Topic: Lyme Slymes- They're watching you & LymeNet
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
How many patients with serious diseases have idiot doctors following them around- digging into their private lives and wasting life's precious hours tormenting the innocent and gossiping about them? Does this make them feel like "big men"?
Anyhow....
The trashy triplets (Phil Baker, The Worm and Halperin) still have you and Lyme Net on their radar- still trying to make sick patients (they've created) look stupid, rather than sick.
You have to ask the question....
Why do they continue to waste SO much time sniffing around here? Can't they find some other hobby to keep them busy and out of mischief?
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"... with this disease (www.lymenet.org/SupportGroups/). Remarkably, active groups even formed in areas of the USA where Lyme disease is not endemic.
Aided by the Internet, these groups have shared information, viewpoints and strategies to lobby for their cause, reinforcing each other�s perspectives and misinformed opinions, thereby setting the stage for the current chaos."
``````````````````````````````````````````` A very wise man recently shared a quote with me that describes this situation, and I had to laugh. So true.
"We must preserve our freedom of speech, that way we can identify the idiots."
To see the way so-called doctors who are suppose to be helping patients are slyming them and the doctors that treat them, see link below.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sometimes people wonder why we haven't gotten any further than we have toward stopping this madness.
The idiots have kept this stuff up for decades, non-stop. They are obsessed with it, even spending their own time trying to hurt us. How do you reason with or make progress in this environment? It is so unbelievably hard, but we are moving forward.
I personally feel we've done a tremendous job... and know with your help we will continue to make progress against the demons. Our lives literally depend on it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
It appears Phil Baker, formerly NIH Lyme program, then retired and went running to be the head of the American Lyme Disease Foundation, which is a Lyme patient's next-to-worse nightmare behind the IDSA, is NOT happy with the blog post Lorraine wrote.
It is rather amazing that he is coming into our territory to speak to her publicly- a first. A bit late in the game after trashing us, our groups and our doctors for years, but oh well.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
It is also amazing that Baker can follow patients on blogs and at the online support groups (like HERE), using their comments against them...
But he can't "see" that an important study with significant results, one that he was responsible for, one that was right under his nose, got published and shared in order to help patients.
Got a coin? Flip it for Baker. Heads he's EVIL- tails he's STUPID.
momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Wow, wow, wow and I say wow again...but wow isn't what I am thinking...wish I could say what I really feel.
How can this be??? Why do they cling to their antiquated ideology? It is all just ignorant conjecture on their part and it literally blows my mind.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
I don't think we should take their comments at face value. I think they have economic reasons for their stand-down.
Insurance companies don't want to pay and have gotten these doctors to front for them, they can make money testifying against patients, they can get grant money, they may still be trying to develop a vaccine, etc.
And think how much every field of medicine makes off of us as we come to their offices for help. The rheumatologist I saw way back when would not accept my Lyme diagnosis when I went back to inform him of it.
Chiropractors aren't being told, at the highest level, what's going on with us - they still think we have fibromyalgia, etc.
Physical therapists treat us with an rx from the doctor. When I went back to see some, with the Lyme diagnosis, they were silent.
Pain clinics make money off of us. When I went back to a major one I had seen, they were silent.
The medical field with a stand-down policy is a cash cow.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Oh, so true. So many of these people have a vested interest in people staying sick - otherwise they'd have no business.
Not to mention the pharmaceutical companies who would rather treat symptoms a la carte instead of treating the illness.
It's also amazing how many people (medical professionals and laypeople) seem to be oblivious to facts and reason. They don't even question any alternate views or see the "big picture."
Besides, if they actually spent the time to try to figure out what was truly causing our medical issues, they would not be able to make any money, given today's medical practice mousewheel. It's all about throughput. Quantity and not quality.
Posts: 348 | From NJ | Registered: Sep 2011
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
We must be making progress.
If we weren't getting 'under their skin', they wouldn't be spending so much time trying to discredit us.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
It's complicated... You have to know that anything posted anywhere on the internet can be hacked, cracked, data-mined or is otherwise transparent. This goes for e-mail, blogs, message boards, & everything.
I still believe we have some freedom of speech... People just have to research everything to go with what feels best to them.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Oh my. Now a lot of the blah blah blah is spilling over onto the blog. Same old, same old. I think he thinks if he says it enough and twists it around enough, someone might believe him?
Yeah, right.
Mr. "American LDF Censor Lyme Documentary" is trying to blame everyone and everything, but himself. Even the journal that published the article! Bet they are gonna hear from him or his slugs over that one slipping through.
Next he will blame his "bury the Lyme info" tricks on the dog eating his homework.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Talk about tooooo funny, listen to this.
"It is ludicrous for any one to imagine that I or anyone else connected with the NIH could have suppressed or delayed the publication of any scientific findings, even if we wanted to do so."
Yeah, right.
What about all those letters from Camp A trying to block Lyme publications in journals and elsewhere that don't fit in the IDSA box, and the letters to try to censor the Lyme documentary?
posted
Several smart philosophers have stated in so many words that the biggest problem facing man/woman kind is that many powerful people have a stronger desire to be right than they do to ultimately survive. Of course from here we can infer that these folks have a stronger desire for their ideas to be correct than for real people to survive- especially if they die slowly and from so many eventual reasons. j
posted
And also the fact that 1000s of pages of evidence for chronic Lyme were submitted during the July 2009 hearing for review of the IDSA guidelines and they ignored it all.
Just keep speaking up about the truth, wherever you are - bring brochures, info, anything to wherever you go and educate them.
Posts: 13171 | From San Francisco | Registered: May 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Robin is right, as surely we all know. It is not just that they are stupid and rigid, although they are. They are and were in this for the money, and patients be %$�!*!! And it is worth anywhere from hundreds of thousands per dr (these particular drs) per year to potentially millions for patents on vaccines and test kits. The vaccine was due to come out a while ago, don't know what is happening now.
Robin is also right about all the companies and practitioners who make money off our on-going illness, whether it's deliberate or not. But surely with some it is deliberate.
Posts: 3792 | From around | Registered: Mar 2008
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