LymeNet Flash: IV response

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»	LymeNet Flash » Questions and Discussion » Medical Questions » IV response

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Author

Topic: IV response

finallylyme
Member
Member # 33807

posted

I was curious how long people were on IV before they started seeing improvement.

I started IV 4 weeks ago. I herxed for 12 days, then had 4 days where I felt about like I did before I started treatment.

After those 4 days all my symptoms increased again. I'm getting frustrated and discouraged - should I be seeing any improvement yet or not?

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I have Lyme - but it doesn't have me.

Posts: 70 | From ohio | Registered: Sep 2011 | IP: Logged |

LaurenMiddleTN
Member
Member # 35174

posted

Hi finallylyme [hi]

I can't answer your question as I was actually going to post a question asking how is IV working for everyone?

It looks as though my new doctor is going to start me on IV antibiotics. I'm currently on my 4th round of oral antibiotics in 4 years and I haven't been "healed" or "cured" yet.

Pro's and Con's anyone [bow]

would be helpful.
Thanks.

--------------------
Bite: 5/08, Bulls-eye rash; test:neg. Doxy Treated.
Relapse 5/09: test: neg. Doxy Treated.
Relapse 6/10: back2bake test-neg: Request Western Blot: POSITIVE Currently - 4th round of treatment.
"Sharing my Experience, Strength and Hope."

Posts: 35 | From Middle TN | Registered: Nov 2011 | IP: Logged |

susank
Frequent Contributor (1K+ posts)
Member # 22150

posted

What Abx IV?

--------------------
Pos.Bb culture 2012
Labcorp - no bands ever
Igenex - Neg. 4 times
With overall bands:
IGM 18,28,41,66 IND: 23-25,34,39
IGG 41,58 IND: 39
Bart H IGG 40

Posts: 1613 | From Texas | Registered: Aug 2009 | IP: Logged |

cht girl
LymeNet Contributor
Member # 26170

posted

I was on IV rocephin for about 3 months, and have switched to IV azithromyocin for the past 6 months, and feel like I'm very near to being healed. If you look under my old posts (under Cht girl) I share some insights and and tips of saving $$ when doing IV therapy in some detail. I would say it took me 5 months or longer to be sure that I was getting ahead of this disease, so don't be discouraged after only one month on IV. I wish you better health soon.

Posts: 143 | From Louisville KY | Registered: May 2010 | IP: Logged |

finallylyme
Member
Member # 33807

posted

I am on iv rocephin. I've already had 7 months of oral with no response.

I just changed my oral from Doxy to rifampin last night.

--------------------
I have Lyme - but it doesn't have me.

Posts: 70 | From ohio | Registered: Sep 2011 | IP: Logged |

paulieinct
LymeNet Contributor
Member # 17514

posted

susank: I just noticed you got a positive Bb culture with Advanced Labs after all other testing was negative. WOW, that is HUGE. This test IMO is going to be a game-changer both in diagnosis/treatment and the "politics" of Lyme.

We need Bill Gates to donate $500,000 to be used solely to retest 1,000 people previously declared "NOT LYME" by ID'iot docs. GAME OVER if we can do that.

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Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008 | IP: Logged |

paulieinct
LymeNet Contributor
Member # 17514

posted

finallylyme:

I have yet to do IV myself, will be interested in the responses here.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008 | IP: Logged |

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