posted
Well got the results today. I can't believe it is 26. Doc is concerned, so he has me on Cellular Forte which has Inositol and IP-6 in it. Anyone have luck with this supplement?
He also wants to make sure CD57 isn't low due to candida. I'm riddled with it and he says it can affect the test. I will be back on Diflucan and adding activated charcoal to help with the detox.
Anything else I can do to try and up my number? He doesn't want to put me back on ABs for Lyme until he makes sure it isn't anything else.
-------------------- Country Mouse
6/2011 IgX: IGG: 31 IND, 41+++, 45+, 58+ IGM: 31+, 39 IND, 41 IND, 83-93 IND Band 31 confirmed to be Lyme epitope by Igenex 7/2011
8/2011 IgX: POSITIVE IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+ IGM: 31+, 34 IND, 39 IND, 41++, 83-93+ Posts: 169 | From Western Mass | Registered: May 2011
| IP: Logged |
posted
One other thing. He is retesting me after we try to up it. He said that I am not to exercise for two days before the test because exercise can reduce the immune response. Thought that was interesting.
-------------------- Country Mouse
6/2011 IgX: IGG: 31 IND, 41+++, 45+, 58+ IGM: 31+, 39 IND, 41 IND, 83-93 IND Band 31 confirmed to be Lyme epitope by Igenex 7/2011
8/2011 IgX: POSITIVE IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+ IGM: 31+, 34 IND, 39 IND, 41++, 83-93+ Posts: 169 | From Western Mass | Registered: May 2011
| IP: Logged |
posted
Boy if you can find the cause and/or cure, let me know! After over 3 years of tx, mine was 9, ugh! That was back in May, have not been on abx since October and am still sick, grrr. TS
Posts: 566 | From West Coast | Registered: May 2008
| IP: Logged |
pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
My CD57 tested at 26 also, twice, after 2 years and after 2 1/2 years on abx.
I feel fine now, off abx, after 2 years with the GB4000 rife machine, but i haven't had any more CD-57 tests.
Posts: 1226 | From USA | Registered: May 2007
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Re: "Anything else I can do to try and up my number?"
I've always heard a good-Q "Cat's Claw" supplement- made from the plant's inner bark- helps boost the CD-57 subset (of white blood cells). I always did the capsules every day, per my LLND, esp when my count had dropped below 40.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
| IP: Logged |
If you have the usual lyme symptoms and those results from igenix and your doctor is trying to 'make sure it's lyme' then it's time IMHO to find a new LLMD.
One that's actually literate with the disease.
Most LLMD's will treat for months or years, having diagnosed the disease clinically - all without a positive lyme test. You have a positive lyme test. You need abx, and a new doctor.
My $.02
Posts: 146 | From Maine | Registered: Aug 2011
| IP: Logged |
posted
Tickbitt, actually I feel fairly well after 4 months of AB treatment. And I know I have the candida everywhere including my skin because we have determined that the rash is yeast related. To boot I have a big belly right now, another tip that yeast is the problem. LDN which I am on does make candida worse, so I am all for trying other stuff before going back on ABs and potentially making the yeast worse.
The CD-57 was from Lab Corp, and my Lyme tests from Igenex. As I understand it, the CD-57 can be lowered for several reasons. Lots of docs use it for a Lyme check but there are other reasons too. Let me know if that info isn't right though.
I hear you, and appreciate your input and honest advice!! Thanks!
-------------------- Country Mouse
6/2011 IgX: IGG: 31 IND, 41+++, 45+, 58+ IGM: 31+, 39 IND, 41 IND, 83-93 IND Band 31 confirmed to be Lyme epitope by Igenex 7/2011
8/2011 IgX: POSITIVE IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+ IGM: 31+, 34 IND, 39 IND, 41++, 83-93+ Posts: 169 | From Western Mass | Registered: May 2011
| IP: Logged |
posted
Country mouse, my cd57 is the same. It used to be 7. But feel lot sicker now. Strange.
Posts: 214 | From Home | Registered: Apr 2011
| IP: Logged |
posted
Manybites, you mention that several family members had Lyme in their livers. How did you find that out? Just curious. Did they culture a biopsy or something?
-------------------- Country Mouse
6/2011 IgX: IGG: 31 IND, 41+++, 45+, 58+ IGM: 31+, 39 IND, 41 IND, 83-93 IND Band 31 confirmed to be Lyme epitope by Igenex 7/2011
8/2011 IgX: POSITIVE IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+ IGM: 31+, 34 IND, 39 IND, 41++, 83-93+ Posts: 169 | From Western Mass | Registered: May 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic