[ 03-03-2012, 11:37 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My son was on mestinon for a year due to ANS. It was the only thing that moved his stomach. Nothing else worked.
Once his Lyme disease got in check he was able to wean off of it.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
Keebler-Dr. H from CA put me on it. He is a LLMD. I will check the side effects... Sounds scary!!!
I started it yesterday with no change so far.
Thank you very much for the resources and advice I appreciate it.
Ktkdommer- did he have any side effects short/long term? Thanks
-------------------- Lauren777 Posts: 32 | From Stockton, CA | Registered: Mar 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Lauren- No side effects what so ever. Only good results. He mostly took it to move the frozen stomach- gastroparesis which went along with his POTS.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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-------------------- Lauren777 Posts: 32 | From Stockton, CA | Registered: Mar 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lauren,
You are in good hands with Dr. H. Excellent reputation. Glad to hear of ktkdommer's son's experience, too.
As with the report of any side-effects, there are always mitigating circumstances (some of which we just can't know).
As long as your LLMD is guiding you with a total protocol and support measures, you can breathe more easily. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
How is this different from something like Reglan or Donperidon?
I have horrrible stomach problems (chronic constipation). Lauren I see Dr H too, and we haven't tried this yet for my GI trouble.
Posts: 844 | From CA | Registered: Apr 2010
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