Topic: Who else besides Igenix tests for WA1 Babesia Duncani ? Check out my leg work Inside
lymetwister
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posted
I've called about 20 facilities today. I can't believe what I'm hearing. Before I get 4 Liters of blood transfused in me and 4 Liters drawn off, my ID Dr. has asked for me to test another time for Duncani from another lab other then Igenix just to be sure as they can't find it in my Blood smears.
So, I started with Google, not much help there.
Next, I called Washing State Health Department, where WA1 was named and discovered. Guess what, they test for Microti, but not Duncani. Kind of strange huh ? Not only that, but they couldn't tell me who does. How can a state be known and name a Parasite, but not test for it. I was referred to University of Washington and they test for Microti only too.
So, I called the CDC and spoke with a Parasitologist who told me that they would test me for free and although they test for Microti, there should be cross reactivity to pick up Duncani. Well, I know I'm only an RN, but I had to educate the Parasitologist at the CDC, as there is NO cross reactivity between Microti and Duncani, that is clear in the literature.
So, I spent hours on end today making these types of calls to universities. I know I can send it to Fry Labs, but he's another Igenix according to the IDSA. I think Clongen Labs is yet another known lab, but gonna hit that same wall.
What is super duper amazing is that if you go to pubmed articles, you can read about 70 year old men that came through and ER with a temp of 105.0 and in resp. failure. Somehow, they were able to identify that they had Duncani, but how ? If no one in the U.S. tests for this, how in the world could you make such a diagnosis in these articles and there are many of them.
I'm a bit lost in all of this. I'm better off to pay someone off at the red cross and just do this in my own house.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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posted
I had the same problem and from many calls I finally was able to get it done correctly at LABCORP, believe it or not.
The old name was B.WA1- the new name is B. duncani. Labcorp and Quest still call it B. WA1. If you order serology for B. duncani they have no idea what you are talking about.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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poppy
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Had mine done at a county lab in CA long ago, and it seems to me that IGeneX used to send theirs out to this lab, not done in-house. But this may have changed.
And not even Spiro Stat tests for duncani.
I can tell you for sure that there is no cross reaction between microti and duncani because I tested negative for the first and positive for the second.
Too bad we can't get blood smears analyzed anymore, thanks to the CDC and state of FL.
Posts: 2888 | From USA | Registered: Mar 2004
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seekhelp
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There's something severely messed up as LabCorp won't come up with an IgM test for Duncani / WA-1. Really, that seems awful suspicious to me.
Gary, I agree. That's insanity they ID it on dying people, but have no means otherwise. I would bet a LOT it's identified via blood smear, not antibodies. When infiltrated enough to the brink of death, then.......
I had a 1:2,048 titer for B. WA-1 at LabCorp on the IgG test. My local ID doc cared absolutely less and wouldn't do anymore than 3 days of Malarone two times in three months. This organism is obviously NOT respected. Only the LLMDs and specialty labs seem to care about it. Why I have no idea.
I really often wonder why Fry, Igenex and Clongen are so disrespected. They are treated like 2nd class citizens in the lab world. Is it valid at all or is all mainstream medicine just stacking the cards against them?
Sonoma County, CA is supposed to test for it, but they won't be nice enough to test anyone outside the state of CA I hear. Nice, huh?
Keep in mind, MANY, MANY, MANY test positive for WA-1 on the LabCorp test based on posts here. Even the articles Bea posted indicate over 5%. That's incredible to me.
I hate to say this, but in my sincere opinion, the IDSA would be happy if we all died. I mainly say this because they do everything in their power to prove we don't have things and little to nothing to search for the answer. I find it sickening.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
If you go through my old posts. There is the labcorp code.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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seekhelp
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807177
quote:Originally posted by gatorade girl: If you go through my old posts. There is the labcorp code.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymetwister
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Please find it and give it to me Gatorade Girl. I'll never find it in a search, but I'll try :-)
Keebler, I called Sonoma County and they only do Microti.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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seekhelp
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posted
I just gave it to you one post up Gary!
quote:Originally posted by lymetwister: Please find it and give it to me Gatorade Girl. I'll never find it in a search, but I'll try :-)
Keebler, I called Sonoma County and they only do Microti.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymetwister
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Seek, that code is for Igg only, which only shows exposure. It does NOT show active infection.
You need either and Igm or a PCR.
This might be what Gatorade Girl was referring to.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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seekhelp
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No, see my post a few up. NO non-speciality LAB tests for IgM or PCR on Duncani. It doesn't exist. That's the mystery. This is the only infection that doesn't have an IgM test available from any non-specialty lab. It smells odd to me. I asked many, many, many times. LabCorp/Quest sends this out to Focus Labs in CA - they only do the IgG portion.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymetwister
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Right, I called Focus too today... Yep, just and Igg. Crazy huh ?
MDL, I just found out does the PCR and they take Medicare. Just ordered a kit. Thank god for you guys. I should have started here. Thanks to feelfit for the PM.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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posted
Yep Gary I have all of what Seek is telling you.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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lymetwister
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138315 is for Microti Gatorade. Labcorp doesn't test anything more then Igg for Duncani. Seek is dead on.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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poppy
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If the point of this is to check again for duncani, then it doesn't matter where you get the test, so go with the specialty labs instead.
Even then, as you know PCR only tells you what is in that sample of blood, so false negatives are possible.
MDL is turning up a lot of negatives on everything in recent years, just so you know.
Posts: 2888 | From USA | Registered: Mar 2004
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lymetwister
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PCR is the DNA of the Organism, as a good as a blood smear.
Not sure how one could get a false negative or a false positive. I guess anything is possible.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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poppy
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But the DNA has to be in that blood sample, which is only a very small fraction of the total volume.
Even blood smears must be looked at for quite a long time, many fields, in order to detect a low level infection. And again, a blood smear is only a tiny fraction of the total volume.
Posts: 2888 | From USA | Registered: Mar 2004
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CD57
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I think Sonoma County lab does this, in CA. Call them.
Posts: 3528 | From US | Registered: Apr 2007
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I thought mine was through Igenex for b. duncani? What about Galaxy Labs in NC?
I am curious about your experience with b. duncani since this is my strain too.
I would also like to read the studies on the people in resp. failure with duncani -- did you find them on PubMed?? (but yeah, how on earth did they test??). Also, doesn't the Red Cross test for babesia? Do they only test for microti?
Posts: 929 | From Massachusetts | Registered: Oct 2007
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