Sorry you are still sick. Rifampin did not go well for me. Some people have to ramp up.
Hope you feel better very soon!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Rifampin is usually taken in the a.m. Guess your llmd treating Bart. or BLO.
Hope it get's resolved for you. Nausea & vommitting are horrid to have.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
Your doctor is treating bartonella first as it should be.
Do not ignore lyme .I am the one that had fully blown lyme and all coinfections.The pain you will suffer from this disease if left untreated as I had it for 20 years it horrendous.
I never knew about it as I came from europe and I had neurolyme and got bit again here.
I have all the bugs.I suffered and lost so much in this war .
You need to focus on treating the infections and stop being in denial.If you are lyme positive you have other coinfections as it is never just lyme.
You are lucky you know about it .while others waste time and money to many doctors for years.
As you treat you will sufer as you kill the infections.Low the dosage to the point you can handle and function.Detox as much as you can .Read here .Lyme is real.No joke.
I sufered for 4 months in rifampin and vomited my guts out but I had to kill bartonella and over months I felt better and got my normal temper back.Due to this infections your personality and your beilives change and you are not your self .you have no idea how much this bugs can change you .
bartonella mostly can make you jumpp out of the skin for any issue.
We all hate this disease but we want our odl self rational back .We want our lifes back.
Try to be pozitive , take your time to think before you speak and be aware that the toxins will come out in one way or the other ( through gut ) and or through vomiting .
I just started some Pekana product that helps with detoxing.it is the big 3 and Mundipur.They all help the organs to detox while killing.It makes your life easier.
I wish I had these information 3 -4 years ago.Now there are so many things to take to suffer less.
Posts: 1379 | From disable | Registered: Aug 2011
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Yes my llmd thinks i have bart. I have had bart rashes, and more recently horrible crippling plantar fascitis.
I am also on doxy 400mg and valacyte.
I started each one seperately. Started rifampin last night. I have taken it before. I don remember feeling nausea. for those who dont know me.... i am a former vet tech (12 years) and became leagally disabled at the ripe age of 27. No bite no rash. woke up extremely ill one morning.
I have been treating 5 years this may. I have been on this board since then. I have been avoiding coming here as part of the denial.
I dont know part of me thinks no pathogen could be left, then Part of me thinks That the other part is insane. Lol
I am also not the most positive person and I dont sugar coat stuff, so I didnt think Posting here would be helpfu to anyone here.
I tend to think for myself, there is no way i wil be like i was before lyme. So maybe i need to learn to acceptthe deal i was given and "move on". Sorry if that bums you guys out. Its not that i quit or am too weak. I am just not sure that all tge crap I have ingested, injected etc has done a darn thing. So do I keep doing it, or ACCEPT that This is what it is?
I mean honesty I help run a support group for lyme, I talk to lyme patients constantly. All these poor folks trying to get better with all these methods and they are still sick. I very rarely see anyone get better wether it be abx, rife, magic, whatever...... So why not just be sick and not take 87 meds and supps everyday?
I guess I am at a cross road.
The lyme id test measures memory t cells and cytokines? I dont get it. Something about exposing your blood to lyme in a lab and it reacts. Medicare covered it.
Posts: 3905 | From USA | Registered: May 2007
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Ahh Merrygirl, you've really been around the block with this damn disease. And it's so difficult to make a secure, loving, home for your children when you always feel like crap.
Thinking of you, Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
thanks carol. already feeling pretty bad. 6month old ACTIVE baby, 6 year old pandas son and 10 year old, its really been hard and getting harder!!
appreciate your support
Posts: 3905 | From USA | Registered: May 2007
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I'm with you. I know how hard it is to be sick and have 2 kids (one who has Lyme) to take care of. These infections have tried to take so much....but, at least you know exactly what you are dealing with.
Is the Valcyte for HHV6? I'm getting ready to be re-tested and if it's still high, will be starting that soon.
The only bit of solace is that there are many of us on this board who can relate. I wish that wasn't the case. I wish this suffering was so rare there wouldn't be enough people to sign onto a support website.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Whoa! You are on a lot of meds....400 mg doxy, rifampin and "valacyte"? Did you mean valcyte?
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
Merygirl I feel you .I have myself the entire family with lyme and coinfections.
My son has every coinfections and I am strugling with him the past 3 years and 1/2 .I have been really sick myself for very long too.
Hang in there.
Posts: 1379 | From disable | Registered: Aug 2011
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
thanks guys. I am on a cousin to valcyte not valcyte or whatever I wrote. I am mostly on the antiviral for ebv and then hhv6
Posts: 3905 | From USA | Registered: May 2007
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
what are your symtoms and what are you taking for them ?
Have you tried homepathic formula from desbio for both of them ?
Posts: 1379 | From disable | Registered: Aug 2011
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
oh my if i listed all my meds it would be very long.
I have extreme fatigue severe pain fevers for 5 years straight foot pain brain fog so many more
I take pain meds, stimulants, sleep meds psych meds etc. waaay too many.
Posts: 3905 | From USA | Registered: May 2007
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Merrygirl, hang in there! Doxy and rifmapin turned the corner for me. Not everyone can take it though,but it's worth trying.
Pardon me for asking this, as I know you've been here a while but, are you taking it with food (hope so)? I took them twice a day with food (makes a difference).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Wow merrygirl, you have been through a lot. It must be so hard. I'm sitting here feeling kinda sorry for myself because I was doing so good and I relapsed.
I just read what you wrote and I stopped feeling sorry for myself. So you did help someone with your post. You named yourself merrygirl for a reason, I get the feeling that it's the Bart making you ****ed off (totally entitled though).
This is not an easy road we are traveling, that's for sure. Bart was by far my hardest infection to deal with, all the mood stuff and depersonalization. I can't imagine how hard it must be to have 3 little kids too.
Keep on treating, and learning, you'll get better. I got better, not as good as before but a lot better than I was. It's worth it to take all the pills and stuff.
Posts: 845 | From Northeast | Registered: May 2011
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