posted
Ok, I was diagnosed in Oct. 2009. Was on treatment for a few months and went into liver failure for 6 months. Started herbals, got pregnant, tried to deal with all the Lyme preggo issues. This year my 4 year old daughter tested positive for Lyme and Babesia Duncani and I'm trying to do the best for her. Damn, this is so overwhelming, trying to make the best medical decisions for me, my 4 month old and now my 4 year old daughter. Will it ever end.
I try to stay positive about this whole thing and there have been LOTS of people who have helped me on this site who I really appreciate. However, I read I read I read I read and sometimes I don't know when all of this will stop. It is all so overwhelming. I feel like knowledge is power but some of you are amazingly knowledgable about this disease. And I don't think I will ever know enough. There are too many technical things to learn. And I don't have the time to sit and read alot of medical research info. I need answers! Maybe I'm loosing my patience, but does anyone ever get better from this. I honestly feel really good right now, however, now I have to deal with my daughter and I feel so bad that she has to go through this. But I am confident that we will make it through this. I have a somewhat unsupportive husband, who unknowingly also needs to be tested for Lyme. This medical journey is crazy!! And I just want answers. I am so tired of doing countless hours of research.
Oh man, I'm sorry but I honestly need to vent because no one in my family/friends TRULY know what we are going through.
Posts: 151 | From california | Registered: Dec 2009
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posted
People do get better from this. Remember that. It can be an awful battle, but people do recover.
Also, keep in mind, that it's possible to have a pretty normal life even if one doesn't fully recover - or while one is recovering.
I strongly suggest going to seeking a doctor and making it clear that you need a pediatric LLMD for your daughters, and see if you can see the same one.
I've got all 3 B's right now, and had something that cipro cleared out with the first dose. I may have the fry bug too, as we all may. While on an adequate dose of abx I can function at a pretty high level - probably 90% mentally, much less physically. When I wasn't getting the right abx I was only 40-50% mentally.
I know what you mean by family support. My family is fine, but I have a friend with a sister in the medical community who takes the IDSA line verbatim. This sister has told my friend, his brother, his brothers wife, and his mother that they're all suffering mental deficiencies, despite them getting radically better while on abx.
Don't worry about what your family thinks. Your responsibility is to get you and your daughters healthy.
Posts: 146 | From Maine | Registered: Aug 2011
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Tiffagoo - I wouldn't feel bad for not being positive all the time, I think it's just impossible to stay 100% positive the whole time we are going through this. It is overwhelming and we probably all have some people in our lives who are less than supportive. For me, my husband is incredible, but my parents could not be less supportive. At Thanksgiving my mom who was visiting from out of state complained the whole time because she was bored because I was out of commission and told me, "why don't you get up off the couch and take a walk or something!" Like I could!
I'm so glad this forum is here. I've been so touched by the kindness of the folks on here, and I'm especially incredulous that people who got healthy years ago stick around to answer the same questions over and over from newly sick people like me. Really warms the heart.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
It is frustrating, it does take time. But better times do happen.
Take good care of yourself, rest when you can, worry about only those things that can be changed, pray, laugh and enjoy the random moments that you feel better.
We are here for you. The people that don't support you are not where you spend your energy. Find joy in simple things-sunny day, a funny joke, the smile of your child, etc. Some days you have to try harder-but the joy is always there.
I get cranky and just keep my eyes on God. He always loves me!
God bless
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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