Topic: How long did you have symptoms before your LYME DIAGNOSIS?
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
You know, this thread or at least these stories should be sent to every doctor on the planet. At least one of them would make a connection eventually, don't you think?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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quote:Originally posted by aiden424: The Mayo Clinic said my bulls eye rash was granuloma annulare.
Wouldn't go to the Mayo Clinic for Lyme!!!
Kathy
I agree. I say "HOLD THE MAYO!" So many horror stories about that place. Mayo, Yale, and UCHC here in CT are the KILLING FIELDS of this epidemic.
I swear if I ever again come across a doc who starts ridiculing the notion of chronic Lyme, I may just punch the guy in the face. I'll blame it on Lyme Rage.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I began seeking help for muscle pain, exhaustion and odd rashes 22 years ago. Had a borderline positive Lyme test in 1999, was told after a week of doxy that this was not Lyme. I was dx with fibromyalgia, allergies, and hormones. And I accepted it and forgot about Lyme, until Last year, I started losing words, was so exhausted, and in so much pain, My doctor tested me without my knowing. Still only one band, but she treated me agressively and low and behold, I herxed big time. Further testing with llmd confirmed it. I will always wonder if Lyme stole 22 years of compromised living. And yet I know I am one of the lucky ones, my symptoms are mild compared to many of you.
Posts: 1728 | From USA | Registered: May 2011
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