posted
The fold part is how it came out of the envelop; it was tri-folded thus that line.
Really gross! I just want them all dead. Ewwwwww! is right.
Posts: 331 | From West Coast | Registered: Jan 2012
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Thanks...So great to know it works.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Thanks Debilyn! Has this result changed your treatment protocol?
Posts: 1432 | From New Jersey | Registered: Jan 2012
| IP: Logged |
I wasn't on treatment prior to this test; I had yet to be dx w/Lyme.
The head doc of the medical group I go to for 'fibromyalgia' et al. happened to be looking at my chart, called me and said "I think you have Lyme. I want you to come in for a new Lyme test."
When the results came back positive, I found an LLMD and started treatment on 2/8/12.
I take Biaxin, Ceftin, and pulse Tindamax two weeks on and two weeks off.
So actually the test started my treatment.
Posts: 331 | From West Coast | Registered: Jan 2012
| IP: Logged |
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
If your LLMD started you on those he "musta" Dx'ed you w/ Lyme. Any diagnostic codes on your latest paperwork? Lyme is 088.81 as many here know. (Funny how every condition seems to have a # assoc w/ it) Sounds like a good protocol an intracelular, a cell wall agent & pulsing a cyst buster. Go debi! Hope you can hang in there with the dosing levels he wants you on.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
| IP: Logged |
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I was about to 'edit' that last message; fix typos & add spaces, but the browser here just posted it anyhow. Whoops! Sorry
Anyhow, good luck with your treatment. But be prepared for some tough times ahead.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
| IP: Logged |
I've had the roller coaster of symptoms since I started these meds. I mean I have been sicker than I ever have even before I started these abx.
Are these the tough times you mention? I sure hope it doesn't get worse than this.
Do you think the combo of abx is wrong? I've been feeling pretty badly--flu-ish, body aches, neck pain, and weird brain zaps.
Posts: 331 | From West Coast | Registered: Jan 2012
| IP: Logged |
AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Debilyn -
Although I am no expert, it sounds like the combination is giving those buggers a serious challenge! Most pathogens will put up a fight trying to "outgrow" an abx, until the abx gets the better of them - then you have all this dead bacteria in your bloodstream, until your body can get rid of it.
I'd be flushing with plenty of liquids and Vitamin C right now if I were you. (Fresh juices could be good.)
I'm sure others here will have good suggestions for their own successful detoxification aids that will help you get through this classic "Herxheimer" reaction. I've heard warm epsom salts baths help too. (The magnesium helps to draw toxins out through your skin.)
Hang in there, and best luck!
Posts: 1432 | From New Jersey | Registered: Jan 2012
| IP: Logged |
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
YES. In the first month of treatment, things can get real tough, especially with a full array of Lyme antibiotics.
My LLMD started me on 1 & added others as I progressed. Your doc might have decided on a more agressive approach.
You will have some days worse than others. Brain zaps, muscle twitches, dull headaches, neck pain, pains in the rib or large joints, nausea, lack of energy, etc.,.. all part of the Jarsch Herxheimer reactions. It tends to come in waves, with the 2nd day & 4th week being the toughest for me, as I recall.
But I think you might be getting about the worst of it now, though a *new* abx protocol, in 3 or 4... or 5 months time *might* bring more waves of bad "herxing", but it's usually not as bad.
(Only beng on Ketek for me- in the 3rd month- was a nightmare, but we discontinued it due to side-effects I was having.)
And, Yes, "it's working". Hang in there! Keep in touch w/ your Doc's office if need be.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
| IP: Logged |
posted
I take VitaCost Probiotic, 15 strains and 35 billion CFUs. I've been taking three a day.
Is this a good probiotic, or do you recommend a better one?
Thanks all for answering my questions.
Posts: 331 | From West Coast | Registered: Jan 2012
| IP: Logged |
AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Do you have a juicer? Carrot with anything green (celery, parsley, cabbage) is yummy!
If you must add a bit more sweetness (although cabbage juice is surprisingly sweet)... try a Green Granny Smith apple, which is low enough in sugar to be recommended to autistic kids placed on gluten free, sugar free diet.
Posts: 1432 | From New Jersey | Registered: Jan 2012
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I did not take my meds without yeast protection. I use Nystatin, 4 tabs a day.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
When do you take the Nystatin in relation to the abx?
I have been prescribed Nystatin as well, but each time I take it within 10 minutes, I vomit. I can't keep it in my stomach.
Do you take it w/abx, w/supplements? How can I keep it in my stomach, so it does its job?
Posts: 331 | From West Coast | Registered: Jan 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/