recovering, the three women were given 400 milligrams of ibuprofen three times a day, equivalent to normal doses of the drug.
Two of the three again developed kidney failure but recovered when the ibuprofen was stopped.
Ibuprofen relieves pain by interfering with the body's production of prostaglandin, a substance involved in inflammation. But at the same time, the drug constricts blood flow.
Normally, the change poses little risk if used for a short period.
But for those whose blood flow to the kidneys is already reduced by kidney, heart or liver damage, flu, or aging, ibuprofen could lead to acute kidney failure. . . .
Long-term ibuprofen regimen after brain injury worsens cognition in animal study
2006 -
Researchers at the University of Pennsylvania School of Medicine found that chronic ibuprofen therapy given after brain injury worsens cognitive abilities. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Keebler >>>>>,
Strangely, the same PC who wants TxCoord to go off of Diclofenac [anti-inflammatory], suggested he try Ibuprofen . It seems to be the VA's answer and go to for inflammation and pain.
Neither of us like the Ibuprofen, [for me stomach /gut issues] and it did not help TxC' at all, so we have steadily refused to take it.
We have had to use the Tylenol type product , mixed with Hydrocodone from time to time. TxCoord is careful to keep the dosage down when it must be used ,don't care for it either.
The info' link about brain injury and Ibuprofen regimen, is actually frightening. I wonder how many medical professionals know of this...?
Sadly, I'm not sure TxC's PC would listen to us, if we showed him these links, Kidneys, brain injury and so on.
We appreciate the links, so very much . Thanks again!!!
Jus'Silverwolfi and TxCoord as well!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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